Migraine

All posts tagged Migraine

Tuesday

Published September 20, 2021 by helentastic67

Tuesday

Had a crazy Tuesday this week. Now it’s Friday and I’m sitting at my fave café for what has become my new normal day here to lunch and write. It’s the Covid normal.

In my early days of diagnosis, I felt the need to explain my life was less Brain Injury and more normal and my first specialist explained I was a high functioning ABI.

So, Tuesday was a bit more crazy than usual. This is probably a good example of me being high functioning. Keep in mind, Helen is not a morning person.

9:15am – Usual carer arrives for Personal Care. She does all her chores and I do mine.

I make breakfast and sit to eat. (Slam down my entrée of pills)

Turn my phone on. It starts, the bells and whistles, texts and calls and messages. I don’t know why I need to go off grid on the weekend.

I call and negotiate with my young John to get me to my first of two appointments. He can squeeze me in.

11.45am – I’m meeting my Neuro Physio. He sits on the floor trying to stretch out my left calf and front ligaments.

I have been diagnosed with a clunky ankle. It’s an official medical term. It’s causing and adding to my knee replacement one day. It’s already nice and crunchy! (My knee)

So, he’s doing him. I’m doing me. I’m checking texts, sending texts, then I’m required to stand favoring my left side and sit, twist my upper body towards my left to help my leg and foot do leg and foot. 

To be clear, all this teases my brain. It’s not super fun, because my right-side brain is saying “you want to do what? Get firetrucked!” (Trying not to swear!).

And I’m dealing with one of my two agencies to fill a shift, the following day on the Wednesday.

It’s a 6-hour shift where I get escorted out, I do the things, we have lunch either out or at home and I set them chores while I scooter out to other appointments, they don’t need to take me to. It’s also when I fit other things in where I need muscles and things that I can do by myself or on P.T.

It’s a 6-hour shift. The texts from my agency go back and forth. Eventually, I’m offered 3 hours which I later describe as like putting a band aid on a bullet wound. It’s a great image, isn’t it?

I was responding that I could offer their shift to my other agency, as in the whole shift 6 hours. What pretty band aids on either side of that 3 hour. I need the whole 6 hours.

I mention via text, I’m in the middle of something and I need to be present in my appointments, but then I get a rather long shitty text stating they had spent 4 hours messaging other carers and clients to find me someone. It sounds like they think I’m ungrateful. The grumpy text ends with an apology for the text. I am now getting busy – this is eight days after I started.

Hopefully I can do it justice. But otherwise, could be, I didn’t get to read her whole message. I got the gist and immediately texted my other agency and if the person was not in the office, I rang them directly. 

When I rang, I could even interpret the pause and inner office convo that happened in the background. A carer they have been wanting to send me for some time, they were just waiting on an NDIS checklist.

I confess it’s been two weeks since that fateful day. So, while this may not flow seamlessly from the previous post, I hope you can keep up?

So, I text the agency who is choosing to do their job the hard way, that in the middle of two appointments I need to be actively present at. I’ll get back to them.

It does already look like I’m covering the following days shift myself another way. I flick a text to my other agency. In case that staff member wasn’t in the office that day, I quickly call.

“What’s that?” I’m on the phone while my Occupational Therapist, (OT) who I’m just meeting for the first time is with me. “No, I told her she could absolutely go pee.” Respectfully, that makes us friends for life.

I call the agency and I can tell exactly the conversation that’s happening in their office.

“Oh, send X, Y, Z!”

“Is that Helen? Just fill that shift!”

There is no better motivation than me missing a specialist appointment because their afterhours staff member fucked up my Monday morning. My Botox appointment was rescheduled for two months further away. Botox keeps my left toes from curling (I know. What?). Yes! Botox in my leg.

Anyway, yes. The NDIA survey has been completed and X, Y, Z can cover my Wednesday shifts until my other agency can cover it again.

After my OT appointment, I head out and call my Heidelberg taxi driver. Young John is best at this time and so is Sean! 

I hoof it to my far local pide dealer. Pide is not code for anything. It’s just where I get my vegie pide from. Another taxi driver has arranged that I can wait around the corner to make life easier. 

On the drive home (10-15 mins) I text the first agency. I confess I was pretty grumpy earlier and wished to call my support coordinator to growl at the agency because I just didn’t have the bandwidth to give the polite diplomatic response.

Yet, I messaged something along the lines of, ‘I appreciate how hard it is to fill shifts when my regulars are away or don’t have a weekend. Then something that I genuinely did appreciate her efforts. Despite that, rather than ring me first to ask if she could wriggle things so she could cover three of the six hours of my shift. Would it be enough?

Sometimes it is but this particular day, I had placed other things in around and in between the appointments that required wheels and muscle.

I did all of this with a migraine.

So, that shift was moved for a month or so to another agency. 

The following Tuesday I received a message asking if I expected them to cover my Wednesday. I had to remind them I’d moved it temporarily. This is what happens when someone tries to cover a bullet wound with a band aid.

Please Don’t Call

Published June 7, 2021 by helentastic67

PLEASE DON’T CALL

I really want to thank you for calling me today to tell me all the things I should be doing. You haven’t responded to any of my friendly messages for months now.

I had some good news to share, but you didn’t ask, nor could I get a word in edgewise. I’ve just had a 4-day weekend on the 4th lockdown in Melbourne, some appointments cancelled I’d been trying to get done since they didn’t happen in 2020.

Fuck you COVID! No, I really mean it this time!

It is imagined that people with disabilities have not been financially impacted, since we don’t work. We haven’t lost work and why should we matter.

Well, I shall tell you how. Allow me.

These days I do take more ‘healthy pills’ than medications so I can live to the at least 65. I can afford to live till then.

herbal pills in wooden spoon with ginger root, Kaffir lime fruit and flower on dark brown wood background with copy space. Above view.

Shut up! I will explain that expiry date another day.

COVID has meant everyone and their cat and dog has been out buying ‘healthy pills’ to avoid getting or dying from COVID. It’s a fair call. I can’t blame you all. However, many of my healthy pills I buy in bulk so I can get bulk discounts and pay less over time and because my suppliers have had limited stock, they have not allowed me to do this. I’m not talking about truckloads, just 2 x 200 tablets of magnesium. Just an example.

But I don’t need someone who is not on the ‘coal face’ of living on the edge financially and choosing what I’m meant to do without to ‘help’ me decide I can give up my weekly chiropractor visits.

You all realize I have lost many of my pain management appointments due to lockdown, right. And you want me to deal with a rib out as well. The rib still hurts despite being put back in last Friday. It’s Thursday night as I write this.

So, it’s really shitty when people who are meant to love me are awfully opinionated about what I can do when they are not me.

You know that moment when if there was a statistic that said if there was one person in every family of four to have a disability. The only person in your family who could deal with said disability well, it’s you. Yeah, I knew this some years ago.

Now I needed to ask for a loan, quite happy to pay it back. But without even knowing what it was for, you decide to give me a lecture about managing dollars better. Stop helping!

You are upset, because I didn’t ask how you are. It was hard to get a word in edgewise, and I was already having your opinions and the opinions of other people who are not me to get a word in edgewise.

So, now my days is not done, I don’t have the energy to ‘deal’ with anything else today.

I’m feeling really shitty. My head hurts, my left eye is pounding (the indication of my migraine these days). So, I’m going to bed for a cry and a kip.

Now I need to feel like eating sometimes so I can sleep tonight and get up and do all the things again tomorrow.

Meanwhile, the rent gets paid. The lights go on. I’m not starving and I can put one foot in front of another knowing I don’t ask for help often but when I do, I really need it.

Then, maybe I’ll be able to smile a little. Or I can try and if that’s how you are going to be, please don’t call.

Adapt

Published March 2, 2020 by helentastic67

Adapt

Being one handed, the most important thing I can recommend in order to survive is, learn to adapt.

It’s the day’s I go to the city and I do some hunter/gathering, that I push myself a little more and while it exhausts me, I notice how my physical body adapts.

My standard trips to the city meant a lot more steps and carrying. If I can’t carry it, I can’t buy it. So, I’ve gotten creative.

Yesterday, I bought two novels and a box of envelopes. Not heavy, just cumbersome and sharp corners. These day’s I travel with one of those fold up grandma bags. (Not a slur) but you can carry it around until you need it. It weighs nothing, takes up no space, but once it’s got two novels and inside it, I usually ask someone to help me put the handles on my left arm above where my cuff and collar sits, just on my elbow. The bag swings along my side and doesn’t hit my left thigh.

My next stop I collected comics, they are flat and not very heavy, so they go in my bag that sits on my right glutinous maximus. Slap, slap, slap.

Then I stopped at a chemist and picked up a few things. Definitely the weightiest purchases of the day. I might even have behind packaging to save or bulk. At this point I’ve reached my maximum density.

I’m starting to feel weighed down and I’m walking a little sideways and bumping into people. Or it could just be people on their devices not paying the least bit of attention to where they are.

After a quick pee break where the bag on my left arm stays there to save needing to put it back on. I walk not far to the tram or Bourke Street Mall and I get on the tram.


Waddling like a pregnant lady now, I try to get two seats near a door facing forward. I might start with one seat and the bag sits on my lap, the straps digging into my shoulders. My right leg in the isle making people brush against me. The bag on my left arm is beside me digging into whoever didn’t think to offer me both seats.


• I’ll just point out here I’m not bigger than Texas. I’m just a wide load by this stage.

Thirty-Five minutes later, I’m at my tram stop (Maybe I was able to spread out for the last 15-20 minutes) I stand up on the tram, readjust my bags, the strap on my left shoulder. I carry my walking stick with the wrist strap between my teeth, so it doesn’t bang all over every piece of metal known to man.


Have I mentioned, I can’t do stalker or stealth? I manoeuvre my way to a door, favouring my right side as that’s my better peripheral vision. All the better not to step on or bump into people and while holding on to one handle or another I manage to get to the right-hand door handle. Walking stick still in mouth.


Tram stops, door opens and I swing my left leg out and bending my right knee, step down. I don’t let go until both feet are on the ground. Hoping just hoping people have followed the road rules and cars have actually stopped at the back of the tram. Yeah! That does not always happen.

I then use my walking stick to walk to the curb. Right foot up, lift and swing left leg attempting left toes to clear the curb.


Fast forward to me getting inside my apartment. There have been days I’ve taken off the bags and weighed them and I’m surprised I’ve carried the extra five kilos home from the city.


But the biggest surprise to me is after I’ve unpacked everything and take my extra layers off (jacket, scarf, etc) I’m moving around my home feeling like I’m on a permanent tilt.


So, by gradually adding weight, my body compensates to do what I insist on it and when all of that is gone, my body still acts like it’s needing to adapt to carry the extra weight and that is today’s lesson.


You don’t know what you can do until you try. Do a little more on top of that and a migraine.

Today’s Lunch – 19 February 2020

Published February 19, 2020 by helentastic67

Today’s Lunch

Good Mental Health Day
Well, I am in the middle of a crazy social week. Which is unusual, I don’t often have such a busy social existence but things kept getting moved around and it’s all happened or happening over the whole week.

Last Thursday I went to see Birds of Prey. With Margo Robbie. (She’s an Australian, just saying)

Then today, I saw another film with a different friend. This film I used a free ticket for giving one of my support agencies feedback, so we went and saw Jane Austin’s Emma.

And then I went to church! Well, not a real church but a place I consider my Temple. I love to browse; I don’t get to buy anything. But here are some beautiful pictures so you too can appreciate why I go. Even if I can’t afford to buy anything for have the room for more furniture. My red and white provincial doona cover is my summer pride and joy in my bedroom. It makes me so happy.

https://www.provincialhomeliving.com.au/

 

 

And again, keeping lunch simple. Today’s offering is a Mediterranean quiche with side salad and medicine!

 

 

 

 

 

 

 

 

 

Have a migraine today, so really need medicine!

Today’s Lunch – 15th January 2020

Published January 15, 2020 by helentastic67

Today’s Lunch

Good Mental Health Day

After a nice Christmas break, I’m back at my favourite cafe. Most appointments have returned to normal. Visit to my chiropractor I foresee, me well-adjusted finally and tape on my left shoulder. It’s Tuesday night as I tap this out, but I’m predicting my chiropractor will work on my neck and ask if I’ve had a migraine? I will shrug with a “yeah, sure” and she will ask for how long and I will remind her I am 47 now! So, it’s hard to tell? I’m a every week chiro subscriber, because I need it! When I’m struggling with migraines, ribs out of whatever I might go twice or even thrice in a week. If bloody only the NDIA would get onboard!  Mustards! (It’s a swear word substitute)

Oh, Monday I had a lovely lady’s lunch with my friend Susanne. We had lunch down in Westgarth and then saw a film. I’m still way behind in my films. I had a hamburger minus the bun, another perfect example of why Helen cannot do Insta? I had already cut into it.

We saw “Little Woman” it was not only women in the audience but every now and again a character would do something (not quite right) and there was a little murmur shared around the cinema, then a giggle. If you haven’t seen it, do. It was really good.

I was also given a compliment yesterday, from a friend. I sent her a photo of how I manage my “Out-Tray” near my front door.

She likened me to her Nana, not appreciating being liked to an elderly lady. Hey! It’s okay when I do it? As I refer to myself as a Nona all the time. She responded with her Nana was the most productive woman she has ever known. I’ll take it.

And finally, before the storm hits today to put out some fires and dampen the smoke haze, lunch today is, the old classic pancetta quiche with side salad and medicine! Happy!

 

 

 

 

 

 

 

 

 

Cheers,
H

Today’s Lunch – 11th December 2019

Published December 11, 2019 by helentastic67

Today’s Lunch

Good Mental Health Day

Today, while still a classic mid-week foodie post I’m giving you a crash course in classic Melbourne weather, we are only 10 days into summer. Part of Australia is on fire! Sydney, is covered in smoke.

And on Monday, Melbourne had a hot day, close to 40 degrees. I was down in Collingwood for my osteo appointment and as we sat around complaining about the oven-like temperature an older gentleman informed us in no uncertain terms we were complaining too much and I quote: “It’s been summer for 6 hours and you are all acting like you are going to die!”  I agreed with him but told him tartly, “you make a fine point except for the fact that two weeks ago we had our second fake winter!”

I’ve been way too busy of late and with carers away on holidays, I’ve had many a call or text to negotiate last minute changes. It’s an ongoing saga. I refer to it as Putting out spitfires! Obviously, preferable to actual fires.

Last week, I had a migraine for days! As I ended up taking a tramadol! And Thursday my carer convinced me to go back to bed. She actually tucked me in. #love my carers

Today, I’m over in the west, in Footscray! (I refer to it as ‘scray!) As I’m at a meeting finishing this post.  Had a visit with Wilbur yesterday.

What? You can’t imagine I can multi-task one-handed? Have you met me? My names Helen! And today’s lunch is…………….some healthy fruit, beetroot dip & crackers.

 

 

 

 

 

 

 

 

 

 

Note; NO MEDICINE?!!!!!(coffee)

Good Mental Health

Published November 25, 2019 by helentastic67

Good Mental Health

Sometimes having to rely on carers is detrimental to my Good Mental Health. So, in case you had been imagining having carers makes up for being one-handed in life. It really doesn’t.

It often requires a skill set, not everyone with a disability has. I mostly have carers older than I am. It’s not by choice, that’s what it is. I’m not complaining, it’s good.

However, I find older carers sometimes think they know best, so do things how they want to. The downside on occasion is when they don’t listen. They are not there to deal with the consequences.

Some carers only see me when I’m upright, chatty and engaged. They don’t see me when I’m not coping. They are not there when I have to bring my washing inside and hang it, so it has a chance of drying on racks.

Some items in Winter can take days to dry because it’s cold enough to need a heater on, but I have to negotiate spaces around drying racks. My left-hand catches on things as I move around, my left foot catches also. I can easily lose my balance and fall and trust me, no-one around when I have a migraine. Because they don’t limit themselves to the days, I have to suck it up and get shit done.

Migraines will come every day of the week.

Wake Up Dead

Published November 1, 2019 by helentastic67

Wake Up Dead

Is it just me or am I crazy? (don’t answer that!) I get that I have a lot of migraines. I get that I would rather sleep to fix my migraines than take pills. I’m not saying I’m completely against drugs. I’m just suggesting my first option is always sleep, chiropractor, sleep, then drugs.

However, when I go to bed at 7pm, it’s fucking serious. I don’t even think I want to go to bed that early as a baby. It’s even more serious if I send a message to family to ask them to check on me in the morning in case, I wake up dead.

This generally gets a thumbs up, just saying. Is it normal that family don’t think to follow up?

Anyone?

This happen to anyone else?

Please Comment

 

Today’s Lunch – 23rd October 2019

Published October 23, 2019 by helentastic67

Today’s Lunch

Good Mental Health Day

Got an amusing story to share of my Monday, hope you appreciate it. Monday, I did some voluntary work for a group where my task was to ask the clients/patients to fill in a survey of 66 questions. As the people had not met me before I attempted to convey confidence to the staff that I would be fine to do as I had been asked. The waiting room was full, an older man in the corner had the nod’s or soon after was fast asleep.

I reassured her by saying, “I’m going to work that waiting room like a pole dancer works a pole!” and I did.

By the time I left I’d been standing for 3 hours. I couldn’t feel my left leg. When I could it really hurt,
I went home and smashed out my admin.

Tuesday, I had some torture with my beautician, followed by more at home with my nueropsych. Actually, the second appointment wasn’t torture.

Today, I have the meeting I was a week early for. It includes lunch so here is today’s offering a vegie Frittata with a side salad and medicine.

 

 

 

 

 

 

 

 

 

 

Mmmmmmmmm…………Got a migraine to medicate!

Stay tuned, next week I will bring some amazing treats from my foodie-celebratory week!

Today’s Lunch – 24th July 2019

Published July 24, 2019 by helentastic67

Today’s Lunch

Good Mental Health Day

I’m writing this with a migraine so cut me some slack.

Have been the usual way too busy, last Friday I went to the launch of the first Changing Places in Darebin (that’s my council district) in Preston. It still had that fresh/never used smell which I imagine won’t last long. Thankfully, my mobility won’t mean I ever need to use it. Not complaining!

Sunday saw the arrival of the ladies in my family arrive for the celebration of my mums 70th! Logistically, I’m more in the middle so mum booked a Japanese banquet close to me and I did thousands more steps than I normally rack up! (It’s normally 26 steps, which is the distance from my bed to the couch a few times!)

I had a moment before mum arrived at the restaurant to seek my sisters’ partners advice. I did show the Aussie Slang card to mum and she did laugh but she would not have been pleased had I given it to her. I would never by the way.

 

 

 

 

 

 

 

 

 

 

I confess I’m not big on raw fish. At one point, my younger sister (30) commented to me “it’s tuna! It tastes like jello!” No, it didn’t. It felt like slime. I’m much more into tempura and definitely the green tea ice cream.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Now, today’s fine offering is panino Milanese with salad and medicine!

 

 

 

 

 

 

 

 

 

Lastly, a shout-out to my Young John and his wife Young Betty who are currently in Greece and to my lovely masseuse and friend Caroline who is in Italy with her husband! Where the rule of no pasta for health reasons sadly still applies. Speaking of pasta.

Young John & Betty

Italy

 

 

 

 

 

 

 

 

 

 

Last Friday my Girl Friday and I did pasta on Smith Street Collingwood. Here is a before and after picture.

Pasta Before

Pasta After

 

 

 

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