Is it really only Hump Day? No, it’s gotta be Friday? I didn’t even have to do Person on Monday. However, it’s Tuesday evening as I tap out this post (I save this as a draft and add the important lunch details on Wednesday before I email it to Ms Noelle, my trusted administrator)
So, today I’m in Flemington at the Advisory group I’ve joined. It’s good to stretch my advocacy efforts. Also means I widen the networking. This meeting is only my second with them and it’s every 3 months.
So, lunch today is a little different, occasionally shit goes sideways and I’m a week early for a meeting and I’m left feeling like I got stood up for a second date!
So, medicine with white sugar! WTF people! Good coffee needs raw sugar.
People who don’t work or live in a world of disability don’t understand what life is like without.
Last week I spent some time with a brain injury group and the moment I sat down, I felt the clawing hands of desperation to get at my funding, to benefit the place I was at.
I mean, I walked in and all the members were excited because they were all waiting patiently for “stuff to happen.” Then the staff started treating me like I worked there. How many people are coming? Where is Neil?
Admittedly, I live closer than Neil (who is from the Peninsula and runs a group called ‘United Brains’) There weren’t enough chairs and I was informed there were “staff” in the meeting room next door and they were using all the chairs.
Call me crazy, but I don’t think much success can come of a business model that doesn’t prioritise chairs for welcoming visitors. That’s not even the thing that made me completely livid last week.
But the ‘thing’ that annoyed me the most was when one woman stated the staff at the NDIA don’t come from a disability background, because they want to treat us like we are NORMAL.
Grrrrrrr….. this is why I’ve had to explain what my AFO does, why I had medically approved shoes and why I deal with migraines all the damn time.