People don’t realise how much self-advocacy is involved in having a disability and remaining independent.
People would think I have everything in the whole damn world thrown at me because I have a disability.
However, in reality, I’m forever pushing about 5 different issues and at any given time.
You probably wouldn’t believe me but on my limited income I live in private rental. Yes this means I qualify for Rent Assistance, but it hasn’t increased since 2007 when I first qualified for my pension and while rent has continued to increase, Rent Assistance has never increased in line with the market.
The reality? THREE times I’ve moved since 2007, I’ve had to move further from my supports and comfort zone, further from the city. Let’s not forget, I have to compromise, quality of my home and size.
(I went to an open for inspection on Saturday as I’m having to contemplate moving) and the kitchen was crappy 70’s! Not even nice or retro 70’s! We’re talking three kinds of BROWN TILE where there was already BROWN CUPBOARDS! In a really small space, I can’t do it!
I grew up in a brown 70’s house (my dad still lives there) and a BROWN SCHOOL UNIFORM. I’ve suffered enough!
NUMBER 2! My second issue I’m dealing with right now , I’m dealing with the Government and my 2nd appeal so my pension is not reduced every fortnight for the rest of my natural born life!
I’m not being melodramatic, they really want to reduce my allowance at a small amount per fortnight for the next 24 years!
Keep in mind, they harass me every 3 months threatening to take a significantly larger portion that would see me not pay my rent or eat!
Also keep in mind, I’ve previously stated eat Salami to shorten my life and if this keeps up I won’t be able to afford Salami either.
Perhaps, if I’m feeling a Part 2 to this, so stay tuned….. NEXT!!!!