Today’s Lunch – 15th August 2018

Published August 15, 2018 by helentastic67

Todays Lunch

Today’s Lunch

Good Mental Health Day

Have had a crazy week so far so really glad to have only lunch and my stabby appointments now on Wednesday.

Crazy Week

Have no idea how I’ve made it home the last two days! No idea, have walked and walked and carried (learnt nothing from my Milk post obviously!) so much! Got home Tuesday and weighed my bag before unpacking it. 5 kilos’! Unpacked it and it was still 2!

Walking

Friday is looking to be a crazy day, with an extra appointment with my guy who made my AFO, my GP and the chiropractor and that’s on top of the normal grocery shopping and my only food prep appointment for the week.

Friday

I’m exhausted and it’s only Tuesday night when I do my prep-work on this post. Is this week over yet? I am always surprised that people have no idea how knackered I am once home. People must see me and assume I’m energetic all the time because that’s probably how they see me when I’m out. They have no idea I got home Monday on a whiff of determination that I had to get home.

Knackered

I even went upstairs to unpack my bag from my adventures in the city, then went back down to go to the local supermarket just to get milk and kitchen-tidy bags as I wouldn’t make it to Friday. I avoided what I call “Danger Alley!” So, or to buy unnecessary items and you pick which supermarket I live way too close to? It’s the one with all the weird stuff you wouldn’t find in the one place in any other country other than Germany? (Hint! Hint!) still ended up getting about 5 things!

Aldi

Oh, here’s a nice Lebanese pizza I had last week. Close to home.  Can’t tell you how confused the girl was when I ordered Vegetarian but asked they put salami on it! What?  (Handy Hint!)

Lebanese Pizza

And today’s offering? Because it looked too big to eat I ordered half a Mediterranean focaccia. So, yummy bitter green olives, eggplant, feta and zucchini. With my standard medicine.

PanniniLatte

 

 

 

 

 

 

 

 

 

 

Then because I decided I could eat more, this naughty little chocolate tart!

Chocolate Pudding

I stayed close to home before my stabby appointment as I didn’t have the luxury of seeing Young John. But will make up for it by walking home.

Walking home

Also, a picture of Mika my new fur-baby. Just proof she has settled in even sleeping snuggled against my legs overnight telling me she trusts me. Yeah, that’s the sign. For those who don’t speak Cat!

Mika

Cheers,
H

Have a great week

Advertisements

Milk

Published August 13, 2018 by helentastic67

Milk

MILK – for want of a better tittle.

Have you ever wondered about the cost of milk? Often there are lots of hidden issues with having a disability that the average person wouldn’t consider. Now, it’s going to annoy me to explain the intricacies on this very simple topic, but I’m by all means not crying over spilt milk.

Spilt milk

I shop with a carer every Friday, they collect me from home and drive us to my local shopping complex. It’s not a huge Westfield, so thankfully has the basics of what I need. Butcher, baker, candlestick maker. Supermarket, you know.

Shopping list

 

Whatever, foodwise I’m going to need I must get or I run out, paying more for it at a smaller independent supermarket, carrying it around for a period of time or risking it spoiling because it’s out of a fridge for too long, like milk.

Shopping list

About once monthly I buy an extra litre of milk, so I don’t run the risk of having to resort to using sweetened Condensed milk in my coffee. Year, nice but that’s diabetics right there.

Condensed Milk

The following Friday arrives and I check the fridge for my supply of milk. Sometimes I’ve still got an unopened bottle. The Use by date is the following day, now being unopened, it’s possibly going to last beyond the Use by date, but can I be sure.

Check fridge 1

Lately, I’ve been joking if I eat something I’ve had in the fridge a little too long and I ask if the worst that happens is I spend the night on the toilet and loose five kilos, that’s a lazy diet right.

Getting sick

So, I throw out the milk, which is wasteful and go shopping and get more. Maybe the guilt plays on my mind so I under stock milk and the next week, I ration a bit.

Ration milk

By Wednesday during my busy punchy/stabby/foodie , mental health post day, I need to debate picking up milk in my travels. I am near two independent supermarkets, one of which I walk past later in the day.

If I get one at either of the independent supermarkets, they cost more than a coffee. Outrageous. Aside from the risk of how long the milk should be out of the fridge.

More than coffee

Fun Fact: – Did you know, every degree milk loses (after coming out of the fridge) it loses a day of its shelf life.

Fun fact

The other issue is of course, how I need to carry the milk. I wear a bag that has a strap, which sits on my left shoulder and the bags sits on my right glute. My Gluteus Maximus.

Gluteous Maximus

Despite disc bulge surgery, my lower back is always at risk when carrying anything home, no matter the length of time I carry it.

My lower back twinges and when I get pain down the back of my good leg, it’s a sure sign any heavy lifting or excess carrying of heavy things is temporarily banned.

Lower back pain

So, while to the outside world I’m portrayed or seen as this confident, flexible and mobile semi-broken woman (my term), underneath the cost of a simple litre of milk is either my pocket or my back.

Strong Independent Woman

Both require medication and time out to not spend money. So, that was actually not as painful as I thought. Maybe I didn’t do it justice.

Doing Justice

 

Torture – Part 2

Published August 10, 2018 by helentastic67

Torture Pt2

Torture – Part 2

So now, to how doctors buy themselves time and the active torture that was to temporarily fix the problem. They promised me an Epidural.

Doctor buying time

Have you ever wondered why “women in labour” ask for the Epidural? I don’t know from personal experience, but I’m told it hurts. It hurts like pushing a big square wardrobe out of a small place in you body, wardrobes don’t belong…

Women in labour

And the Epidural doesn’t hurt because of the happy pregnant lady hormones.

Now, they promised me an Epidural as part of delivering me a nerve root injection or a Cortisone shot. (you will hear people call it)

Cortisone shot

At the time I was on two waiting lists, one with my hospital (because I thought they would get to me) and another hospital closer to home. (that is, I didn’t have them do my surgery, my own mother might have killed me. Because she had been told they had the best surgeon to see.)

Waiting list

Have I mentioned, I’m a public patient? Because I’m poor. Yeah. So it generally means, you go with whatever you can get, whenever you can have it and not before.

The term for it is triage, they prioritise the patience that are less mobile and more ‘at risk’. Just making a point – ALL YEAR, it took all year!

Still, I digress.

The Nuero root injection goes like this, in nothing but your knickers pushed down low on your hips and a gown that is open at the back, you lie down on your tummy on a CT scanning bed. There are two people in the room whom you will hate by the end of the procedure. (if you follow my advice and learn from my experience.)

Lying on CT Scanner

Firstly, they give you a local anaesthetic. Now I will remind you, it’s been a while since my last local, so you forget how much it stings.

Sweet Jesus! (Which is likely what I said)

Sweet Jesus

The doctors claim it’s because the needle is so fine. Really? Torture device.

Then they wait until it starts to kick-in and then I swear it’s like a pick-axe! They insert it in my lower back, telling me to breathe and relax.

Pick axe

When in pain, it’s good to keep breathing, but when lying on your tummy and working where they were, it’s impossible.

Keep Breathing

Then, they roll you into the CT machine and take a scan. The doctor comes back in and utters some words like “Looks like we’re heading in the right direction” and they ram the needle in further.

Heading in the right direction

I don’t think a “Sweet Jesus” was what came out the second time. They offered me more local, but does anyone need reminding, a local really does mean ‘local’.

Not sweet Jesus

Then another scan and more core breaking agony. Three times they took to get that needle all the way to where they wanted it. Then they injected me with the Cortisone, or whatever, that was meant to give me blessed relief from the pain.

Another CT Scan

I did feel something shoot down my right leg, but that was it.

I recall getting up after it an asking “What’s next?”

They told me that was it and I could go. OK

My sister had told me, if I was getting an epidural to ask at the end of the procedure “Where’s my baby?”

Wheres my baby

The Jewish doctor and his registrar just looked at me. The female nurse, over to one side gave me a little smile.

Tough crowd.

Anyway, I left the hospital with my mum and was still in pain, but now with a very sore back.

The second one I had at a different hospital, they made me stay lying down for an hour or so afterwards, in a small recovery room with nurses overlooking about six beds. They were very insistent I not get up and walk straight away in case my legs gave way and I fell over. Is that the sure sign it worked? Maybe not, not sure. But I really needed to pee.

Recovery

I was offered a bedpan, seriously, the push bedpans in hospital, like it’s more convenient for them to change the sheets than wheel me to a toilet and wheel me back to bed.

Bedpan

Grudgingly the nurse bought over a walker (you know, not just for old people, but predominantly) and I told her no. She kept insisting and I thought she was very slow for not realising you needed two hands to work one. I growled further to get it out of my way. I’m sure she thought I was the rudest cow in there that day. (I probably was)

Eventually, a wheelchair was produced and I was wheeled to the toilet. The chair pushed so close to the toilet and locked into place, I struggled to wriggle up and around it to wash my hand after I had gone.

Wheelchair

I pressed the duty call button and waited for some time for the nurse to return to me. My mum was patiently waiting my return. My mum was patiently waiting for my return, I briefly contemplated getting up and walking back using the hand rail on the hallway wall as an aide, but I waited.

Call button

I swear I waited twenty minutes, you get I only needed to pee.

The nurse finally retrieved me, stating she only realised I was not in my bed when she did a head-count and realised there was one bed empty. Oh, the call button doesn’t work? Nor did the nerve root injection.

Head Count

But, humoursly, the night light was comment from the nurse that had been in assisting my injection. She must have been new to that area.

An older more experienced nurse enquired as to during all the CT scans if she had protected herself from the radiation.

Radiation

She replied “OH yes! I hid behind the Doctors.”

Oh facepalm.

What about me? I’d suffered four or five, that day, I was informed the staff get fifty or more in a day.

I guess getting a needle rammed into your back with only a local, really doesn’t make for a happy Hellonwheels.

Sad Helen

Today’s Lunch – 8th August 2018

Published August 8, 2018 by helentastic67

Todays Lunch

Today’s Lunch

Good Mental Health Day

Going to rush through some important updates first if I may, have had a series of MRI’s to rule out a second disc bulge, and anything new going on with my brain. MRI on my head, results, still got a brain up there! (Not sorry, brain injury humour) and lower back MRI. No second disc bulge. Check! Friday’s upcoming post particularly important for reasons why I don’t want another disc bulge. Stay tuned! So, next, thoracic spine MRI and yes! I have a spine! And there is good news and bad news! I love this game, I win it every time, it goes like this.

MRI

The Good News! There’s nothing wrong!
The Bad News? We still don’t know what’s causing the problems/pain you are experiencing!
Next!

Good news bad news

Have been particularly tired this week, don’t know if anybody else has felt it? I always flick a message to a friend who is particularly switched on to such, her reply did not disappoint! “Yup! There are 6 planets in retrograde and the lions gate is open!!!!Definitely something in the stars and planets!”

Tired

Prompting me to reply, “Jesus, Mary and Joseph! There’s a lion and a gate? Are we in Narnia?” caught up with my Boo (sweetheart name for one of my gay friends) last week for dinner. Upon reminding him I have Mika he promptly stated I’d given up on finding a husband? Ggggrrrrrrrrrrrr!  Move on!

Narnia

In less than two weeks Mika is settling in nicely. She is insisting space on my lap in the evening on top of the polar-fleece covered blanket. Making it very hard for me to eat my dinner, as I am in that slump where all meals are consumed on the couch on my lap! Also, when I want to go to bed I have a grumpy cat not wanting me to move.

Mika 1

Ms Tina one of my crazy cat lady friends dropped in last week to meet Mika and the look on her face when I told her Mika only eats dry food! Priceless! Admittedly, that is 15minutes every Friday I just got back not standing in the supermarket trying to work out what the damn cat will eat this time? Mika will be introduced to wet food. But slowly for a varied diet and not gravy-based, the complete opposite Jamima’s preferences, the Neko Cat Lounge paperwork recommended Mika wouldn’t respond well to runny food. Must reset mind-set!

Crazy Cat Lady

And getting back to the point of today?

To write future blog posts. Socialise at my regular cafe and great tasty food. Today’s offering, something a bit different today although I might not eat the bread. Panino Milanese, (What’s that? I hear you ask, exactly) It’s Coletta, cos lettuce, salsa, Augusta and mustard mayonnaise, with the side salad and medicine!

PanninoSalad

 

 

 

 

 

 

 

 

Latte

Cheers,
H

Wonderful day

Torture – Part 1

Published August 6, 2018 by helentastic67

Torture Part 1 a

Torture Part 1

There are some posts I put off writing, I’ve had this on simmer in the back of my mind for years and as usual, there are a million ways to address this one. It kinda follows one about the Neuro Angiogram, of which I’ve had two, of and I hated. And ironically, I’ve had two of these also and I hated both of these also.

Angiogram

Firstly, I should premise by saying 2011 was a rough year. Let me start by saying the issues started a few years earlier, but I didn’t piece everything together until sometime later.

2011 problem

By 2011, I had been living one handed for a few years, being fiercely independent and with the ability to keep doing some things one handed. With the encouragement of my physio and OT, I kept doing “things” one handed, ie) lifting a 10kg bag of kitty litter and taking it from the front door to the back door, so it took pressure off the boyfriend. (Yeah! I know, I had one.) Helen now don’t got one. I’ll get to that, it’s on the list.

Kitty Litter

Now, where was I?

On the 6th January that year, I lifted my small suitcase from the floor to my bed. It was full of my laptop, hard drives and other tech stuff and I didn’t want my mother to lift it, so I did it. In hindsight, that was the straw that broke the camel’s back.

Suitcase

Weird things started to happen like, it hurt to sit, but not my “butt” I had shooting pain down my right leg. Reminder; my right leg is my good leg, really don’t need anything going wrong with my good leg. I couldn’t sit on the couch in the evenings and watch TV.

Pain in the butt

Trips to my GP, had new medication added to my diet. I think we started with muscle relaxants.

DID NOT HELP!

Can’t recall now, what medications followed that, but I started getting Ultrasounds to my legs and other things.

What felt like forever, later we found what worked. The Silver bullet came in the form of Oxy and what I refer to as ‘Oxy, Oxy and Oxy.’

Oxy Oxy Oxy

Slow release, short release and don’t bother me with that because it’s just not going to help.

Oh yeah, eventually the diagnosis was a disc bulge and another crappy side-effect. I felt I needed to pee. All the time and of course if you have ever been on any serious Opiates, you know you have the added trauma of Constipation. Super!

Constipation

So, as part of the process to get better, is medication. Some people can walk it off and it just gets better. Some people require surgery, but while brain surgeons (Nuero Surgeons) do brains and backs, they prioritise brain.

Brain surgery

Now my happy place that year was lying on my bed, my laptop now lived on my bed so, I just spent more time there. My happy place with Opiates, was 20mg of Oxy Contin during the day and 10mg at night. If I had to go out, I would take 5mg of Oxy norm, it works fairly quickly, but gives you only three hours of taking the edge off.

Lying in bed

I caught the taxi to my local appointments, because I struggled to even scooter to them.

My ‘shrink’ I saw over the phone, paying using online banking. I saw my GP while lying down on his bed, you know, that table thingy? So, saying all of this, it was a long year.

Shrink on phone

The ironic part was all the medical people I saw that year, couldn’t diagnose me, until an MRI told me what the cause to the pain was.

Dr Diagnosis

After diagnosis, a lovely Indian woman who dropped over, I told her I had a disc bulge and she asked “do you have pain down your leg?”

Seriously.

Seriously

Cheeky

Published August 3, 2018 by helentastic67

Cheeky

Cheeky

Now, I like to imagine by now, you are fully aware I am a bit cheeky. I can’t be my usually cheeky self around family, because they don’t get it. Weird right? But I’ve got a new carer who takes me shopping and she has worked out very quickly how ‘fresh’ she can be with me, which is good.

Family weird

We have been doing a little driving to locations, I can get to certain things without adding to the chaos and me having to carry things.

So, last Friday, after driving to a Health Food shop where I get some of my ‘good pills’ which I get in bulk, so they are cheaper. We drove to a neighbouring suburb to the Petshop. This pet shop has a cat that requires re-homing, there might be a kitten, bunnies, fish. Yeah! That kind of pet shop.

Pet shop

We pulled up in a car park on the street and when my carer was ready to disembark, she came out with a command.

“GET OUT”

Get out

To be fair, I wasn’t expecting it, but after a snort, I burst out laughing and so did she.

Burst out Laughing

To be fair, it is always good to have a laugh when out with my carers because people don’t just see me as someone with a disability. People see me out with my ‘girlfriends’ laughing. Sharing stories and wit and people then don’t notice my disability. However, some carers don’t realise if they think they can out do me with wit, they are mistaken.

Hanging out with friends

All I have to do is stand still and let out a screech.

“STOP IT”

And then

“YOU’RE HURTING ME!”

And people might come to my aid.

Hurt me

 

Today’s Lunch – 1st August 2018

Published August 1, 2018 by helentastic67

Todays lunch

Today’s Lunch

Good Mental Health Day

Pinch and a punch for the first of the month. Punch and a kick for being so quick! Yeah, where has this year gone?

Pinch and a punch

Got some good news today, which was worthy of a hot off the press Monday but I couldn’t get it together so.

Meet. Mika!

Mika 1

Mika 2

 

 

 

 

 

 

 

 

 

Officially, found her last Wednesday in a pet shop that gets its cats from the Neko Cat Lounge. She is less than 2 years old and had kittens before she was fixed. It is awful for such a young cat to have had a litter however, it will mean she will be more settled. After I get her settled in to apartment living that is!

Mika 3Mika 4

 

 

 

 

 

 

 

 

 

And because I forgot to include it on Monday? How I make my bread and butter puddings.

Bread and Butter Pudding

Oh, and what Wednesday’s are all about? Today’s offering, this yummy chicken, pumpkin, spinach and feta panini and my medicine!

I’m closer to home today as Young John stood me up!

PanniniLatte

 

 

 

 

 

 

 

 

 

Cheers,
H

Great Day

%d bloggers like this: