I confess to say, on some days I make my carers laugh before they even get in the front door. I generally sleep until my carer rings the doorbell and wakes me. I know, what a princess, I usually wake and go back to sleep from only hours after I go to bed, so it’s weird sleep and any coma-like sleep I get from 7am until my carer arrives and rings the doorbell is maybe going to wake me.
I stumble out of bed towards the front door, usually calling out “Hang on”. Beside the front door are panels of glass, so I sometimes see them raise their arm to press the doorbell again. I let out a low growl. I’m sure my neighbours must think these women who come and go laughing must think I am mad.
At other times like this morning, Aunty Christine (one of my carers I’ve had for the last four years) was grumpy. She has been overworked and recent leave, she has taken off work, to be a full-time carer at home for family and stressing about all of that.
I’ve been stressed about life, the Universe and everything also, so while sitting on the edge of the bath while waiting to get dried, I had time to have a little scratch.
I scratch just about everywhere I could reach with my right hand. It’s kinda what I do when anxious, it’s also been hot, so some might be heat rash.
Out comes the Tea Tree Oil and the moisturiser. She prepares to do the oil on my back. The other carers have been neglectful.
Aunty Christine has a little swear about that. (We have set up a standard where she only does this with me and no other clients. I’m very much OK with it) We move to the lounge and she picks up my AFO. She picks it up by a part that was added on after it was made. It was meant to solve a problem that wouldn’t have existed, if they had made what they were meant to make the first time, instead of a ‘Piss-Arse’ effort that caused me more problems than solved.
Christine has a swear about the AFO’s also. I tell her it’s getting completely replaced Thursday, one whole day away. She threatens to bring her glue gun to fix it.
She notices my toe nails are a bit long, we had already discussed my scratching, my heat rash on my weak arm, back and side. Basically, anywhere I could reach with my right hand. Again, my nails are being attended to on Thursday. Nothing too expensive or extravagant, just maintenance I can’t do and I’m not allowed to have my carers to do for me.
Those humans I choose to interact with and the teasing make life all worth while. Make sure teasing is teasing though and don’t take it too far. That’s when it becomes bullying. Very fine line!
And now, as time has passed I’m now aware the scratching is partly to do with me sliding into the Pause…….(menopause)
It just gets better and better……..