I always love a reason to get out on hellonwheels, my name for my mobility scooter. It’s also a great way for me to connect with people and change people’s idea of what disability looks like.
The adventure on this particular day, was to get to a dental appointment. I wanted to park my scooter inside but not in the waiting area, in anyone’s way, there is a small vestibule with two automated doors to navigate. So, I got a spot I thought was out of the way. Then I stepped back to assess and then saw this, can you see what’s wrong with this picture?
I decided it was still the best place for it. I stopped to mention it to the Covid Nazi just inside the entrance. She was making sure to check everyone in, take temperatures and quiz everyone on the likelihood they could have Covid. Don’t take my Nazi comment the wrong way, it is what it is and I still have not returned from overseas since 1994. Stop asking! It’s really starting to grate.
Anyway, I digress, I mentioned my parking location and suggested if firemen were to attend, they could pick up my scooter to move it out of their way. She said she thought it would be fine but I had to correct myself. “If they are *Hot* Firemen. Come and get me and have them move me on the scooter out of the way” Yes! It’s inappropriate but who smiled while reading that? She smiled, I got to tell her about my blog and I like to think it made her day.
I really want to thank you for calling me today to tell me all the things I should be doing. You haven’t responded to any of my friendly messages for months now.
I had some good news to share, but you didn’t ask, nor could I get a word in edgewise. I’ve just had a 4-day weekend on the 4th lockdown in Melbourne, some appointments cancelled I’d been trying to get done since they didn’t happen in 2020.
Fuck you COVID! No, I really mean it this time!
It is imagined that people with disabilities have not been financially impacted, since we don’t work. We haven’t lost work and why should we matter.
Well, I shall tell you how. Allow me.
These days I do take more ‘healthy pills’ than medications so I can live to the at least 65. I can afford to live till then.
Shut up! I will explain that expiry date another day.
COVID has meant everyone and their cat and dog has been out buying ‘healthy pills’ to avoid getting or dying from COVID. It’s a fair call. I can’t blame you all. However, many of my healthy pills I buy in bulk so I can get bulk discounts and pay less over time and because my suppliers have had limited stock, they have not allowed me to do this. I’m not talking about truckloads, just 2 x 200 tablets of magnesium. Just an example.
But I don’t need someone who is not on the ‘coal face’ of living on the edge financially and choosing what I’m meant to do without to ‘help’ me decide I can give up my weekly chiropractor visits.
You all realize I have lost many of my pain management appointments due to lockdown, right. And you want me to deal with a rib out as well. The rib still hurts despite being put back in last Friday. It’s Thursday night as I write this.
So, it’s really shitty when people who are meant to love me are awfully opinionated about what I can do when they are not me.
You know that moment when if there was a statistic that said if there was one person in every family of four to have a disability. The only person in your family who could deal with said disability well, it’s you. Yeah, I knew this some years ago.
Now I needed to ask for a loan, quite happy to pay it back. But without even knowing what it was for, you decide to give me a lecture about managing dollars better. Stop helping!
You are upset, because I didn’t ask how you are. It was hard to get a word in edgewise, and I was already having your opinions and the opinions of other people who are not me to get a word in edgewise.
So, now my days is not done, I don’t have the energy to ‘deal’ with anything else today.
I’m feeling really shitty. My head hurts, my left eye is pounding (the indication of my migraine these days). So, I’m going to bed for a cry and a kip.
Now I need to feel like eating sometimes so I can sleep tonight and get up and do all the things again tomorrow.
Meanwhile, the rent gets paid. The lights go on. I’m not starving and I can put one foot in front of another knowing I don’t ask for help often but when I do, I really need it.
Then, maybe I’ll be able to smile a little. Or I can try and if that’s how you are going to be, please don’t call.
Apologies my foodie post was delayed this week. My apologies. I had a really shitty migraine. So, have not been out much this week. Happily, had a three-day weekend! Always makes me happy! Had the brain injury self-advocacy group on Tuesday, so started the day with a migraine ended the day without dinner, some hard drugs (Tremadol) and finally nailed part of my New Year’s resolution, got to bed before 1am!
At the brain injury group there were new members present. Another newish member described me as ‘Caustic’ I asked what she meant? Not offended I offered ‘Bitchy’, was acceptable, or ‘blunt’ I just like to be effective. I provided an example. She had introduced me as ‘really friendly and warm but caustic’ and she is probably right. I also bring the funny. Now, let me touch on the Corona Virus. The media is not helping and people are stockpiling flour, long life milk, medications and most importantly Toilet paper (I will now refer to as T.P.)
People need to calm down! Because I need my T.P. because it turns out to be a terrible time to be doing a liver cleanse. Taking my St Mary’s Thistle for my fatty liver, I can’t even give up my closet drinking as I don’t. Add to this the HRT patches I started on Saturday to help calm some of my peri menopausal symptoms gave me an early shark week and a shittier migraine than normal. Couldn’t even get through my chiropractic adjustment without being sick. The rest of my normal Wednesday stuff was cancelled. Home to bed!
Started to improve Thursday and still with all my usual appointments and crazy, hellonwheels tune-up, visit from the vampire (blood test!) and a trip to my podiatrist. And now I’m smashing out this post Thursday evening, the night before it goes live. While I’ve skipped a few meals this week due to feeling seedy from my migraine. I’ve a musical treat. I’ve just gotta get through Friday and Friday night I’m going to see a band. I actually loved this band in the 80’s when I was a teenager and the horrible week, I let Jamima cross the rainbow bridge back in 2016, in my neighbourhood. This time I’m going to see him at the Forum in the city. Here is a clip you can check out…….
This is way too short! Here’s another sample.
And lastly, two stories of the extremes of the attitudes and fall out of the corona virus. A support worker told me both of these from one of her other clients. This about a month ago.
1) While at the butchers getting her clients cat its meat. Yes, fussy cats down here. An older gentleman complained he couldn’t get his muscles because of this Chinese Thing. This was about a month ago. But did you gasp? So wrong! So, so wrong!
2) This other client went to her doctor and while in the waiting room chatted to a Chinese woman sitting next to her about art. She loves art apparently. When her name was called the Chinese lady thanked her. It had been the first conversation anyone had had with her for three weeks. I guess, I’m suggesting we need to do better? Wash your hands. If you have any Symptoms stay home and don’t buy all the T.P. Helen’s doing a liver cleanse! Your welcome!