hidden disability

All posts tagged hidden disability

Going Out, Then Down

Published April 5, 2019 by helentastic67

Going Out Then Down

Going Out, Then Down

There is so much people wouldn’t realise about my disability, because it’s hidden and because it seems I’m always upright and mobile when they see me.

Hidden Disability

On a rare occasion I might even get out in the evening for some extra-curricular entertainment. No wait! Not like that! (I wish)

Rare Occasion

I went to a theatre production called Kong. It really was a “One-off” adventure, so rare that they are. That night now some years ago, I had also been out and about during the day and had tried to plan for ‘saving’ some energy for the unexpected later that night. ‘Saving energy’ for later – what a foreign concept. The venue had a huge entrance of stairs.

Thearte Entrance

We couldn’t get a park close by, so myself and another, plus our lovely friend who had hosted/escorted us for the adventure, walked us to and from the venue.

Walking to theatre

We had entered the venue through a very upmarket/snobby Café next to the venue and in a lift at the back. (would love to dine there one day).

Snobby Cafe

Afterwards we ended up at a kebab place on Brunswick Street, our host stating many a night had ended there having kebabs. I ate something that came with a fork, just saying. I always go with at least the messiest option.

Kebab Shop

Once more, up the four steps into the unit I lived in at the time and success. Great night out. Good entertainment, good company, good walk in the city even.

Good Company

Door to door service, almost.

Tick, Tick, Tick, Tick

Lastly, plan cuppa T and off to bed. No? Too easy. Ba-boom

Standing in the kitchen, put the kettle on and I feel myself losing balance. If all I have to do is put my left foot back, just a little step to support me.

Lose Balance


Don’t know if it’s the message is to slow the brain. It’s just a completely foreign concept. Make a half-arsed effort to grab onto something, but not enough to not want to cause more damage. I’m going down.

Fall in kitchen 1


That’s what people don’t see, when ever I have a fall and it’s not that often thankfully, once a year. I lie there and think to myself “This is NOT the time I wish I wore my Mepacs pendant.” Because I refuse and I do what I have to, to roll over and wriggle up.

Roll over

That’s not pretty, but I haven’t been found the next morning on the floor by any of my carers yet.

So Winning.


Hidden Disability

Published December 21, 2015 by helentastic67

Invisible disability 2

Hidden Disability

Seems to be the new ‘go to’ word/term for disability.

I had a technician come to my home last week to fix “something” and I was trying to explain to him I wasn’t a lazy cow for not being able to do my own tech support or not moving the 5 small things so he could more conveniently get to the issue he was there to attend to.

He seemed confused so I bluntly told him “you can’t tell, but I have a disability.” I basically gave him the cliff notes (short version) and told him what I’d lost. But around my home there are not many obvious signs that a person with a disability lives there and I compensate so well if you were to watch me you also wouldn’t realize how much I’ve lost…

But, so help me God! (In a non-religious way) every time I am out and about or in a taxi I will be asked: ‘What have you done to your arm?’

And it’s this big thing I have to explain. There’s advice. Advice from taxi drivers! Garlic and lemon pulp. Cure all!

Except, I’d be single forever even keeping the vampires away. Bah Humbug!

And you realize my disability is not hidden when people like to assume and judge me and imagine I did something to deserve this new existence.

I will revisit this topic because these days people see me out and about and they say to me “You look well put together!” And ignoring how old-lady that term is for now. When I’m out and about and have a smile on my face, people would imagine I’m always like that.

They don’t realize, I need a carer to help me in the morning so I can get out of the house…

They don’t realize every day I spend out of the house, out getting to appointments and doing “things” I spend the next day in bed…

They don’t realize I get out of bed and it takes about an hour for all the pins and needles to go from my good hand!

People just see my arm in the cuff and collar. They don’t realize there are secondary issues.

And the secondary issues on the secondary issues…

More of that later…

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