Case Manager

All posts tagged Case Manager

Normal Friends

Published September 27, 2021 by helentastic67

Normal Friends

In my earlier years of having case management, I mentioned as one of my goals that I wanted some normal friends and contact with the outside world that didn’t constantly throw me in with people with brain injuries or depression/mental health, etc.

I mentioned it specifically like this as my previous C.M. had a tendency to favour the ‘Clubhouse’ their organization ran. I would joke that they literally did a drive-by, push the door open and shove you out! Exclaiming “Have fun!”

My monthly meetings with my C.M. went on and while trying to maintain my independence, find funding for the different things, refer me to O. T’s and all the ‘other’, more attainable goals finding ‘normal’ friends was always pushed to the side for more important and pressing things.

This new potential friend was occasionally mentioned to me and because I insisted on more details, I was assured she was witty and smart. I confess, I don’t have much time for slow, dim-witted people. 

What? My brain doesn’t have much time for. C’mon! Hurry the fuck up! I can’t help it. My brain is busy and Stephen Hawking I am not. But, over time, I was volunteered more and more info about this new potential friend. I had not been terribly keen as she was living across town. I don’t have the energy to get to the people I already know and love to go across town.

Are your spidey senses going off yet?

Mine have been from day one. I should point out, C.M. works like this. I self-referred. They come see you or vice versa, you sign contract, they get paid.

Everything I said I wanted and needed, which they said they could do, they fuck all did.

They did the easy things.  They only met with me as often as I insisted because I pestered them and because I’m fun and cool and amusing. Imagine, if someone isn’t cool or fun or can’t implement Pester Power?

That part of me is still in that childlike era, I do exceptionally well at Pester Power. So C.M. tried to shake me loose. “Hey? We haven’t done all the things yet!”

You realise, you sign that contract, they get paid and if you don’t keep on them, they can get away with never seeing you again.

So, the C.M. let slip one day, could I help the client with her rostering of carers? She couldn’t manage her roster, didn’t return calls, couldn’t schedule, etc. Could I help her with that?

So, she wanted me to do her job now?

People often don’t even realise I have a disability. Well, several really. So, they see me upright and walking and talking and smiling until one day I make a BOLD statement and people are shocked into a different idea of Helen’s normal.


Published May 3, 2021 by helentastic67


There are times I sit on the writing a post until I can do it justice. This is about both my absolute horror at disability service and about why I appreciate and need to be treated like a normal person. Or at least like I might be a working, contributing human being in society.

For want of a better name, I’m calling this person “Somebody”. Somebody was a Case Manager I once had. Somebody wasn’t a great Case Manager, but she/he was a reasonable person and I think she/he knew they could share with me their shitty work day, because I would emphasis with both them and the client.

Somebody had an appointment with another client the prior day. I imagine it was a lot to deal with as they were still processing. She/he had gone to see their client who lived in a group home.

They walked in expecting just their client and instead was greeted by the CEO of the company, the site manager and about four other people that prompted me to say ‘Got it’. Top heavy management, sure. Oh dear, this did not sound great, then Somebody paused, seriously debated if she/he should tell me. She/he shouldn’t have, but she/he did and I gave them the grown-up empathy and opportunity she/he needed and wouldn’t dare name or shame them or who they work for. That said, some stories have to be shared.

Somebody walked into this meeting unaware of why they were there. The day before Somebody’s client took a bite (I repeat, a BITE) out of a carer’s thigh. Ouch, sweet Jesus Nelly. I expressed my terror. Then my barrage of questions/statements.

“What was the carer doing?
Presumable the client didn’t like it?
Was the carer not reading the client correctly?
Was the client not being listened to or heard?
The carer must need more training?
What was the carers thigh doing anywhere near the clients mouth?
The staff need more training or better staff?”

Somebody looked at me surprised. I’m sure Somebody wished I had been there to quick fire my questions. I hope your advice, the result would only have been to move that staff member to ‘easier’ clients and to dumb them down with stronger meds. I refer to that as ‘bombing’ them out. Which is also why I don’t reach for pills anytime something hurts or I’m given a script.

Lastly, this shit is why I blog! If you got this far, please hit Like and share.


Published December 9, 2019 by helentastic67


 Once upon a time, I had a great Case-Manager when they were still call that (Now, in 2019 It’s called Support Co-ordinator). She and I were doing some forms to apply for funding. We struggled to think of a softer, less offensive word for incompetent. Oh, how we struggled.

Remember the day when studying at College, the options were ‘Competent’ or ‘Not yet Competent’? I presume, it was because by hell or highwater you would pass. They would get over the line, so they got the statistics they needed to continue getting funded.

Keeping in mind, I was not trying to be a brain surgeon, but to dress windows and make store displays so enticing you just had to buy them.

Nor did I know back then, I was not a man nor a gay man. Nor did I have a folio sufficient for me to do freelance. Nor did I own a car or a licence. Another think ‘Not yet competent’ does not cut it.

I digress, I have recently found the appropriate answer to my original question.

I shall remind you, “What is another word for Incompetent?”

I think that word is “ineffective” So, I’ve had a few ineffective Case-Managers, but that is for another day.


Bloody NDIS

Published May 6, 2019 by helentastic67

Bloody NDIS

Part of the issue with disability and the world of funding, before the NDIS and since. Before the NDIS I had a Case Manager (further more referred to as a CM) and since the ‘new’ language, is my CM is called a Service Co-ordinator.

What’s that? You wonder who came up with that and how long it took them.

I recently changed SC (yes, Service Co-ordinator) and my first sit down meeting with her mum was here and mum and I kept using the ‘old’ language of CM. Every time my new SC corrected us. She apologized, but said she would get us in the habit of using the correct term.

I told her that was fine, because I would eventually stab her to death with a fork.

Yes, she laughed.

As has everyone else I’ve suggested it. They know I jest. But brief second their faces drain of blood is totally worth it.



Published July 13, 2018 by helentastic67



I confess to say, I don’t always come across like a complete num-nut, which is the assumption that all people with brain injuries can’t think for themselves, can’t process or understand and definitely can’t communicate or participate in social or business or “whatever” family?

Num nut

A few weeks ago, I rang an organisation that deals only with people with brain injuries. I’ve had some dealings with them in the past, however as their primary business/funding, is people with drug or alcohol ABI’s, my dealings have been limited.


As they also do some ‘housing,’ I’ve recently put in an application. I then attempted to follow it up. I rang, left a message, more than a week ago and when I rang, I came across so professionally on the phone, they thought I was a Case Manager. Ironic, much!

Case Manager

I was a little surprised and startled, I took my time answering her first question, “was I the client?” To which I did answer ‘Yes’, but because she didn’t hear me. She hit me with a barrage of questions. So, I went silent and she thought I’d hung up on her. Now I know I have a brain injury, but she works at an ABI company and all the people she would deal with on the phone could be in some way affected by an ABI.

Too many questions

So, at times, please one question at a friggin time.


To be continued.

One Word

Published May 7, 2018 by helentastic67

One Word 2

One Word

You know those things in life, I’ve managed to excel at and what I consider winning at life skills and yesterday I shared a piece of my Helen’s wisdom with my Case Manager over our lunch meeting and he managed to trump me with just one word.

One Word 1

It’s with his permission I share this story with you.

When I moved to my home four years ago, I had plenty (too many) of door-knockers, you know the ones, bible bashers, God bothers and since watching a show a few years back called “The Heart of Dixie” I’ve based how I deal with these situations, based on this particularly great, but grumpy character. In short, the character is the Mayor, he’s a retired sportsman of African American background and he’s seen as a tall black drink of water, so it’s very funny when he greets everyone with a strong and grumpy ‘No’ and he just repeats it. Until whoever is asking something of him, goes away.

Hart of Dixie

So, on a Saturday I’ll open the door in my PJ’s and encounter a sweet young Asian girl or two well dressed, clean faced boys (sorry men) and before they get a word out I start with the “NO!”

Answer door in pj

If the brochure in the hand comes out or they open their mouths, I just repeat “NO, NO, NO, NO!” you get the idea. A good head shake never goes away. Then I step it up by closing the door. Sometimes I’m peeking around the door with “NO, NO, NO” and the head shakes to see if they are still there. Why are they still there? Then I slam the door.

No no no

I must say, I thought I was nailing it, I really did until I met with my Case Manager yesterday and somehow this topic came up, he told me what he does in a word, trumped me. He opens the door, says one word and then slams it!


Wondering what the word is?



OMG! They win again, I could lie, I guess, but I just thought it was way too good.

Today I re-countered this story to my carer while she thought about it, I suggested I didn’t know if all religions had the same opinion about Gay and Lesbians and told her I didn’t care enough to research it.


But, I think sometimes life with a disability can be pretty depressing and sometimes it’s these amusing moments that we should share to make it all worthwhile.

Feel free to use either of these methods to dissuade annoying people from pestering you at home.

You’re Welcome.

You're Welcome

NDIS Rocky Road 3

Published February 29, 2016 by helentastic67

Invisible disability 1

NDIS It’s going to be a rocky road!

I’m giving a shout out to the lovely Monroe who works for my local council in the Aged & Disability service team. And I’m doing so for two reasons.

  1. He has bothered to read my blog!
  2. He is interested in my opinion of the upcoming NDIS.

This is my answer.

Some years ago, I was at a meeting with other leaders and advocates in my sector who were being asked some serious questions about the NDIS. Grassroots stuff.

Questions like, how quickly could people be covered by the NDIS? When they moved to an area/or even came to this country. (Couldn’t fathom they hadn’t worked these ones out without our help, however)

Obviously, they were really concerned people would flock to the pilot regions to get on board early. In Victoria the pilot region has been the Barwon District which is Geelong.

That of course would put more pressure on other services already in place. Service providers, HACC services, public housing, affordable private rental, etc, etc. Service providers have also moved into those area’s to cash-in on the ‘new’ business.

A year and a half later I was at a conference and service providers in attendance were saying the opposite was happening. People were actually relocating out of the area because they had decided “it was too hard!” They did however get to take their “funding” with them.

So I guess, I have many opinions about it already and this is just a start.

I’m going to be bold and say it will succeed and everyone with a disability will be taken care of however I’ll say that it’s been a long time coming and it will take time to perfect.

The changes I’ve noticed over the years leading up to its launch and it’s the level of disability I have now compared to 8 years ago,include the moving around of service providers funding and financial assistance. I suggest that funding I was once able to call on for say, seeing a private dentist of my choice has gone to other areas. And when I get the NDIS I will be choosing to return to those private businesses, rather than going public and wondering about the quality of the services I’m receiving.

I think the government don’t yet know what it will cost to fully implement the NDIS. I think staff, carers, whoever will be the NDIS will end up looking very different to what they think it Is going to look like. It’s going to be, or should be fluid until they get it sorted.

Right now there are many service providers struggling to find and keep their places in the industry because everyone is waiting for the NDIS to “fix all the problems”. No one wants to spend their own money and they expect their clients already in the system to wait for this big bandaid.

I have a great analogy for what this currently looks like on the ground, but it will have to wait. I have been hearing about this miracle the NDIS for about 9 years and it’s been like a white light at the end of the tunnel. And on the downside, I’ve had pretty shitty Case Management who dragged their feet on applying for a Package of Funding from DHS because they said it would never be approved for payment. Therefore, the felt the success rate did not warrant their effort.

You know the answers you get for the questions you never ask? No! So you might as well ask. Is what I say!

Think of all the things you need and just ASK for it! I don’t think they will be advertising all the things that might be covered by the NDIS, because they will be trying to save money.  So I will suggest Networking & sharing information is going to be vital. Listen to what other users/consumers are applying for, you might be surprised. If it’s relevant for you apply for it also. And then tell your friends.

Lastly, I think there will be more control for us to choose who provides our services & sometimes competition is a good thing. It means those providers with bad history of poor case management will not survive.

To be continued for sure…

Piss or Blood

Published January 29, 2016 by helentastic67

Piss or blood 2

Piss or Blood

I recently, (again!) had another handover from one Case Manager to another.

She was a good Case Manager, but she had been dragging her feet a little on my “goals” and it became obvious when there was a ‘new’ Case Manger and that she had been looking for work closer to home because she had a young daughter in Day care and she traveled an hour or so daily to get into Melbourne…

I’m quite over the process of getting a new Case Manager. I like to befriend them so they better understand who I am and what I’m about, so they can appreciate how much I do for myself and the importance of what I do actually ask of them. I like to treat them like my friends because I do want the best from them.

Anyway, I digress – On the last meeting the outgoing Case Manager was busy checking her phone.

She explained, she was concerned for a call from their Day care provider.

And she used the term ‘Piss or Blood!’

I look at my new Case Manager, a young fellow whom I like already. He refers to me as his favourite client, so he gets a K.P.I. ‘tick’ already.

This “Piss or Blood” comment needed explaining, so it goes like this:

If she gets a call and her daughter has had an “accident” that requires a change of underwear in the scheme of things it’s not a big thing. If there’s blood, that’s more worrying. But this is not yet the point.

So, there was once a time I would speak to my mum every day.

I don’t have family close by and I live alone. When I didn’t live alone, my housemates did my head ‘in’ and despite the extra expense of living alone, the upside to living alone are many…. To be continued.

I now only call home if I want or need something or something has gone particularly badly and I need some reassurance of how to fix it, because by that stage maybe simple decisions are beyond me.

But that doesn’t mean I get a timely response. If I call, text, email, please don’t ignore me. I shouldn’t need to tell you why for you to prioritize how swiftly to respond. Just do.

If I’m having a really shitty day with my mental health, I may not call you. I may send a cheeky emoji to a person not remotely related to me because they will respond and I won’t feel like I’m going through the “Blood” alone and no one cares.

It’s a really ordinary feeling to feel you are alone in the world.

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