independance

All posts tagged independance

Normal Friends

Published September 27, 2021 by helentastic67

Normal Friends

In my earlier years of having case management, I mentioned as one of my goals that I wanted some normal friends and contact with the outside world that didn’t constantly throw me in with people with brain injuries or depression/mental health, etc.

I mentioned it specifically like this as my previous C.M. had a tendency to favour the ‘Clubhouse’ their organization ran. I would joke that they literally did a drive-by, push the door open and shove you out! Exclaiming “Have fun!”

My monthly meetings with my C.M. went on and while trying to maintain my independence, find funding for the different things, refer me to O. T’s and all the ‘other’, more attainable goals finding ‘normal’ friends was always pushed to the side for more important and pressing things.

This new potential friend was occasionally mentioned to me and because I insisted on more details, I was assured she was witty and smart. I confess, I don’t have much time for slow, dim-witted people. 

What? My brain doesn’t have much time for. C’mon! Hurry the fuck up! I can’t help it. My brain is busy and Stephen Hawking I am not. But, over time, I was volunteered more and more info about this new potential friend. I had not been terribly keen as she was living across town. I don’t have the energy to get to the people I already know and love to go across town.

Are your spidey senses going off yet?

Mine have been from day one. I should point out, C.M. works like this. I self-referred. They come see you or vice versa, you sign contract, they get paid.

Everything I said I wanted and needed, which they said they could do, they fuck all did.

They did the easy things.  They only met with me as often as I insisted because I pestered them and because I’m fun and cool and amusing. Imagine, if someone isn’t cool or fun or can’t implement Pester Power?

That part of me is still in that childlike era, I do exceptionally well at Pester Power. So C.M. tried to shake me loose. “Hey? We haven’t done all the things yet!”

You realise, you sign that contract, they get paid and if you don’t keep on them, they can get away with never seeing you again.

So, the C.M. let slip one day, could I help the client with her rostering of carers? She couldn’t manage her roster, didn’t return calls, couldn’t schedule, etc. Could I help her with that?

So, she wanted me to do her job now?

People often don’t even realise I have a disability. Well, several really. So, they see me upright and walking and talking and smiling until one day I make a BOLD statement and people are shocked into a different idea of Helen’s normal.

Advocacy

Published September 12, 2016 by helentastic67

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Advocacy

People don’t realise how much self-advocacy is involved in having a disability and remaining independent.

People would think I have everything in the whole damn world thrown at me because I have a disability.

However, in reality, I’m forever pushing about 5 different issues and at any given time.

You probably wouldn’t believe me but on my limited income I live in private rental. Yes this means I qualify for Rent Assistance, but it hasn’t increased since 2007 when I first qualified for my pension and while rent has continued to increase, Rent Assistance has never increased in line with the market.

The reality? THREE times I’ve moved since 2007, I’ve had to move further from my supports and comfort zone, further from the city. Let’s not forget, I have to compromise, quality of my home and size.

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(I went to an open for inspection on Saturday as I’m having to contemplate moving) and the kitchen was crappy 70’s! Not even nice or retro 70’s! We’re talking three kinds of BROWN TILE where there was already BROWN CUPBOARDS! In a really small space, I can’t do it!

I grew up in a brown 70’s house (my dad still lives there) and a BROWN SCHOOL UNIFORM. I’ve suffered enough!

NUMBER 2! My second issue I’m dealing with right now , I’m dealing with the Government and my 2nd appeal so my pension is not reduced every fortnight for the rest of my natural born life!

I’m not being melodramatic, they really want to reduce my allowance at a small amount per fortnight for the next 24 years!

Keep in mind, they harass me every 3 months threatening to take a significantly larger portion that would see me not pay my rent or eat!

Also keep in mind, I’ve previously stated eat Salami to shorten my life and if this keeps up I won’t be able to afford Salami either.

Perhaps, if I’m feeling a Part 2 to this, so stay tuned….. NEXT!!!!

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