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Chinese Whispers

Published March 20, 2020 by helentastic67

Chinese Whispers

I’ve had carers or support workers now for about thirteen years. Long enough to know the more people between me and my carers means anything they need to know, do, which entrance to use, etc. The more things can potentially go sideways.

When things go sideways that early (most of my carers in the morning around 9.30am) As I’ve been blogging how long now? I knew I mentioned in my early blogging days, I would complain about carers arriving early. This shit is still happening.

This is when I would point to my face and ask “Do I look like a morning person?”

Twenty-four hours a day is morning for me. I’m not a morning person, I’m not a go out at night person, I’m barely a person. I don’t mean I’m not human. I just am constantly grumpy and don’t cope.

My main agency lately, that provides my morning and rare afternoon carer doesn’t have the personal to cover all my shifts. They have already merged with another large agency I’ve dealt with years ago, but they still don’t have support workers in my area. So, two of my shifts each week, they outsource to another agency. One shift to another agency, the other shifts to another agency. Can you feel my frustration already?

Ok I will blah

I have passed on enough details.

No perfume, park on this side of the street, in this supermarket carpark. Enter the apartment complex here, not here. Come up in the lift to the second floor, etc, etc.

Sounds like a lot, but trust me, I glossed over bits or streamline.

The point is!!!

 

The Like

Published January 3, 2020 by helentastic67

The Like

Today, I thought I’d write about how I started blogging and the process I use to be a valuable contributing member in the WordPress community.

Now, I have been writing since I was a teenager, nothing worth saying, but writing extremely all the same, but I’ve been posting and blogging consistently since November 2015 and when I began, I trusted Noelle to sort out who to follow. I gather she picked the top 10 bloggers and over the years, a few of my favourites still post with regularity, some have fallen away and a few I unfollowed fairly quickly after I realised their blog was not what I was after.

I mean, I can only deal with so many carefully manicured red nailed fingers smashed into a woman’s well waxed snatch (vagina; not kidding) that I can cope with.

In case you are wondering, my limit for the above was one. One, and done!

Well, I think I also want at the bitching, whinging and moaning ‘he’ was using to complain about how his wife had cheated on him, while he was overseas fighting for his country and maybe, it’s because your wife is bi-polar and you were self-medicating  with a S & M lifestyle and when you weren’t there, she looked for another.

Not suggesting any of those things are wrong, just it’s your life and you can choose how you live it. But if it goes sideways, you deal with the consequences.

I have a rule of thumb, if a blog inspires me, I will follow. If I think I can help you in some way to better understand the shit you are dealing with, I will comment. Short and pitchy, in the comments. Because, they wrote the post, it’s not for me to write a blogpost in their comments section.

On a rare occasion, I will email someone for a more in-depth conversation, because I consider that’s the medium for more informative advice.

If someone new likes a blogpost I will go check out their blog, if it interests me, even if they haven’t chosen to follow my blog, I will follow theirs.

Also, I will give them a ‘Like’ to say I’ve visited. I have the rule I don’t follow everyone that chooses to follow me.

I just figure, if you need numbers, it happens organically and it takes time and after a while I check how many followers I have and I’m surprised.

My first blog post, I got followers. I mentioned it to Noelle, my administrator, I was so excited, I went to check out their blog and they had created a profile, but had no contact. Sadly, I’ve never seen them like another post since. But with that first follower, Noelle said the wisest of words ever “Keep writing”.

Now, five hundred posts later, two hundred and forty plus followers later, I’m still chipping away at the past, present end, I’ll get caught up in the end. What I hope for the future.

 

I.D. is not ABI

Published October 6, 2017 by helentastic67

ID not ABI

I.D. is not ABI

Apples and Oranges, it is often that people will assume all people with Brain Injuries are idiots or in some way Intellectually Disabled.

(I.D.) to be fair, it depends if that person was an idiot before they got their ABI or how long they were in a coma (if that is relevant) No idiots ‘here’ I promise!

One of the people in my ABI network had a rant the other day about an organisation I’ve only heard of recently.

There was no background for why I needed to hear the rant, but one of my fearless leaders in her need to rant explained said organisation was originally based around providing services for people or carers of people with I.D. In recent times, they have expanded their services to be more inclusive (don’t we ‘love’ that word?) to cater to other disabilities.

Ranting

All of this is relevant as my mother now months passed did some ‘training’ with said organisation where there were only 11 other ‘carers’. The training was for how to do the application for the funding for NDIS. The training was 2 days a week over 6 weeks and mum travels (unfunded) 3 ½ hours each way to do these things. She generally stays an extra day and by the 6th week she was here a whole week.

Training

By the last week, we had really had enough, to be fair, mum has a foot in both worlds. When she’s home, she doing “her stuff”, but I’m sure it plays on her mind what I need help with. When she’s here with me, she’s mindful of being home to work and make some money.

Like a Rockstar, my mum might arrive at midnight and she leaves so late a few days later, she cranks me when she gets home and it’s 3am. If she doesn’t ‘crank-me’ I worry. I’m generally still awake anyway.

Rockstar

When Mum’s down, she is always very tired, she has her head in a book or culling emails as until recently, she has had 3rd world internet access where she lives.

Internet

No, really when my younger sister and mum are rarely visiting, they have their heads in their laptops and they are like two teenagers (67 and 28-year-old teenagers) and while I’m on it, now my mum has the NBN now, so I’ve lost one excuse not to go home at Christmas.

Anyway, I digress.

The training my mum participated in was with eleven others. I didn’t understand why I wasn’t allowed to attend also. I do manage all my own “day to day”, all my own accounts and dealings. But it became more obvious when mum explained to the other eleven people were carers for ‘kids’ with ID. Varying ages, from Primary school age to my age. But severe ID with complicated and multiple issues, including ‘PIKA’ – type issues.

No eyebrows, eyelashes, no whiskers on the cat – poor cat. Bad! Bad! Bad! Complex issues. Did I mention I live by myself?

ID

While mum was down, she would constantly point out to me that I had to ‘act’ more responsibly in public, because the Disability sector and people with disabilities are being disrespected and I therefore had to carry myself in a way that was beyond reproach.

Training 1

If we were out shopping together, I might do a little grumpy ‘pout’ about something (I’m not beyond a little grumpy pout on occasion) but mum would growl at me and scold me.

“Remember what we talked about? Well, stop it!”

Yeah, that shit!

So, my point if you stayed with me is, when I found out the organisation in question was from an ID background it explains why mum was treating me less like someone who manages everything for myself.

Of course, I really now feel more for those with ID and how they get treated.

Ironically, when I’m out and about with my Carers, we chat all the way around the supermarket or wherever I have to go. Whatever topic we are discussing, we will put a ‘Pin-in-it’ when we have to stop and focus on a purchase or product or whatever else.

Shopping

And then we walk to the next shop or location and the previous discussion continues.

If I’m telling my Carer about a topic that is a bit less – public consumption. I abbreviate to make a point and at times I turn my head toward them to deliver the punch line, so only they hear it.

They often burst out laughing and I can’t help but smile and this is often what people see of me when I’m out and about.

This is one of the huge differences between family and my carers. My carers are only concentrating on the moment. I know they get paid to be there with me, but we are engaged and however their day started, going out with me cheers them up. Whatever stress or drama they had going on earlier, I manage (without intending to) to take their minds off it.

I think this is my gift to those people who allow themselves to be immersed in spending time with me. Of course, I attempted to explain the difference, I found in my mum dealing with me when she’s attending this training and scolding me.

“How dare you…….. on how I choose to help you!”

That hurt.

Truly, this is why I blog!

I hope you can tell my mum and I love each other, however we often do better apart…

Mum and me

Hot off the Press – 14th August 2017

Published August 14, 2017 by helentastic67

Hot off the Press kitten

So, today’s Hot! Off the press is bought to you by this picture…………

 

I saw these clocks a while ago at the Swedish warehouse and figured I’ve got a big empty wall in my lounge. This would be cheaper than framing a poster from my trip around the UK and Europe in ’94.

I know I don’t have eyes in the back of my head to see said clock on my lounge wall. But semantics.

When I was in the Swedish warehouse debating with my mum if I could afford the clock, I said; “What’s that? If I carry it I can get it?”

The wall is still bare.

Monday had a use day going to the DAC I’m part of. Ok, fine! Disability Advisory Committee, as usual I end up doing a little facilitating because I have something to share and I’m able to do it in a pointed and formatted way. The meeting was actually on housing in the region particularly the needs of people on the public housing list and that in the Next 10 years over 14,000 more people are expected to settle in the area to call it their home.

Meeting

I used the example of the house that was demolished across the street from me last week. Although it’s only properties where there are more than 30 apartments that will be required to cater to people with disabilities. This is how public housing is trying to avoid the ghetto mentality of some large developments. As there will be owner/occupiers as well as investors/renters that choose to reside there. The general public are outraged the carparks at shopping centres and markets (council owned) look to be redeveloped for these purposes.

Public housing

While, I don’t love it, I get it. I might also not like to live there, I might not have a choice. One day.

From there to my Osteopath appointment and the day went smoothly from there.

My friend Michael dropped me home after an adventure to J-Car! A place I refer to as another tech-friends Temple. I still managed to pick up a few short extension cords. 1 and 2 metres. Always handy to have.

Tech support

Arrived home and Michael attempted to do a little tech support for me. I have a 5 turn-table CD player that I have not been able to use for years as I no longer have an Amp and I wasn’t prepared to sacrifice any of my other tech creature comforts. My DVD provides my surround sound. For everything else.

It should be stating, I’ve deskilled for this kind of tech requirements over the years and as I can’t afford to pay anyone I reward with coffee and muffins. Everyone wins!

After 2 hours, I suggested if he couldn’t fix it I was ok to stand up for a smacking across the bottom. Michael suggested he should have asked more questions and it was more likely to warrant a smack across the face. Not what I’d prefer but a girl can try.

Solution? Helen needs some kind of Receiver. (So, in laments terms an Amp!)

Tuesday a very lazy day again! No complaints.

Wednesday, I was on the Provo trail for food vouchers. So back to the same neighbourhood as Monday but by taxi this time. Did a great deal of walking Wednesday, making up for Tuesday. I even caught the train for about five stops. Because I didn’t get a seat and didn’t want to have to ask for one I stood for about 20 minutes on the train which was like a slow Power-Fit workout. The day ended with 6,000+ steps on the pedometer.

Just an FYI, waving your smart phone in the air or walking around inside holding the phone does not get you steps. Holding the phone to your hip while getting those last 50 steps to get over the 6,000 mark. Gold!

I hope you are all aware I do things every day to help with my depression. I really appreciate the little things in life that put a smile on my face. Because life isn’t all about doom and gloom. Hence, the little witty stories that may seem out of place and make people wonder what Hellonwheels is all about.

Depression

Thursday, got to lay low and have a lazy day at home. Much needed after my marathon effort walking on Wednesday. Again, still not complaining!

Dropped into visit Bella/Killer and no joy! Last week I got to have a moment with her when a mum came in with young children who raced over to chase her away. Will try harder this week. Still no fur-child at Helen’s………….

Cat cafe

It seems this week I’ve had a day on day off all week long. By Friday late afternoon I had a migraine and couldn’t feel much of my left side.

I seemed to barely scrape through to be off-grid on Saturday. Again, ignored my single girl date night film evening to catch up on some TV, as I’m feeling the pressure since all the TV I watch starts again in September and I’m too far behind to allow myself to catch up on movies.

Watching TV

I otherwise had a little email contact with some of my blogger colleagues. It’s rare but really nice. Most days I send or receive messages from one of my blogger friends on Messenger. These small but hugely significant contact really makes my day. As other than my carer, I have no other human contact which seems insane.

Bloggers

Phillip my friend who visited some weeks back was surprised no one reaches out to me to ask how I’m going. I do my Outreach efforts mostly on a Wednesday while out and about and he is one person I reach out to. If he doesn’t receive a text from me by Friday I hear from him. Does anyone else share this experience?

Sunday night I watched the Australian 60 minutes and it featured a story about social media Influencers. An Aussie who takes a photo of herself in a bikini every day, because apparently, it’s beach wear we all live in. A few of my fellow bloggers and I currently suffer from the ‘we are not rich enough’ scenario, for want of a better term. Ladies? Bikini a day is taken. I wonder how many out there would pay not to see me in a bikini. I don’t think I’m touching a bikini ever again… Any takers? Just a thought. And I hope you all realise I mean this in a totally non-trolling kinda way…….perhaps we are not adapting to this new potential income stream that the youngsters are on?

60 minutes

Looks like I’m starting a new week with the migraine that has been lingering since Friday. Seems it is at least my constant companion.

Should be said; I managed to read four comics this last week! Feel like doing an impersonation of the Count off Sesame Street! I can totally justify collecting my three-monthly supply of comics on my trip to the city Tuesday. I receive a discount because I do this. File under cost saving hints!

Here’s for another week!

Happy Monday

Cheers,

H

 

 

Hot off the Press – 22nd May 2017

Published May 22, 2017 by helentastic67

Latest news

Another week and another Hot off the Press!

This one feeling a bit underwhelmed as not much to report. No comics moved from one big pile to the much smaller one.

A few posts written, edits all up to date. It’s something in the Plus column. No house-hunting and only just wrapping up billions right now.

Blogging

Attempted a social adventure this week, my friend Jane (Changed her name to protect the innocent) and I were clear across town to go to lunch and a film. Finally ventured to a crepe café (sweet and savoury) I’ve gone past this place twice a week for years and when we found it, the windows were covered with paper. So, we instead we went to Plan B and had a hurried lunch, still good at a bakery cafe. Stuffed capsicum and latte, no complaints. Across the street to the independent cinema the Westgarth and made it in time for the previews……….

Plan B 1

There were four of us in the cinema and after the previews, it just stopped. Jane and one from the other party went to report the film hadn’t started………and it’s all computerised these days. I can’t believe I’m suggesting this. It’s the days of some hairy, creepy single guy in the projector room never having had a date in his life.

The two things we attempted to do on Thursday, didn’t happen. Going to have a rematch to see Snatched tomorrow using the tickets reimbursed to us.

Single girl date night…..success! Watched a 2014 film called Hellion? No, yeah. It has Arron Paul in it. The actor often referred to from Breaking Bad as “Yo Bitch!”

Yo Bitch

Lastly, it’s only been the last few days I’ve been able to walk around my home without the walking stick. The Physiotherapist really did a good job and I can’t wait to give her feedback on Tuesday, when I see her next and cancel my next appointment since she hasn’t bothered to get back to me after being informed the damage she had caused.

Physio

And all of that with the migraine that just won’t go away. I really miss the old days when my migraine would cripple me so I couldn’t leave the house and I went everywhere with a bucket. (Sexy, right?) and was happy to stay in bed. But now my version of a migraine sees me up and about wandering around resembling a zombie and no-ones any the wiser, I can’t see at all out of my left eye. Or my left eye feels like it’s trying to escape its eye socket!

Migraine

And today we do it all again! Charge!

Good day

Where to Start

Published October 17, 2016 by helentastic67

latte

Where to start?

It’s been maybe a week since I last put pen to paper and I’ve been busy living ‘Life’ as crappy as ‘Life’ is these days!

Oh! Stop press! My Latte just arrived and the lovely wait staff (he’s new) misinterpreted my visits here as me doing ‘WORK!’

Working in Cafe

Every Wednesday, I visit my favourite Café. Ideally I’m all blogged-out with nothing to write about and I might switch off and read a comic.

Otherwise it is good to have “Lunch” at a reasonable time for the midday meal!

Because from here I commence what I refer to as my “Punchy/stabby” day. That translates to my weekly Chiropractic appointment, followed by a tram ride back up to my neighbourhood where I see an Acupuncturist.

chiropractoraccupuncture

 

 

 

 

 

 

 

 

 

I like meeting people here for meetings as they have gotten to know me here. I no longer have to explain my disability to the regulars and I now seem “Normal” to them.

But the new ‘young’ guy doesn’t know my past, my issues and just sees me here as a ‘Professional’. Having my meetings and writing/working on my blog!

 

 

 

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