Now, you might imagine having carers or to use their current tittle “Support Workers” is so easy (said no one ever). But you really should imagine it’s like having “staff” or running a busy café where people come for short shifts and someone else off site manages their comings and goings and they might work for several agencies that give them clients/shifts. Now, I’ve been doing this ‘shit’ for about thirteen years and it’s still not perfect.
I like being very efficient to make my life work best and normally the less times I have to attend to something, the more efficient it is. However, the more times I have to touch something to have it run smoothly the way it should because, it’s the way I asked for it the first fucking time, it’s always getting moved.
Of course, I have an example for you!
My carer should arrive on a Sunday morning at 10am for a ninety-minute shift. My main agency that covers all my PC (Personal Care) morning shifts has a few carers who are prepared to do weekend work, so they have outsourced me to another agency. Now, we know from Japanese whispers, the more people involved in relaying a single message, the results or the goal sets diluted and altered when your shift gets outsourced, it works the same way.
Also, because I’m not in the office rostering, but I’m on the cold-face (receiving service) I know more about the big picture. Also, because I make conversation with the carers, because they are in my home.
This particular Sunday, it was my mum’s 70th and family were converging from two different directions at my place at 12pm. Are you doing the maths?
They arrive at 10am, leave by 11.30am, I may eat ‘something’ small to get me through to midday lunch. A call to my main agency (let’s call them MH) during the week, told me she would be coming at 11am.
I rang MH and told them it had to be 10am because of XYZ. They rang the agency (let’s call them MC) because I can. They locked it in for 10am. Bingo, right?
Um, don’t be fucking ridiculous. On the morning, I woke early, got back to sleep eventually and kept waking, stressed she would arrive on time.
10am – I woke, no carer, it’s cold, so I stayed in bed to wait. 10.30am, BUZZ. My carer had arrived, late. Yet her roster states 11am.
I am of the understanding she sometimes has a catering order that needs to be filled. It’s rather ad-hoc so not consistent and I know this because people come to my home, so I get to know them.
As I have a brain injury, I often find people underestimate how switched on I am. It’s a misconception all brain injured people must be stupid. We are not and I’m speaking for all people with brain injuries. You’re Welcome.
So, I know when this shit happens, I am fully aware of who did what, who didn’t and who just said they would fix the roster and never intended to and the fact that I know this is all very taxing too.
I’m an overthinker, I think its anxiety and I think part of it is being a high functioning ABI. And the majority is my need to be efficient, because why is it so fucking difficult?
So, every day, there are examples of this where I need to touch on something to get it running smoothly.