Mother

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Hot off the Press – 21st August 2017

Published August 21, 2017 by helentastic67

Hot off the Press 2108

Hot off the Press

This week comes with an explanation, I guess. I write this post throughout the week and save it in my drafts folder in my email so I cannot miss stuff. Each day seems to bring lots of little details that are important and shouldn’t be neglected! So, enjoy.

Monday, had intended to go to the city and see a friend’s art instillation of handstands in the Arts Centre. A woman with a brain injury who is an artist and she does screen printing and a series of stickers of her doing handstands. She does her handstands to relieve stress and pain from her injuries. Having her work on display in the Arts Centre in Melbourne is an achievement in itself.
I have been trying to go see it for a month or more now and I don’t want to miss it. I try to get to all her exhibitions………..but I prefer company.

Art Centre

I had put out for a carer to accompany me so I could also pick up some things in the city and have my carer carry them. My disc bulge I had surgery to in 2011 has been giving me some warning that I should avoid lifting heavy things, or light things for that matter.

One of my agencies was more concerned I would injure my carer by carrying something heavy. I don’t know what she thought I had been intending to buy. I wasn’t planning on buying bricks or anything……… They couldn’t find a carer, so I changed my mind and had a lazy day off. So much for the NDIS being Life Changing!

Tuesday! Went to the city and participated in an art project. Creating something for a projection to happen down in Warrnambool. I won’t be going but Hellonwheels will make an appearance. Yes, yes. I’ll share footage when that happens!

Warrnambool

If I were to go, watching bright flickering lights while at night would be the kind of migraine inducing thing that would not just stay at the normal level of pain I can just deal with. I don’t want to be that girl who comes home from an adventure via a hospital.

Did some walking and collected 2 of the 3 things I had needed the pack-mule for. I had to collect my 3-monthly supply of comics. Thankfully only 8 making me think I might catch up soon? What will I read then? The comics were the lightest item I was carrying.

Pack mule

Tram home and then a lengthy walk. I arrived to visit the builders down the street and called quits. Matt gave my bag a lift home and I continued much lighter still trying to get some steps on the pedometer on my phone, managed 3,500+. Not bad, right? Except, I’ve a nasty callus on the side of my left foot. I suspect caused by not having the right shoes for this AFO and being fitted by a specialist in medically approved shoes. Have I mentioned I mostly can’t feel my left foot until I hurts?
Yeah, and I wear thick socks around the house as I scuff slippers. And it hurt to walk on any surface except carpet!

Yeah, and I repeat. Not Life Changing NDIS!

Really hoping I can get a carer to get me to my Botox specialist appointment on Friday! The Botox, the hinged AFO and shoes is all related. I’m hoping my mum doesn’t need to drive a 7-hour round trip just to take me!

Botox

By the end of this post you will know the answer to that! Finally, Tuesday. Like that isn’t enough, tore a fingernail into flesh, on my left hand. You might not recall, I can’t feel my left fingers until they hurt also? I can’t cut my own nails and I’m not allowed to have my carers do it for me. I definitely can’t afford to pay someone. Yet, I can’t not! It’s never ending!

Another Wednesday arrives and while very windy I was able to scooter and leave hellonwheels on the High Street near my usual final appointment of the day. I definitely couldn’t have made much of a dent on the pedometer. Left foot is rather painful right now. Maybe I’ll finally seem like someone should fund my new shoes!

It’s ridiculous that because it seems I’m doing everything for myself and doing OK so it seems that it’s considered sustainable and therefore don’t need help. So many things hurt tonight.
Possibly not helped by the lack of Osteo, Mio/Remedial of acupuncture the last few weeks.
Have really made excuses to not go out as much because Young John is away and I rely on him so much to get me places. (he has sent me pictures of plates of figs and such, so he’s obviously suffered greatly)

And the heavy lifting I’ve found myself doing today. I rearranged some unread comics this evening and discovered I’ve been reading them out of order. Who knew there was an order? Going to have to purchase a second storage box next time I’m at the comic shop. Can’t believe I’ve become that nerdy girl who sorts her comics. Not a terrible awful thing just don’t know how this came about.

Organise

Midnight Wednesday night. OK, officially Thursday morning got the message loud and clear. No! More! Technology! It was all not working for me in one way or another.
I quit!

Thursday, blessed Thursday. No appointments today! Luckily, it allowed me another afternoon Kip! I seem to get my best sleep in the afternoon and then after I’m up, I feel I’m good to go for another good 20 minutes…..(just kidding) still not getting through the constant build-up on my couch that’s eternal.

Mum arrived nice and early around 9.30pm, for a fun-filled 24-36 hours.

Friday! Completely smashed it! Had my Botox follow-up with the specialist. Was last injected St Valentine’s Day, best St V’s gift ever, despite it being in my calf muscle. They think I’m ready for the catwalk. (Kidding)

Then, as we had time before my next appointment we had a hit and run visit to the Swedish warehouse. Ironic that that particular post went live on the same day!

Stocked up on some tea light candles. And rescued a few plants, as I do every time. Hot footed it to my orthotist about the nice callus that has been giving me grief. Steven informed me I have been his first client to get my AFO funded and paid for by the NDIS! (The portal that you must navigate is monumentally difficult to understand what it requires of you or if the funds have been allocated and approved: Sounds awfully like they didn’t do a very good job and don’t want to spend the money!)
Hint: Steven rang at 10pm and must have gotten a staff member who couldn’t wait to finish for the night, so told him exactly what he needed to do so he could get paid and the guy could go home. Apparently, the call centre is open until 10pm.

Steven stretched out the side of the AFO so no more callus.

Drove back home from Richmond (not me, mum) and arrived in time to inhale lunch as my carer arrived to do my homecare and take me shopping. Ben managed to get the missing filter for my coffee percolator. Mum and her coffee needs are now sorted to her standards for the future. She left within 24 hours of her arriving in her little racing car. My mum makes an amazingly simple meal when she is here and I got to enjoy it late. Chilli’s and chips with a fried piece of white fish and thyme with a fried egg.
Pedometer tells me the day totalled 4,800+. Imagine what I could do every day if I had NDIA funded medically approved extra depth shoes that cost more than a week’s rent?

Now for the never-ending battle of clearing my couch and being off-grid for Saturday at least! Starting now at 11.59pm!

Saturday dawned with the realisation that GOT season 7 was finishing on Sunday night and it meant I had to binge the whole of the first 6 episodes before Sunday night.

Game of Thrones

So single girl date night again meant TV and not a film and still unable to completely be off-grid.
Sunday, looking at my couch and it’s looking much better. No! You can’t see a picture.
Also, 5 comics were read this week. So happy days here!

Also considering to add another tally to mention each week. How many people ask me in the average week: What have you done to your arm? Seriously, if I had a dollar!

If I had a dollar

It’s, already Monday morning, try early and still not interested in going to bed.
Already considering the many things I have to do tomorrow. Might just smash out a few emails now to make a start…….
1.30am……..
Have a great week!
Cheers,
H

Have a great week

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Mother

Published June 7, 2017 by helentastic67

Mother

Mother

How’s your mother? I always get asked by my carers… My mum who was here for less than 24 hours, last week to smash some appointments and things.

My mum is really the only family member to support me and she also manages to be my biggest critic.

So, it’s often somewhat tongue in cheek I reply with a smart mouth “she was alive when she left and so was I”.

Smart mouth

My mum and I have come a long way in the last ten years, in the early days of my disability, she was mid 50’s and she would come down often once a week just to take me across town to my physio and OT appointments.

Mum lives about 3 hours away in the country in a lovely isolated valley where there is NO MOBILE RECEPTION and when I go home for Christmas, mum and my younger sister cannot remember their internet password. So, for me THERE IS ALSO NO INTERNET!

No internet

Admittedly their internet is so little and so slow, it’s better to just let emails pile up. I’m less inclined to lose my mental ‘shit’ and want to kill people.

My internet is fast and reliable at home. My mum reminds me every time she visits when she claims “I just detected 400 emails”.

Fast internet

Yeah! She only visits for my fast internet, I don’t mess around with internet or computers when they don’t work, I have visual images of Jackson Pollack paintings. Anyway, I digress as per usual.

It is rather typical of family members when they are carers for people with brain injuries and disabilities to verbally spar with each other.

Most people with brain injuries I’m sure it’s like torture and torment because they lack the verbal skills or mental capacity to give as good as they get.

My mum probably doesn’t realise she should count herself blessed, I have a smart mouth and deliver her a sharp retort at times, despite it offending her. Because the early years I used to bite my tongue until I realised Passive/Aggressive didn’t help me.

Smart mouth 1

Nothing was going to change if I couldn’t let it be known. Clearly, we have had many opportunities for a difference of opinion, on this whole topic.

But what can you do?

Mum 1

 

Family

Published February 23, 2017 by helentastic67

family-1

Family

I’m yet to unpack and draw a picture about my family and I’m getting there but things come up all the time so……

My Mum is my biggest supporter and occasionally my biggest critic, but Truly Ruely.

My Mum has been the only family who has been there when I’ve been in hospital and there is nothing worse than having my Mum look down at me with that look I recognise as “Oh my God Don’t let me watch another of my children die!”

sad-mum

And to be clear she gave me this look after my Disc bulge surgery. The nurse came in and felt she needed to remind me I could sue the morphine button. And the look my mum was giving me, having just seen my scar (covered in tape) and to let Mum know I was okay. I gave her the acronym STFU! The nurse looked started and my only interest was when I was allowed up to go pee. It was three days, I think! Three fucking days! I’m just saying. This once; THEY DON’T MAKE BEDPANS FOR WOMEN!

But more about my family soon.

family-2

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