Life one Handed

All posts tagged Life one Handed

Comedy

Published December 6, 2019 by helentastic67

Comedy

You have all heard comedy is the best medicine. Well, it’s probably not going to cure cancer or get my Pap Smear done. But however, I’m just suggesting laughing is better than crying.

Patch Adams

I will record comedy on late night TV on my Toppy (Topfield) and these days as my kitchen, lounge and dining area is all in one. I will put on some comedy while I cook, for company. A young Aussie comedian is talking about how hard it is to get a fitted sheet on a bed. So,

 

In the last place I lived I had three bedrooms; I know rich right! No, it was a dump, it was hot and the landlord was a creep. But it allowed me to have a study and a spare room with a single bed for when friends or family stayed over.

The sheet changing day, I would have my morning carer take the sheets off, so I could get them in the machine, then on the line. I would usually get out clean sheets and put them on the bed so my next carer could just get stuck in. Mostly. This particular day I had gotten distracted, didn’t get them out. My next carer arrived, no sheets. She asked which colour I wanted and I suggested she choose. Honestly, I am in my ‘Oh white sheets place, I get it now’ faze and the other set I have is say a French Chocolate-grey. (Yes! I’m that chick)

Now, also whatever sheet is in the washing machine, the other goes on the bed. Two weeks on, two weeks off. I wear pyjamas, so it’s not an eeeww moment. I told her to pick.

She called to me from the bedroom to the lounge several times and not waiting to be distracted, I suggested she choose.

I thought I was empowering her to be independent. I’m like so, made to be a mum, right? This carer is still my regular and I really love her. She is often mistaken as my daughter, but that’s another story.

Eventually, she came to me with a barrage of questions and I put what I was doing aside and went with her to the bedroom. I got to the door and stopped.

“Are you sure these are for this bed?” she asked me.

The sheets were light purple, they went on the single bed. Oh, sweet Jesus! I just laughed.

I told her I was laughing with her, not at her and she informed me how hard it had been to get it on the bed.

But she didn’t find it as funny as I had. I suggested I wouldn’t do it to her again, however I did ask if she struggled again, could she come get me so I could watch.

I call this carer my Girl Friday and these days she is also my Girl Wednesday and once a month, my Girl Tuesday. We laugh a lot as we had built up the rapport to do that which is nice.

More about my Girl Friday another day.

Today’s Lunch – 4th December 2019

Published December 4, 2019 by helentastic67

Today’s Lunch

Good Mental Health Day

Anyone else thinking with the arrival of December that Christmas is too soon? I’m still planning to stay-cation. I might get a break, sufficient air-con and I may even watch a few films, I’ve been working on my never-ending list of TV shows. I can’t cull anything. I must watch everything. Since I can’t read books anymore.

Currently, I’m watching season 2 of Pose and crying. And all the appropriate uses of the word ‘Bitch’. Really, it’s eye-opening, sweet, beautiful and sad. But reality for gay men in the early 90’s. Oh, and legs that go on for days. Those bitches! Really!

Yesterday I went to the city to attend a launch of a project I participated with earlier this year. So, today I bring you the link to the website from the project Opening Doors. Watch my video if you dare.

https://openingdoors.net.au/our-lived-experience/

I’ve only seen a little of it so far but, you saw the photo of me in my study a few weeks back. When I walked into the gallery space and saw it, I thought I looked really pissed off, I was told others thought I looked strong. The space yesterday for the launch allowed some interaction. Here’s what I added to the picture of me.

 

 

 

 

 

 

 

 

 

 

Meanwhile, where were we? Oh yes. Our standard foodie post. Today’s lunch is brain grain salad and medicine to help my migraine!

Playing the Disability Card

Published December 2, 2019 by helentastic67

Playing the Disability Card

There are times when I have to play my disability card to get results. Sometimes I throw it out there and I have to hope for the best, because it can very quickly be taken out of my hands (in this case, just the once) as I can’t control everything once it gets away from me.

You know that time “You attract more bees with honey?” and I’m sure there’s something about putting innocent bystanders in a situation where they witness something happen and you have to hope someone comes to your defense.

Like today for example.

Buses have replaced trams on my tram route while roadworks are being completed. Today, while leaving my acupuncturist, I saw three buses go past and seeing none anytime soon. I walked about three tram stops. I’ve walked further, in fact the whole way home, but I had an evening adventure planned that I had to save some of my spoons for.

https://en.wikipedia.org/wiki/Spoon_theory

So, I saw a bus (tram) pull up to a stop and I stepped it up a little to make it to the bus. If I couldn’t get to the front door of the bus near the driver, maybe I’d make it to the back door. I got to the door half way down the bus and I saw the teenage school boys (I presume they said nothing to the driver to ask he to wait for me, Yes? They had seen me coming) the door started to close, so I put my walking stick in the door. A woman stepped forward to stop the doors closing and yet the bus started to move.

Oh dear!

I tugged at my walking stick; it really was stuck. I could see some people on the bus standing in the isle call and look towards the driver. The bus stopped, thankfully and I put my right foot up on the floor of the bus using my right hand pulled myself up. My walking stick now dangling from my wrist strap.

A woman in a seat near the door moved to get up and I thanked her and told her I was only going two stops. The bus driver appeared at the door behind me asking what was stuck in the door?

 

I explained, I had wanted to catch the bus and my walking stick had been stuck in the door. He didn’t say anything, he just looked ‘put-out’. He got back into his seat and behind me someone else offered me a seat. Word passed down I wasn’t going far anyway.

Once off the bus, I saw a man in high-vis, when I asked him about the roadworks back in Clifton Hill and if it meant they would be completing the accessible tram stop on this route, he had no idea and had simply gone where he had been told and worse still, did not normally do this area, so really had no idea whatsoever. He just directed every question to the PTV (Public Transport Victoria) website and phone number.

Guess I’ve got another thing to add to my list tomorrow. But it just goes to show, people did come to my aid when I needed it and I don’t ever know who they are.

Now, while you read this post, who had a vision/image of an old lady like Mrs Magoo with the grey hair and grey dress being dragged beside a bus by her walking stick?

Yeah! Me too! That could have gone so much worse as the cord around my wrist often gets twisted on pretty tightly, making it rather challenging to get it off in a hurry.

 

Failing

Published November 29, 2019 by helentastic67

Failing

I am part of a Brain Injury group (if you have followed special links and such you would be able to learn the things these groups have achieved) I feel a little like everything I’m trying to achieve is failing or falling short, because I’m being undermined or sabotaged by  people who do not understand the meaning or importance of returning a call, a message or email (is it just me?), is it that other people with Brain Injuries or one other people are not as efficient as I am?

Think I’ve worked this one out.

BUT, WHAT THE FUCK! (Feeling frustrated) happened to common decency that people are all so busy they can’t respond in a timely manner?

I’m fucking busy, they are winning at LIFE ONE HANDED! I’m nearly ready to give up on quality control and giving a fuck, aren’t I?

I just don’t want people to slip through the cracks and then have to be patient while they complain how bad life is.

When do I get to care less? Unfortunately, that will mean I will feel like I’m failing.

Today’s Lunch – 27th November 2019

Published November 27, 2019 by helentastic67

Today’s Lunch

Good Mental Health Day

Where were we? I had an appointment today with a follow-up at the sleep clinic. Yes! Yes! It’s still going on and I booked an appointment in my 2020 diary today for next September. Looks like I’m carrying around two diaries until January already! Too soon! Just too soon!


Last Thursday night I went to see the world release of film called Spirits in the forest. It was amazing!

https://www.orlandoweekly.com/Blogs/archives/2019/11/20/depeche-modes-spirits-in-the-forest-documents-their-world-tour-at-maitlands-enzian

Take the time to watch it. My favourite quote is when a fan describes seeing Depeche Mode in concert as the closest thing to going to church. My other favourite quote includes a crown and a cape and retiring g the someone. I was not the only person to laugh! They are definitely my favourite band despite the fact they have not toured in Australia since 1994, when I went to the after party and met the band! You heard me!

Here is a quick shout out to my friend William the owner of this vlog! I know not much about V8 Super car, but then I don’t need to? I know someone who does………..

www.williamsperfectride.com

And just before summer hits in Melbourne, these are my first Christmas Lillie’s out on my balcony.

 

 

 

 

 

 

 

 

 

 

I’m actually currently planning my Christmas at home in Melbourne rather than going to the country. To be continued on that front…….

But it really feels a calmer week this week so today’s lunch is a nice change, so today’s lunch is the Moroccan chicken salad with medicine!

Lesson

Published November 22, 2019 by helentastic67

Lesson

Well, today I’ve got a lesson in acronyms, I think it’s been a while, so I’ve got two new ones.

  1. CDC – Feel free to comment as to what you think it is or could be. Feel free to do this even thought you will shortly know what it actually stands for. “Client Direct Care.” Apparently, it’s from Aged Care mentality services. I was given this as a tool to use with one of my carers, who really doesn’t like being told what to do. I often let carers have the benefit of the doubt that they know how to do somethings. If I have a better way, I often share that way with them. I guess, it’s also when I expect them to do that thing my way. I guess it’s like saying “My home, My rules.

  1. BDM – A friend suggested it’s not an acronym I should be using with my carers. She’s probably correct. “BIRTHS, DEATHS, MARRIAGES” and I spent an hour on the phone, I may never get back, just to get my Birth Certificate. I think the moment I rang; I was in this automated loop advising me they had an unexpectedly high volume of calls and that I could do stuff on-line. I can’t fit it in to go in, in person and wait for an hour. But, employ some people, stupid Government. Can’t wait until not every household in Australia has a computer. To be fair, that’s already a reality. My dad’s only just gotten a smart phone. Also, several hours of my life I will never get back. But!

 

Today’s Lunch – 20th November 2019

Published November 20, 2019 by helentastic67

Today’s Lunch

Good Mental Health Day

Happy hump day! It’s hot in Melbourne today! Have I ever mentioned how much I love hot weather? (Sarcasm) Yeah, that’s because I don’t! And I’m out in it……all day!

Even though my AVM (Artereovenous Malformation) has been fried with radiation so it’s not at risk of a bleed, a stroke or even blood flow but in hot weather my brain is not happy. My left side of my body works even worse than normal. So, my AFO and Shoe wears not quite right. My body compensates by just pushing through and smashing it out. I still have all the same deadlines. The same appointments to get to. At least once home I have air-conditioning and cold water in the fridge. Once home the cool change will throw my brain into a brain freeze. I predict a kip until my brain and body normalises. Welcome to my summer!

Meanwhile, luckily as I was here yesterday, much cooler. I had yummy sausage roll with relish and a side salad and medicine and macaron. Everything else had sold out!

 

 

 

 

 

 

 

 

 

 

Meanwhile, today’s lunch consisted of…….the brain grain salad. And medicine.

 

 

 

 

 

 

 

 

 

 

Glad I’m at home for the most part tomorrow for an even hotter day!

Meanwhile my Egg-Dealer is back from his holiday in Queensland! Putting in a huge order. Hoping the eggs don’t fry in my apartment or hatch! Got a mental image of little chicks chasing Mika! “Muma? Muma?” To cement the image, I’m ordering 140 eggs! Poor Mika!

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