Hot off the press

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Hot off the Press – 13th November 2017

Published November 13, 2017 by helentastic67

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Hot off the Press

So, Monday. I can now confirm I have a cold, it’s the second this year, not happy at all. I guess, a week ago I found about four boxes of tissues in the cupboard and thought rather than suffer a lecture from mum when they had to be packed, I’ll just get a cold use all the tissues and go buy more! Had to do the crazy admin and phone calls to arrange disconnections and reconnection. Locked in removalists and a cleaner and growled at a few people to encourage funding to pay for things. In full packing mode and feeling like the worst case of OCD ever!

Have a cold

Tissues

 

 

 

 

 

 

 

 

 

Tuesday, had three lovely volunteers to help pack, it’s all coming together. Visit at the end of the day from Michael, who has helped me with my never-ending battle to empty my freezer and I gave him a two-course meal for dinner, all while still dealing with this cold.

Volunteer

Wednesday, I hope you caught my Foodie post? https://hellonwheelslifeonehanded.wordpress.com/2017/11/08/todays-lunch-8th-november-2017/

Thursday, I’ll just point out the last three nights (just give it to me) I’ve gotten to bed by 1am! Winning! Early start at 8am, to get out on the povo-trail. (Poverty: shit you do when you’re poor) my Josh was to get my first month’s rent. Tick! My bond, (still to happen) and I have $300 towards my removalist costs. To be continued. ……………

Poverty Trail

Friday, can’t believe I got here. My first service provider (where I get my carers from) has managed to inhibit my ability to be independent. Ironic since it’s one of their core-messages of why you would want to choose them. (anyway, I have no words to describe how I feel about this) I’ve requested carers twice this week and not had them provided. (I wonder who polices the Service Providers) Packing is coming together, even got out on Hellonwheels today and came home with six more boxes. So many things this week I’ve put into place only to ask for help to pay for my cleaner, or whatever and rather than come to the party I was given more work! Gggggrrrrrrrr………. Even given new information, would have been useful to have before I had to organise these things myself. I have organised everything for the move, including volunteers to help move some of the more delicate breakable things so I can make it easier for my removalists.

Packing

The first agency quarantined some of my funding thinking they would be providing most of my supports. As they started to struggle to do this, I moved some of those required services to the second agency but the first agency never released that funding making the other one, then two agencies run at a loss to keep me receiving services. Have I mentioned how I hate having a disability makes me a commodity? I’m feeling like I’m being milked, but under serviced. That just got weird didn’t it?

Carers

So, my last weekend at address 1/111 and there are not enough boxes still. Only a few more days until I move and I’ve started getting plants to go to their new homes and my bonsai to Mr Miyagi, to be re-potted. They will return once I’ve moved.

bonsai

Bonsai 1

 

 

 

 

 

 

 

 

 

Late Sunday night mum arrives and is pleasantly surprised how much is done and I’ve still got the damn cold! I’m coughing up a lung now so I’m far from thrilled. Let’s see how well the next week goes.

Cheers, H

new beginnings

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Hot off the Press – 6th November 2017

Published November 7, 2017 by helentastic67

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Hot off the Press

Why! Why! Why! Do I bother?

So, I realise in hindsight last week’s Hot post was very busy. And I guess it was accurate to my week and my weeks often are very busy. At the moment it seems there is no way to reduce the busy……….but I shall try.
Monday, head hurt. Saw my shrink. Had medicine. And lunch out.

Pork Rice Paper Rolls

Dealing with lowering my expectation of how much family will assist me to reduce my belongings. I will be downsizing, slightly and while I still have things I intended selling five years ago when I moved here, I have not realised the assistance I need so I can sell them. I have issues with expressing to family that I’ve lost so much already, I don’t want to just give away everything else. I thought at this point in life I would be married and have kids, (well, at least have that picture of a family in my existence) and it’s now less likely and far more challenging to foresee that image in my life. So, while stuff are just things, it’s harder to part with. Look! See how impossible it is? (to write a shorter post on a Monday?) I cannot shorten my life……….

Moving

Tuesday, despite the roadworks happening outside my front door! I had a massage at home. (You can’t make this crap up, seriously!) Went to my rehab specialist and a belated birthday gift! I got BOTOX! I my calf!

Botox

Sounds weird, right?

And it’s not even to take out the wrinkles? No. To help soften and stretch my calf muscles and stop my hyper extension and hopefully save me from needing a knee replacement in later life. Yeah, lazy day. Still knackered. Next!

More roadworks again Wednesday! God help me! I bet I move and then the long promised and long-awaited speed humps get installed down this street! I have a few hoons that like to Fang it down the street even though not far is a roundabout………

Roadworks

Normal Punchy/stubby Wednesday. Hope you saw my foodie post?

After a delay, I signed my lease today for my new home……and despite the law that will be soon to come in I am not allowed to get a cat YET! And no, I don’t know when I can. Bit grumpy.
Back to my old neighbourhood for a late birthday lunch with a friend Susanne… Here are some photos of the Red door corner store.

Red door 1red door 2red door 3red door 4

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Did my first visit to the bottle shop for some boxes. I like to make jokes about buying unopened boxes of brandy or such, drinking it all then recycling when I move but again, not a drinker. Made some calls to get the funding side of moving organised including an 8AM start with a carer next week and a day out with a carer to get stuff done. Keep smelling something weird today…….wondering if I’m having a stroke? I keep smelling pot (as in Mary Jane) again, I have never smoked it however my fav housemate used to…. Guess that’s why he was so chilled out, right?

smell weed

Friday! Meant to get some serious laundry done for the next week, sine I will soon be living without a close. Line? WTF! (Sorry, I know some of you are not fans of potty mouths) I just don’t get how I’m going to get queen sized sheets dry living in an apartment with a tiny, tiny balcony. Didn’t get much done at all today for the big move! Booked my trucks…….my little red Trucks. They have moved me the last two times. Ending the week feeling like I’m getting a cold or something. I don’t like it.

Happy Off-grid Saturday. Put on a Toppy film while I started packing some lighter things.
Sunday, more packing, but lazy day until the evening when I Again did something unusual…..I went OUT!

I seldom go out in the evenings anymore. Going to see a band a rarity. But last night I went to see a Melbourne band from the 90’s called Snog! (No, really) Let me just say they are heavily sample-based and once you hear a few of their lyrics you will not forget.

Dave Thrussel came out onstage wearing a gold suit and a seriously hideous Donald Trump mask. The woman had come out on stage wearing frog masks and the dude at the back was wearing a gimp mask! (We were all later accused of being guilty at taking a glance at his crotch) I promise, I didn’t, because I couldn’t really see that far. The Trump mask made much more sense when he started with one of our favourites………Corporate Slave…….(Alpha 66 Remix)

They also have another great track called Shop!……..

Keep in mind they will seem very dated. Online content has come a long way……..Snog is a very interesting listen. Enjoy.

Had a fun time getting to an accessible toilet at intermission. Really should have gone with my first instinct and followed the guy in the wheelchair. Crossed the venue twice following false information, before correctly being directed to the lift and upstairs. Yes! The guy in the Wheels had beaten us! As he should have. Ran into one of my club buddies from back in the day, D5 (there were too many Dave’s to keep track of so I numbered them!) he tapped me on the left shoulder…..I really must tell him I don’t feel much on that side. Ironically, he said it was great to see me out and about…….(I’m out and about most days, it’s the nights I just don’t often do anymore)

Afterwards we went to Coles where I argued with the self-serve checkout. (Don’t be so impatient!) where I bought juice. So, Rockstar! Arrived home just after midnight. My Renegade Tri Jacket got a compliment also and I was asked if people offer to buy it? (Never going to part with it) It’s one of those rare items from my clubbing/Street-wear days I can still wear. I just save it for the rare but good times. I think the highlight for me were being in a small band venue with a sound system that made the floor vibrate and sound like it could strip the paint off the walls. I miss those days and if only my pedometer on my smart phone could count wriggles……that’s my dance style these days. Ok, I gotta finish this at some point so it can go live. At least on the day it is intended. My bad, I’ve been busy…….please forgive. Stay tuned for next week.

Pedometer
Cheers,
H

Great week

Hot off the Press – 30th October 2017

Published October 30, 2017 by helentastic67

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Hot off the Press

Another. Crazy week is under way already!

Learned a new term the young kids are using now……Pods! Ok, not the young kids but Pods is short for Podiatrist and I got to see one just in time for my NDIS review on Tuesday. I had never met this woman before and she was the coolest chick and we clicked immediately. And she is only days from maternity leave so I have to wait a whole year before she returns…….but she is going to follow Hellonwheels! Yeah me!

Podiatrist

Mum arrived around 11pm to prepare for my big meeting with the NDIS and we did this by going to bed well after midnight. No, not preparing for our big meeting but just doing stuff. What can I say? We are not morning people.

Tuesday, arrived at my review with the NDIA just in time. Struggled to find their location and the Planner I was expecting to see had been given a different job only last Friday so the Planner we did see had only been given my file two minutes before she met us. (To her credit she coped very well) My CM (Case Manager) had made it in the nick of time and I think the three of us make a pretty good team.

NDIS

Fingers crossed I get some things actually paid for this time. I’m trying to get them to cover my shoes, at $440 a pair they are the most expensive shoes I have ever owned (and I’m trying to get two pairs), I’m trying to get my monthly psychologist appointments covered as this good mental health comes at a cost, then my weekly chiropractor appointments. Everybody thinks they keep Helen upright and walking and talking but they don’t, my chiropractor does.

Shoes

Mum and I had a late lunch sitting in a fast food location close to home. Doesn’t happen often so it was very, very good. No teasers here. Stopped to scoop up some medicine (coffee) from a local independent wog supermarket close to home. Mum bought a huge slab to take home. Plenty of jokes that we would be OK for a day or two.

Fast food

Home again, medicine, pills and off to my B Team beautician for some waxing, 1/2 leg and under arms. Again, 10milograms of Oxy Norm, I have found is my Happy Place. My left leg doesn’t have the same sensation but when I get them waxed they still hurt the same. Legs itchy for the rest of the night.

Waxing

Mum too tired to cook her amazing fish so took us to a great Vietnamese restaurant to pick up some take away. The woman always looks at us like “These white people don’t know what to order.” Too tired to do any food styling…..  Order was veggie spring rolls wrapped in lettuce leaves with a mint leaf inside, then dipped in dipping sauce.

Spring Rolls

Followed by beef in black bean sauce on rice. My favourite. Then finished with something they call two Colour!

Two colours

It is this weird drink with red kidney beans in the bottom, green gelatine in the middle and ice on top with coconut milk on top. It’s weird but interesting. It melts some while you are eating so you finish with it. Not like a dessert but a cleansing way to finish. By 9pm I wasn’t sure I would make it to midnight. Was already in my PJ’s. At midnight I had finally caught up on the admin and happy not to start Wednesday behind the eight ball. Next!

Wednesday, the calls to start arranging the stuff to move has begun! What has a girl got to do, just to get a call answered? Rang a place so long today, there was an outgoing message stating they were too busy so to call back later. I just laughed and my mum queried …. Is that it? Shit like this for me these days is like water off a duck back. I have yet to signed my new lease but am trying to get my bond funded, my first month’s rent covered as my new rent will be under 55% of my income it will qualify me for assistance. Trying to get ahead of the chaos! Rang for bond assistance and the guy sounded like he was going to direct me to call the previously mentioned organisation and I told him if he said I had to call them, I would come down and punch him! (Most others realise my sense of humour and laugh but I think he really thought I would go punch him). I think he lightened up somewhat when I mentioned I’d had bond assistance many times previously and it had always been returned! (implying I was a rare but good client)

Call centre

Had my mum taxi today so didn’t see Young John again this week. Had lunch with mum and did Chiro…….Quick visit to Bella who decided to come out of her warm bed to get some attention. Visit with the lovely beautician and made it in time to see my acupuncturist but he had already stabbed everyone for his 3.30pm session so he told me it was my school friends fault. He loves to remind me I went to high school with the current Victorian Premier. (Daniel Andrews) I keep reminding him we had not been friends. Mum scooped me up and we went home.

Mums taxi

My older sister and partner dropped in and collected the first batch of plants to go to a new home.  My new apartment will have limited space for plants…….sadly. I must also find a new home for my 500+ outdoor pets that come with their own plastic home……I’m referring to my worm farm. Get it? Long day! Mum left around 8pm for the long drive home after spending some time reporting my plants ready for the move and weeding. She can’t help herself, my backyard is much more manageable than her acre and a quarter. It’s now midnight and I’m still attempting to catch up on my admin.

Plants

Oh, had a call today about my Friday service. You recall, the one where my regular carer is currently away? The backup carer I am told is unavailable…….(I think she just isn’t confident parking in my driveway) and they wanted to know if I would be OK to cancel until my regular chick is back? My brain hurts! Did I mention, this service is my weekly shopping? And my homecare and only food prep assistance? I had to suggest they find me someone, or would they outsource it to another agency? I ended up swopping my own shift to another agency and luckily, they found someone for four hours, no food prep assistance. Any wonder I have a migraine!

Carer

Thursday, usually a prelude to my off-grid Saturday. I had a rather lazy start to the day and a friend arrived around 3.30pm and we went for a long drive to the Cat Lounge in a neighbouring suburb, this was my first ever visit. My companion, I fondly refer to as the crazy cat lady, number of cats two currently and let’s not talk about that. Straight away she was “Look at the kitties!” I think I was a bit speechless. I was offered a locker for my bag, and I now realise they want to discourage you taking in cat treats and such. I took my bag in as I wasn’t fazed to have a cat rub itself against it. (All the better to sneak a cat out in my bag, right?) Joke! http://www.neko.org.au/neko-hq/

CatsCats 1Cats 2Cats 3

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Cats! Cats! Everywhere Cats. Some sleeping on the top of things like Trees, inside mushrooms. Running around, just everywhere. Have I mentioned my older sister is allergic? This is her idea of hell. Poor luv. When we arrived, there was a guy sitting at the table with his laptop and phone. I noticed a black feline curled up on his lap. He sounded to be a frequent visitor choosing to do his ‘work’ there once a week. He seemed reluctant to leave the black kitten. Suggesting it wouldn’t be there much longer. We both sat down and cats chose to come by for attention and others came to lounge on the couches with us. Mmmmmmmmmmm. I queried how many cats were in residence and suggested a game of Where’s Wally? But for the cats. Ms Tina was very good at Where’s Wally, I pulled a chair out from under the table to sit next to a rather large cat who didn’t seem prepared to move for anybody. The chair was covered in fur and I sat down anyway, you bet I did. She was a really sweet older cat who has already been adopted. So she had nothing to work for. I moved around to meet the different cats and even greeted the new arrivals tucked away in the corner. I offered a few kind words and a finger for a sniff and a tickle. I sat on an armchair and a cheeky female kitten (7 months old) came and I helped her settle up towards my right shoulder. She was cradled by my one good hand, but close enough for me to rub my cheek on. She just stayed there cleaning herself and settled into my Marino Wool jumper (Don’t know what I was thinking) we stayed that way for about 20 minutes, when I realised she had already been adopted. She is going to turn a dog guy into a very happy cat man! (A couple has adopted her) There was a 15-year-old cat called Maxine in the corner contentedly sleeping on an armchair, he had apparently been surrendered by his owner because his girlfriend wasn’t into cats) I know I sound judgie however, I couldn’t be with a guy who was prepared to give up his cat. Arrived home and got onto to phone calls. Still time in the day to order consumables (food handling gloves) and I’ve already started making calls about relocating my services to the new apartment. Because it’s only a month away and then I can get a new fur Baby!

Here are some photos from the Cat Lounge in Preston.

Cat LoungeHelen and catBored catCat Lounge 2

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Ah Friday, my last day of being 44. (Yes, you heard right!) my normal day of squashing everything together with the assistance of carers started earlier than normal as my regular chick is still away. I managed to get the lovely woman from one of my other agencies again this week. Having discussed all things yummy, pastry, naughty goodness last week she arrived with a custard ’thing’ in hand.

birthday
Allow me to explain, in the week of your birthday, all calories don’t count. Well, I don’t count them, I don’t care at all about them, but more sugar is consumed and preferably shared in this week over any other time. Long day! Very long day. Including an extra trip to my chiropractor as my neck has been particularly ordinary. I’ve had a bit of a migraine all week. Yeah, I get those ones that feel like something is inside your eye sockets trying to push your eyeballs out with a spoon but not enough to cripple you and you must take to your bed. Super, right? Mmmmmm, no! So, extra Chiro visit and extra visit, to my favourite cafe! Thanks to my friend who scooped me up and took me there and back. Here is a photo of what we ate……

MacaroonsCafe Latte

 

 

 

 

 

 

 

 

 

Emails, stuff, other stuff and more admin. My couch looks like I’m testing missiles and it looks like my birthday, will be spent doing something to ease the chaos. It’s now about 1.30am and officially a new day so off to bed! A rule leftover from my club days, it’s not officially the next day until you have had sleep. It doesn’t even matter if the sun has come up. Not the next day! Sweet dreams!

Sunday, time to get ready for a new week! Actually, got into my study and attempted to do some filing. At times over the last six months or so, I have started getting organised and ready to move. Rearranging things, sorting, putting things where they belong. Everything has a home and it’s an ongoing battle to clear the couch which is rather like a large in-tray.

I am already into Monday and really should haul myself off to bed. If I missed anything I’m sure to catch you up perhaps on Friday.
Have a great week!
Cheers,
H

Week

Hot off the Press – 23rd October 2017

Published October 23, 2017 by helentastic67

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Hot off the Press

Monday! Such an early start when some SOB (scratch that) person! Rang my doorbell! I again presume my landlady who should be aware I could drop down and ring her doorbell at 2am when I go to bed and I won’t attempt to rush down her front stairs or if I did I could injure myself. Ah, I guess if I injure myself it’s their fault? Just checking.

Insurance? Ka-Ching! Not worth it but I’m having a little internal chuckle. Game on! So, cannot wait to move!

Adventure

Busy day, adventure to neighbouring suburb. On the povo-trail as I call it. (Povo, short for poverty)
I skipped my Osteo appointment so I could make sure I would be at my best to go see a property close by. It’s cheaper and has 2 bedrooms and 2 bathrooms! Ok, one less bedroom than here. No street view, backyard or grass anywhere, and a smaller balcony than my current backyard. But a potential home for my new cat? Warm in Melbourne, have I ever mentioned 25 is my happy place for warm weather? I am such an old lady remind me what happened to spring?

Poverty trail

Tuesday! Starting to get better with having breakfast before my carer every other week when I have my massage at home, after we went for coffee.
And…..
Oops! Did it again!

Almond CrossiantLatte

 

 

 

 

 

 

 

Saw my GP, had lots on his list today. Turns out there is no test for diagnosing Thorasic Outlet Syndrome, it’s only a clinic diagnosis. So, I just need that in writing please so I can have NDIA to fund my Osteo, Mio/remedial needs Funding? Mmmmmmmm……. Caught a tram home, I got out part way to visit some shops (all walking distance.) Did some hunter/gathering and decided to walk home via a visit with Wilbur.

Sleeping

Oh, also had some time with this bit of fluff, Frankie whose dad told me he must really like me. Although this is Frankie ignoring me. His dad had gone inside to order and return with more doggy treats.

Frankie

Made it home in one piece with 5,300+ on my pedometer. So buggered didn’t help that it was rather warm today.

Wednesday, my standard Punchy/stubby day without the shabby part. My acupuncturist is away rubbing shoulders with political minds. Dropped in for a visit with Bella. No joy. Scootered home and dropped in for a visit with Matt, who has developed the 9 apartments down the street with his wife and friend. Shared some photos of cars. I don’t drive, but I like a nice car. Here are some photos of the car Matt had worked on earlier that day.

Austin1st Car

 

 

 

 

 

 

 

By the end of the day I networked and shared some photos of my uncle’s cars. He has restored.

2nd Car2nd Car 12nd Car 2

 

 

 

 

 

 

 

 

Otherwise, just some nice photos of cars for you if that’s your thing. (It should not be imagined that I have money, am related to people with money, or have friends with money.) Just an appreciation for nice cars I will never drive.

Ah, must mention before I move on, at the start of the day I couldn’t feel my left foot and most of my left leg and side.  By about 2pm I could as it had started to hurt, stock standard day really. By the end of the day, ok almost Midnight, I’ve realised it’s almost the end of the year in the bigger scheme of things and I’m wondering if it’s normal I’ve only seen one family member all year! Thank God for my mum, right? I haven’t seen my two sisters or my father. I have two cousins in Melbourne. One of which I wouldn’t mind seeing at more than funerals. Again, is this weird?

Weird family

Have I mentioned, my home is so hot in the warmer months that I have to put anything that melts into the fridge. Chocolate, Nutella and now, coconut oil! It’s completely liquidified. It’s time to move!
Does anybody believe in the concept of ‘Timing?” This week marks the passing of me applying for my 4th apartment this year. And knowing I can’t give notice to vacate until I find my new home,because, I can’t just live in any flat, unit, apartment, whatever. I don’t drive, so can’t live miles away from transport or my (well, let’s not mince words: Clifton Hill and my fav cafe and stomping ground) and I can’t do stairs or a shower over the bath and electric stovetop, etc. etc. Today I found out I got a place and now I can give notice! I can even start stalking my next fur-baby, by Christmas!

Melting chocolate
Excited………………

Wow! That didn’t take long…… Life can’t let you be happy for a single God damn minute can it? Believing the Universe will look after things all goes to hell.

Welcome to my Friday, where I have mentioned the Wheels fell off! My replacement carer for my Homecare/shopping my only Foodie Prep shift cancelled sick. The agency didn’t have a replacement, I outsourced myself to my newest agency and was very lucky to get someone for only 2 hours towards the end of the day.

So, I pulled up my big-girl pants and got on Hellonwheels got a jaunt to the other supermarket I live in-between two major supermarkets. Near (it will be my milk bar when I move. Won’t even need my scooter) got half of my shopping list and on the way home stopped at my old real estate. Gave notice! Thinking I should have waited a few more days as the new apartment won’t be available until the 18th and I need a few days to arrange carpets and cleaning to be done before my notice is up here. Family politics doing my head in. Again, seriously thinking to spend Christmas at home alone. With my new fur-baby. No, haven’t gone to meet any new cats, just know I’ll be getting one ASAP!
Finishing the week feeling flat and sad.

Going shopping

Saturday. No medicine! Must be dying not to fit in a coffee!

No Coffee

Sunday, skipped lunch to squeeze in my medicine. Then had lunch for dinner, happy Sunday. Half a comic was read this week. Comics didn’t rate high on the priority list this week. I’ll catch up in a few to be sure.

Sunday

Have my NDIS review this week! I will finally have the meeting with an actual Planner about my “Goals” pity I didn’t get this meeting a year ago. I don’t know how they imagine I can find my way to knowing what my Goals might be when money is so tight. I would be happy to start with if they paid for my shoes, my chiropractor and my Shrink. As well as continue to pay for my carers……..so I can start to breathe a little. Then, maybe I can consider some Goals.
Another big week to come.

Goals
Cheers,
H

Happy week

Hot off the Press – 16th October 2017

Published October 16, 2017 by helentastic67

Hot off the Press 1610

Hot off the Press

Sweet Mary Mother of God! Monday and I’ve been such a zombie! Still managed 2,000 steps, but absolutely knackered! I have a feeling you will not want to Google that word, so I just mean I felt wiped out all day. I was actually hungry for lunch before what I deem lunchtime. Made it home in one-piece by tram and walking. Then had my medicine, and a serious hit of sugar…..

Knackered

Turned out, upon sending a shout out to my Kinesiologist friend it was a full moon last Friday. Now, my crazy-lady hormones are not in sync with the full moon and I don’t want to go out and howl at the moon (meow?) but I do notice my energy is completely zapped at the full moon. And the 1AM curfew kinda goes out the window, as does the anti-Pre-Dinner kip. Managed to avoid the kip but just barely. Oh, heard back from the real estate about the property I found online last night……AND it’s already gone! Really hating the whole house hunting thing.

Full moon

Tuesday, a spanner in the works for my normal program, it’s the day I actually enjoyed last week’s foodie good mental health day post. Saw my Chiro a day early to make room for a different appointment on Wednesday. Got to get to the Community Health Centre for a massage so that was a bonus. Ate a delicious chicken salad there I had picked up earlier. I forgot to do some food styling so no photo. Went for a big walk to the bank and back and was lucky to be given a lift home. Arrived home to discover I left my phone in Michael’s car. Before questions arise, yes! I’m that person who feels like they have had an arm cut off without their phone. You can have the left one, it doesn’t work!

Lost phone

My phone was likely on silent! So, if I rang it he wasn’t likely to hear it and I otherwise didn’t have numbers stored anywhere else. It’s the problem with technology. Messages via social media and was happy to hear within a few hours my phone was safely with Michael. Hope to be reunited tomorrow amongst the chaos.

Thursday, still feeling like a complete zombie. After a few hours of trying to get in touch with the lovely Young John, he took me to where my phone was to collect it. It was a very efficient trip there and home again. I felt a little jet-lagged even. No speed limits broken but I got home and my cup of tea was still warm enough to drink as I had to leave my breakfast, to not put Young John’s schedule out. Checked my pedometer and Michael did nothing to boost my digits. Sadly. Got to rest a little before I went out again for my first appointment for the day.

Zombies 1

Back to the dreaded dentist! I had my first 2 fillings to be mended done, as they only needed some of the existing filling drilled away, cleaned up, dried off and refilled I bare-knuckled it. The teeth were right next to each other making it easier and we agreed if I felt any pain I would raise my left hand. No! I reminded her it would be my right hand. (Again!) I worked out this time what it is that makes me squirm. (Irony) it’s all the packing they wedge down against my tongue that makes me feel nauseous and then, there’s that exciting ‘drowning’ sensation. The packing is obviously meant for her not me.

Dentist

Anyway, left there on foot and walked (got some steps in) to the tram. Trammed it to my neighbourhood and as I had not had lunch yet (it was 3.30pm) and I had 30 minutes to spare so I had a coffee and a French donut. Not photo worthy but got me through. Made it to acupuncture, fell asleep waiting. Got stabbed, caught up on messages and after about 20 minutes I couldn’t wait any longer to get to the bathroom, took out my 8 needles and got a taxi home. The weather had gotten rather untrustworthy by then.

Acupunture needles

The zombie feeling kicked back in and I vowed to get to bed early. Sat on the couch, felt a bit of a migraine coming on but by the time I caught up on some admin the night progressed as usual.
Stop Press! I made it to bed last night by 1. 30am……..At least it was close to my self-imposed curfew! Now you should appreciate why I didn’t make the time earlier which is what Ms Jillian (my Shrink) wanted me to achieve. She is clearly dreaming. As much I have told her.

Dreaming

Spent the day making calls, locked in the date for my NDIS review. Can’t believe it’s taken 6 months. Now to get new quotes for things I am trying to get funded, new letters of support. Fingers crossed, if I get everything I need I might not need to move.

Now I’m dreaming.

Managed not to have a kip. Ok, helped that I had a visit from the famous Aunty Christine.  Who told me she has never seen my hair look so messy. I have a million pins up there right now. Let’s see if I can get a before and after photo tomorrow?
Lucky, unlucky, you be the judge.

Helen's hair before 1

And look, here is another few……
(I just want you to know this was without any notice or preparation, from my blind-side.)

 

Helen's hair before 2Helen's hair after

 

 

 

 

 

 

 

 

 

And then even posing, I still look hungover and stoned!

 

Helen sitting on couch

I consider this my default-look. (At times referred to as my ‘Resting Bitch Face)
So despite not drinking or smoking I guess it is what it is. A little insight into my look. Again, got to bed again last night by 1.30am. (I don’t like to think at all related to my default look!)

Helen Resting Bitch faceResting Bitch Face
 

 

 

 

 

 

 

Friday, my adventure with my lovely young carer Jennifer, got to K-Mart, Aldi, Coles, the bakery, the butchers and Lincraft.

I’ve started getting Christmas presents………I can’t help myself. Home and (never say I don’t know how to motivate, Jennifer never needs motivating). Together we made a big batch of minestrone and I also marinated some chicken in Portuguese marinade and while Jennifer my carer departed around 6.30…….. I finally had my custard scroll and my coffee around 7.30pm, dinner even later. Bottled the minestrone (yield;8 Passatta bottles) around midnight. Then got to finishing my admin and emails. Now 2am Saturday morning I’m going off-grid or I’m going to try.

Minestrone

Over the weekend, nice weather in Melbourne, over the week, I’ve had some t-shirt days and some wool days. More t-shirt days coming. A very lazy weekend making me a very happy girl. Monday is going to be a crazy day, even going to see a potential new home. Keeping in mind, I move house, I have some financial flexibility and can get my new fur-baby. Here’s hoping.

Cheers,
H

Happy Monday

Hot off the Press – 9th October 2017

Published October 9, 2017 by helentastic67

Hot off the Press 0910

Hot off the Press

It’s going to be a crazy week. I can always tell.
Monday, went to the DAC (Disability Advisory Committee) where I spruik myself as a community member/blogger/Girl about town!

DAC

Got to see Young John on the way there and back. He’s still sick but he’s sounding somewhat better.
Ended the day, with an hour-long call from me Ma (not me-maw) going over some admin to make having new carers in my home easier.

Tuesday plans went sideways immediately when my lovely massage was cancelled. So, I moved my GP appointment and the pastry order I made at my fav cafe was cancelled also. I had been hoping to post an extra post this week, to showcase what you should buy when going to a real patisserie. Of yummy goodness. It shall have to wait.

Cancelled appt

Have noticed a few neighbourhood cats have been coming up the front steps and loitering on the front lawn. I haven’t ever been able to go near them (one is old and blind, I’m told by a neighbour) but I never encouraged them when I had Jamima. But today I lost a pen! I know, doesn’t sound significant and it’s not expensive however, having had a cat I was in a habit of always putting something on top of whatever pen I was using. It’s a habit I’ve made sure not to break so when I have my next cat I don’t need to retrain myself of non-cat household habits. So, I’m wondering if Jamima can be blamed for my pen going missing? A friend told me I couldn’t blame her, but can’t I? Maybe these other cats and my pen being stolen from my bed is Jamima visiting and sending the clear message it’s time for a new fur-baby?

Visits

Wednesday, if you read my Foodie good mental health day post? You know, I was such a zombie I needed 2 lattes’. Medicine that is. Robert the owner even stopped by to chat briefly. He is gearing up for Spring Carnival and Christmas.

Wednesday

Saw my Chiro who has been banned from using her elbows in my glutes!  It has been known to have her hand slapped away. Today was one of those days. She exclaimed she wanted to help my lower back I pending disc bulge 2.0 issue. I suggested she help it and not try to cure it. Laughter all round. God help me! (In a non-religious way)

Chiro

Dropped in on Sinny where I buy cards and such and as he is closing down soon so I picked up some leather gloves for next winter. While negotiating, I queried how much they were? ($45) And how much they were now? ($32) I stated “Deal!” Then humorously after explaining I can only wear one of them (my left hand gets very cold but I don’t want to try to get a glove on it! So, I told him I only needed the right one? How much for just one? ($32) but he would throw in the other one, I told him I just needed to find someone who needed the left glove? I really will miss him. I once had my mosaic bordered mirrors for sale in his shop and many a gift I have purchased there.

Gloves

Had a great visit with Bella, she left her fur all over the legs of my pants.. Not complaining. Got to acupuncture late but was given the VIP room. So, made some calls. Guilty, not what you should do with 8 acupuncture needles in you.

Thursday! Got to have my massage that I didn’t get Tuesday. Making me a very happy girl. I was so organised I managed to get up and have breakfast before Caroline or even my carer arrived.  Caroline was very impressed. Quiet day at home and caught up on calls. Afternoon kip and even managed to get dressed without help. Try putting a bra on one-handed! Not fun. Bra

But dressed I was when my normal Friday carer arrived and we headed to ‘scray’ (short for Footscray) to an exhibition opening.

Thursday
My friend Larissa, who does much for advocacy in ABI and disability is a very talented artist. She does Handstands and does post ups. (She featured at the Arts Centre recently as mentioned in a previous Hot……..) and she does amazing Lino prints. Which I love.
Here are some photos.

HandstandHandstand 1
 

 

 

 

 

 

 

Don’t mind my hair, it’s at its worst by Thursday late and I do look like I’ve been dragged through s hedge backwards……certainly how it feels.
Here are some photos of some of the other pieces that caught my eye.

Artwork

 

 

 

 

 

 

 

 

 

Friday morning learnt a valuable lesson!
Remember that statement I would attempt to get to bed earlier? Achievable outcome? 1am! Yeah, turns out my standard 2am bedtime is more accurately achievable and I have even been coping. But, as I was out last night at the exhibition opening I got home around 9, ate dinner then did my usual catch-up-on admin/TV/emails, etc. and didn’t get to bed until 2.30! Disaster………..woke up like a zombie today!

Friday

Will binge some BBT (Big Bang Theory) to avoid a kip before going shopping. It is now (roughly) the end of Friday, officially Saturday. The dishwasher is now on a third time. It is only a single draw bench top dishwasher. Made some yummy things with my carer, have bagged and tagged for the freezer, to go to Sydney next week.

The weekend! Super lazy. Great weather for getting washing done. No Chinese laundry amazing. Still no single girl date night movie. Have still been binging and catching up on TV. Currently, watching season 2 of the Australian show Glitch and the other is called the Wrong Girl. Both thanks to my Toppy. (Topfield)

Wrong girl

Saturday. Night and I finally succeeded getting to bed by my self-imposed bedtime 1am, I mean I was still awake at 3am but still Winning!

Back during my club days, had I ever left a club that early my friends would have asked if I was ok? I know, still gotta write about my club days, otherwise referred to as my 20’s and the 90’s for everyone else. I will get there.

Clubbing

Some more comics moved around my home, not as many as last week but nothing to sneeze at.
Might get back into house hunting this week, if only it were that easy. It is only really when I stumble across a property that fits my requirements. Space versus value. Wish me luck.

Cheers,
H

New week

I.D. is not ABI

Published October 6, 2017 by helentastic67

ID not ABI

I.D. is not ABI

Apples and Oranges, it is often that people will assume all people with Brain Injuries are idiots or in some way Intellectually Disabled.

(I.D.) to be fair, it depends if that person was an idiot before they got their ABI or how long they were in a coma (if that is relevant) No idiots ‘here’ I promise!

One of the people in my ABI network had a rant the other day about an organisation I’ve only heard of recently.

There was no background for why I needed to hear the rant, but one of my fearless leaders in her need to rant explained said organisation was originally based around providing services for people or carers of people with I.D. In recent times, they have expanded their services to be more inclusive (don’t we ‘love’ that word?) to cater to other disabilities.

Ranting

All of this is relevant as my mother now months passed did some ‘training’ with said organisation where there were only 11 other ‘carers’. The training was for how to do the application for the funding for NDIS. The training was 2 days a week over 6 weeks and mum travels (unfunded) 3 ½ hours each way to do these things. She generally stays an extra day and by the 6th week she was here a whole week.

Training

By the last week, we had really had enough, to be fair, mum has a foot in both worlds. When she’s home, she doing “her stuff”, but I’m sure it plays on her mind what I need help with. When she’s here with me, she’s mindful of being home to work and make some money.

Like a Rockstar, my mum might arrive at midnight and she leaves so late a few days later, she cranks me when she gets home and it’s 3am. If she doesn’t ‘crank-me’ I worry. I’m generally still awake anyway.

Rockstar

When Mum’s down, she is always very tired, she has her head in a book or culling emails as until recently, she has had 3rd world internet access where she lives.

Internet

No, really when my younger sister and mum are rarely visiting, they have their heads in their laptops and they are like two teenagers (67 and 28-year-old teenagers) and while I’m on it, now my mum has the NBN now, so I’ve lost one excuse not to go home at Christmas.

Anyway, I digress.

The training my mum participated in was with eleven others. I didn’t understand why I wasn’t allowed to attend also. I do manage all my own “day to day”, all my own accounts and dealings. But it became more obvious when mum explained to the other eleven people were carers for ‘kids’ with ID. Varying ages, from Primary school age to my age. But severe ID with complicated and multiple issues, including ‘PIKA’ – type issues.

No eyebrows, eyelashes, no whiskers on the cat – poor cat. Bad! Bad! Bad! Complex issues. Did I mention I live by myself?

ID

While mum was down, she would constantly point out to me that I had to ‘act’ more responsibly in public, because the Disability sector and people with disabilities are being disrespected and I therefore had to carry myself in a way that was beyond reproach.

Training 1

If we were out shopping together, I might do a little grumpy ‘pout’ about something (I’m not beyond a little grumpy pout on occasion) but mum would growl at me and scold me.

“Remember what we talked about? Well, stop it!”

Yeah, that shit!

So, my point if you stayed with me is, when I found out the organisation in question was from an ID background it explains why mum was treating me less like someone who manages everything for myself.

Of course, I really now feel more for those with ID and how they get treated.

Ironically, when I’m out and about with my Carers, we chat all the way around the supermarket or wherever I have to go. Whatever topic we are discussing, we will put a ‘Pin-in-it’ when we have to stop and focus on a purchase or product or whatever else.

Shopping

And then we walk to the next shop or location and the previous discussion continues.

If I’m telling my Carer about a topic that is a bit less – public consumption. I abbreviate to make a point and at times I turn my head toward them to deliver the punch line, so only they hear it.

They often burst out laughing and I can’t help but smile and this is often what people see of me when I’m out and about.

This is one of the huge differences between family and my carers. My carers are only concentrating on the moment. I know they get paid to be there with me, but we are engaged and however their day started, going out with me cheers them up. Whatever stress or drama they had going on earlier, I manage (without intending to) to take their minds off it.

I think this is my gift to those people who allow themselves to be immersed in spending time with me. Of course, I attempted to explain the difference, I found in my mum dealing with me when she’s attending this training and scolding me.

“How dare you…….. on how I choose to help you!”

That hurt.

Truly, this is why I blog!

I hope you can tell my mum and I love each other, however we often do better apart…

Mum and me

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