NDIS

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Today’s Lunch – 8th November 2017

Published November 8, 2017 by helentastic67

Funny-Lunch

Today’s Lunch

I confess to say food doesn’t motivate me today. But, you know its fuel for the body and all that.

I’ve got a crappy cold! (Again!) this one is likely stress-related. As I’m moving house next Tuesday……. Today’s offering is a mushroom and sundried tomato Arancini with a side salad and medicine.

Mushroom ArinciniLatte

 

 

 

 

 

 

 

 

Crappy cold

Apart from my cold, I have the added bonus of a rib out.  That’s going to-be fun when my chiro puts that back in and sore tummy muscles. (Side-note: there is no muscle memory in that region!) and an added disability today…….this is a great way for able-bodied people to feel an instant deficit if you are game?

I’m a big texter and I’m a thumb-texter. Today, I’ve a Band-Aid on my thumb! It’s a new form of torture………

Texting

Lastly, feeling very-frustrated my case-management agency is undoing all my organizing and not helping me.

Frustrated

I did however hear my new NDIS funding has been approved! What that actually means is a completely different story.

Cheers,
H

Wednesday

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Today’s Lunch – 1st November 2017

Published November 1, 2017 by helentastic67

Todays lunch 2

Today’s Lunch

Just need s simple calm lunch today. Was meant to sign my new lease so I could start locking in appointments, removalist and cleaners and it’s all getting moved to tomorrow. The three weeks until move day has already become only two weeks and haven’t started packing yet.

I have been prompting and organising and no one else is doing their jobs. What’s the point of having this amazing thing called the NDIS if it doesn’t help?

So, today’s offering………is
Arancini bolognaise with a side salad. My standard medicine and a chocolate mignon. Because I felt like it.

ArinciniMedicineChocolate

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

On the way down today I managed to find a home for one of my plants. I am always multi-tasking, messaging, texting. Never a moment spare. Unless I’m asleep. Blessed sleep!

Plants

Cheers,
H

Happy Wednesday

Hot off the Press – 30th October 2017

Published October 30, 2017 by helentastic67

Hot off the Press 3010

Hot off the Press

Another. Crazy week is under way already!

Learned a new term the young kids are using now……Pods! Ok, not the young kids but Pods is short for Podiatrist and I got to see one just in time for my NDIS review on Tuesday. I had never met this woman before and she was the coolest chick and we clicked immediately. And she is only days from maternity leave so I have to wait a whole year before she returns…….but she is going to follow Hellonwheels! Yeah me!

Podiatrist

Mum arrived around 11pm to prepare for my big meeting with the NDIS and we did this by going to bed well after midnight. No, not preparing for our big meeting but just doing stuff. What can I say? We are not morning people.

Tuesday, arrived at my review with the NDIA just in time. Struggled to find their location and the Planner I was expecting to see had been given a different job only last Friday so the Planner we did see had only been given my file two minutes before she met us. (To her credit she coped very well) My CM (Case Manager) had made it in the nick of time and I think the three of us make a pretty good team.

NDIS

Fingers crossed I get some things actually paid for this time. I’m trying to get them to cover my shoes, at $440 a pair they are the most expensive shoes I have ever owned (and I’m trying to get two pairs), I’m trying to get my monthly psychologist appointments covered as this good mental health comes at a cost, then my weekly chiropractor appointments. Everybody thinks they keep Helen upright and walking and talking but they don’t, my chiropractor does.

Shoes

Mum and I had a late lunch sitting in a fast food location close to home. Doesn’t happen often so it was very, very good. No teasers here. Stopped to scoop up some medicine (coffee) from a local independent wog supermarket close to home. Mum bought a huge slab to take home. Plenty of jokes that we would be OK for a day or two.

Fast food

Home again, medicine, pills and off to my B Team beautician for some waxing, 1/2 leg and under arms. Again, 10milograms of Oxy Norm, I have found is my Happy Place. My left leg doesn’t have the same sensation but when I get them waxed they still hurt the same. Legs itchy for the rest of the night.

Waxing

Mum too tired to cook her amazing fish so took us to a great Vietnamese restaurant to pick up some take away. The woman always looks at us like “These white people don’t know what to order.” Too tired to do any food styling…..  Order was veggie spring rolls wrapped in lettuce leaves with a mint leaf inside, then dipped in dipping sauce.

Spring Rolls

Followed by beef in black bean sauce on rice. My favourite. Then finished with something they call two Colour!

Two colours

It is this weird drink with red kidney beans in the bottom, green gelatine in the middle and ice on top with coconut milk on top. It’s weird but interesting. It melts some while you are eating so you finish with it. Not like a dessert but a cleansing way to finish. By 9pm I wasn’t sure I would make it to midnight. Was already in my PJ’s. At midnight I had finally caught up on the admin and happy not to start Wednesday behind the eight ball. Next!

Wednesday, the calls to start arranging the stuff to move has begun! What has a girl got to do, just to get a call answered? Rang a place so long today, there was an outgoing message stating they were too busy so to call back later. I just laughed and my mum queried …. Is that it? Shit like this for me these days is like water off a duck back. I have yet to signed my new lease but am trying to get my bond funded, my first month’s rent covered as my new rent will be under 55% of my income it will qualify me for assistance. Trying to get ahead of the chaos! Rang for bond assistance and the guy sounded like he was going to direct me to call the previously mentioned organisation and I told him if he said I had to call them, I would come down and punch him! (Most others realise my sense of humour and laugh but I think he really thought I would go punch him). I think he lightened up somewhat when I mentioned I’d had bond assistance many times previously and it had always been returned! (implying I was a rare but good client)

Call centre

Had my mum taxi today so didn’t see Young John again this week. Had lunch with mum and did Chiro…….Quick visit to Bella who decided to come out of her warm bed to get some attention. Visit with the lovely beautician and made it in time to see my acupuncturist but he had already stabbed everyone for his 3.30pm session so he told me it was my school friends fault. He loves to remind me I went to high school with the current Victorian Premier. (Daniel Andrews) I keep reminding him we had not been friends. Mum scooped me up and we went home.

Mums taxi

My older sister and partner dropped in and collected the first batch of plants to go to a new home.  My new apartment will have limited space for plants…….sadly. I must also find a new home for my 500+ outdoor pets that come with their own plastic home……I’m referring to my worm farm. Get it? Long day! Mum left around 8pm for the long drive home after spending some time reporting my plants ready for the move and weeding. She can’t help herself, my backyard is much more manageable than her acre and a quarter. It’s now midnight and I’m still attempting to catch up on my admin.

Plants

Oh, had a call today about my Friday service. You recall, the one where my regular carer is currently away? The backup carer I am told is unavailable…….(I think she just isn’t confident parking in my driveway) and they wanted to know if I would be OK to cancel until my regular chick is back? My brain hurts! Did I mention, this service is my weekly shopping? And my homecare and only food prep assistance? I had to suggest they find me someone, or would they outsource it to another agency? I ended up swopping my own shift to another agency and luckily, they found someone for four hours, no food prep assistance. Any wonder I have a migraine!

Carer

Thursday, usually a prelude to my off-grid Saturday. I had a rather lazy start to the day and a friend arrived around 3.30pm and we went for a long drive to the Cat Lounge in a neighbouring suburb, this was my first ever visit. My companion, I fondly refer to as the crazy cat lady, number of cats two currently and let’s not talk about that. Straight away she was “Look at the kitties!” I think I was a bit speechless. I was offered a locker for my bag, and I now realise they want to discourage you taking in cat treats and such. I took my bag in as I wasn’t fazed to have a cat rub itself against it. (All the better to sneak a cat out in my bag, right?) Joke! http://www.neko.org.au/neko-hq/

CatsCats 1Cats 2Cats 3

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Cats! Cats! Everywhere Cats. Some sleeping on the top of things like Trees, inside mushrooms. Running around, just everywhere. Have I mentioned my older sister is allergic? This is her idea of hell. Poor luv. When we arrived, there was a guy sitting at the table with his laptop and phone. I noticed a black feline curled up on his lap. He sounded to be a frequent visitor choosing to do his ‘work’ there once a week. He seemed reluctant to leave the black kitten. Suggesting it wouldn’t be there much longer. We both sat down and cats chose to come by for attention and others came to lounge on the couches with us. Mmmmmmmmmmm. I queried how many cats were in residence and suggested a game of Where’s Wally? But for the cats. Ms Tina was very good at Where’s Wally, I pulled a chair out from under the table to sit next to a rather large cat who didn’t seem prepared to move for anybody. The chair was covered in fur and I sat down anyway, you bet I did. She was a really sweet older cat who has already been adopted. So she had nothing to work for. I moved around to meet the different cats and even greeted the new arrivals tucked away in the corner. I offered a few kind words and a finger for a sniff and a tickle. I sat on an armchair and a cheeky female kitten (7 months old) came and I helped her settle up towards my right shoulder. She was cradled by my one good hand, but close enough for me to rub my cheek on. She just stayed there cleaning herself and settled into my Marino Wool jumper (Don’t know what I was thinking) we stayed that way for about 20 minutes, when I realised she had already been adopted. She is going to turn a dog guy into a very happy cat man! (A couple has adopted her) There was a 15-year-old cat called Maxine in the corner contentedly sleeping on an armchair, he had apparently been surrendered by his owner because his girlfriend wasn’t into cats) I know I sound judgie however, I couldn’t be with a guy who was prepared to give up his cat. Arrived home and got onto to phone calls. Still time in the day to order consumables (food handling gloves) and I’ve already started making calls about relocating my services to the new apartment. Because it’s only a month away and then I can get a new fur Baby!

Here are some photos from the Cat Lounge in Preston.

Cat LoungeHelen and catBored catCat Lounge 2

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Ah Friday, my last day of being 44. (Yes, you heard right!) my normal day of squashing everything together with the assistance of carers started earlier than normal as my regular chick is still away. I managed to get the lovely woman from one of my other agencies again this week. Having discussed all things yummy, pastry, naughty goodness last week she arrived with a custard ’thing’ in hand.

birthday
Allow me to explain, in the week of your birthday, all calories don’t count. Well, I don’t count them, I don’t care at all about them, but more sugar is consumed and preferably shared in this week over any other time. Long day! Very long day. Including an extra trip to my chiropractor as my neck has been particularly ordinary. I’ve had a bit of a migraine all week. Yeah, I get those ones that feel like something is inside your eye sockets trying to push your eyeballs out with a spoon but not enough to cripple you and you must take to your bed. Super, right? Mmmmmm, no! So, extra Chiro visit and extra visit, to my favourite cafe! Thanks to my friend who scooped me up and took me there and back. Here is a photo of what we ate……

MacaroonsCafe Latte

 

 

 

 

 

 

 

 

 

Emails, stuff, other stuff and more admin. My couch looks like I’m testing missiles and it looks like my birthday, will be spent doing something to ease the chaos. It’s now about 1.30am and officially a new day so off to bed! A rule leftover from my club days, it’s not officially the next day until you have had sleep. It doesn’t even matter if the sun has come up. Not the next day! Sweet dreams!

Sunday, time to get ready for a new week! Actually, got into my study and attempted to do some filing. At times over the last six months or so, I have started getting organised and ready to move. Rearranging things, sorting, putting things where they belong. Everything has a home and it’s an ongoing battle to clear the couch which is rather like a large in-tray.

I am already into Monday and really should haul myself off to bed. If I missed anything I’m sure to catch you up perhaps on Friday.
Have a great week!
Cheers,
H

Week

Hot off the Press – 23rd October 2017

Published October 23, 2017 by helentastic67

Hot off the Press 2310

Hot off the Press

Monday! Such an early start when some SOB (scratch that) person! Rang my doorbell! I again presume my landlady who should be aware I could drop down and ring her doorbell at 2am when I go to bed and I won’t attempt to rush down her front stairs or if I did I could injure myself. Ah, I guess if I injure myself it’s their fault? Just checking.

Insurance? Ka-Ching! Not worth it but I’m having a little internal chuckle. Game on! So, cannot wait to move!

Adventure

Busy day, adventure to neighbouring suburb. On the povo-trail as I call it. (Povo, short for poverty)
I skipped my Osteo appointment so I could make sure I would be at my best to go see a property close by. It’s cheaper and has 2 bedrooms and 2 bathrooms! Ok, one less bedroom than here. No street view, backyard or grass anywhere, and a smaller balcony than my current backyard. But a potential home for my new cat? Warm in Melbourne, have I ever mentioned 25 is my happy place for warm weather? I am such an old lady remind me what happened to spring?

Poverty trail

Tuesday! Starting to get better with having breakfast before my carer every other week when I have my massage at home, after we went for coffee.
And…..
Oops! Did it again!

Almond CrossiantLatte

 

 

 

 

 

 

 

Saw my GP, had lots on his list today. Turns out there is no test for diagnosing Thorasic Outlet Syndrome, it’s only a clinic diagnosis. So, I just need that in writing please so I can have NDIA to fund my Osteo, Mio/remedial needs Funding? Mmmmmmmm……. Caught a tram home, I got out part way to visit some shops (all walking distance.) Did some hunter/gathering and decided to walk home via a visit with Wilbur.

Sleeping

Oh, also had some time with this bit of fluff, Frankie whose dad told me he must really like me. Although this is Frankie ignoring me. His dad had gone inside to order and return with more doggy treats.

Frankie

Made it home in one piece with 5,300+ on my pedometer. So buggered didn’t help that it was rather warm today.

Wednesday, my standard Punchy/stubby day without the shabby part. My acupuncturist is away rubbing shoulders with political minds. Dropped in for a visit with Bella. No joy. Scootered home and dropped in for a visit with Matt, who has developed the 9 apartments down the street with his wife and friend. Shared some photos of cars. I don’t drive, but I like a nice car. Here are some photos of the car Matt had worked on earlier that day.

Austin1st Car

 

 

 

 

 

 

 

By the end of the day I networked and shared some photos of my uncle’s cars. He has restored.

2nd Car2nd Car 12nd Car 2

 

 

 

 

 

 

 

 

Otherwise, just some nice photos of cars for you if that’s your thing. (It should not be imagined that I have money, am related to people with money, or have friends with money.) Just an appreciation for nice cars I will never drive.

Ah, must mention before I move on, at the start of the day I couldn’t feel my left foot and most of my left leg and side.  By about 2pm I could as it had started to hurt, stock standard day really. By the end of the day, ok almost Midnight, I’ve realised it’s almost the end of the year in the bigger scheme of things and I’m wondering if it’s normal I’ve only seen one family member all year! Thank God for my mum, right? I haven’t seen my two sisters or my father. I have two cousins in Melbourne. One of which I wouldn’t mind seeing at more than funerals. Again, is this weird?

Weird family

Have I mentioned, my home is so hot in the warmer months that I have to put anything that melts into the fridge. Chocolate, Nutella and now, coconut oil! It’s completely liquidified. It’s time to move!
Does anybody believe in the concept of ‘Timing?” This week marks the passing of me applying for my 4th apartment this year. And knowing I can’t give notice to vacate until I find my new home,because, I can’t just live in any flat, unit, apartment, whatever. I don’t drive, so can’t live miles away from transport or my (well, let’s not mince words: Clifton Hill and my fav cafe and stomping ground) and I can’t do stairs or a shower over the bath and electric stovetop, etc. etc. Today I found out I got a place and now I can give notice! I can even start stalking my next fur-baby, by Christmas!

Melting chocolate
Excited………………

Wow! That didn’t take long…… Life can’t let you be happy for a single God damn minute can it? Believing the Universe will look after things all goes to hell.

Welcome to my Friday, where I have mentioned the Wheels fell off! My replacement carer for my Homecare/shopping my only Foodie Prep shift cancelled sick. The agency didn’t have a replacement, I outsourced myself to my newest agency and was very lucky to get someone for only 2 hours towards the end of the day.

So, I pulled up my big-girl pants and got on Hellonwheels got a jaunt to the other supermarket I live in-between two major supermarkets. Near (it will be my milk bar when I move. Won’t even need my scooter) got half of my shopping list and on the way home stopped at my old real estate. Gave notice! Thinking I should have waited a few more days as the new apartment won’t be available until the 18th and I need a few days to arrange carpets and cleaning to be done before my notice is up here. Family politics doing my head in. Again, seriously thinking to spend Christmas at home alone. With my new fur-baby. No, haven’t gone to meet any new cats, just know I’ll be getting one ASAP!
Finishing the week feeling flat and sad.

Going shopping

Saturday. No medicine! Must be dying not to fit in a coffee!

No Coffee

Sunday, skipped lunch to squeeze in my medicine. Then had lunch for dinner, happy Sunday. Half a comic was read this week. Comics didn’t rate high on the priority list this week. I’ll catch up in a few to be sure.

Sunday

Have my NDIS review this week! I will finally have the meeting with an actual Planner about my “Goals” pity I didn’t get this meeting a year ago. I don’t know how they imagine I can find my way to knowing what my Goals might be when money is so tight. I would be happy to start with if they paid for my shoes, my chiropractor and my Shrink. As well as continue to pay for my carers……..so I can start to breathe a little. Then, maybe I can consider some Goals.
Another big week to come.

Goals
Cheers,
H

Happy week

Hot off the Press – 28th August 2017

Published August 28, 2017 by helentastic67

Hot off the Press 2808

Really needing this week to be far less busy and chaotic. Noelle informed me last week’s Press Release was akin to a short story. So, let’s put out for much less chaos.

Monday dawned cold and wet so decided I’m too poor to pay for taxis to my only appointment so I reconsidered and cancelled. Had an extra day to my weekend and did some advocacy for a friend who has had the NDIS fail him so badly he has rejected the help completely. He also has no case manager and no carers. He obviously needs an advocate and a new planner from the NDIS so I’ll work on advocating for him to get those next.

Cold weather

Ironically, if I do a little advocacy for others I’m heard and they get results however when I do it for myself there is a consensus that I don’t need to be taken seriously because I just have a brain injury! Apparently, I don’t matter.

God forbid! A client is smart enough to know when I’m being given sub-standard service and wise enough to make you feel some guilt about it. One of us is being paid for living like this and it’s not me!

So, back to less chaos.

Made it to 4.30pm and decided I really did deserve a kip……….woke at 6.30, barely in time to fit in a coffee. Back to emails, which are never ending……and felt the need to give a smack down to someone in my ABI community.

Brain injury

The biggest problem with brain injury is often that as it is something we have in common we are presumed to be herded together to socialise and advocate. Not a single ABI is like another. Everyone has different funding, supports, support needs and empathy and compassion for anyone and everyone else. Housing situation, family, etc etc.

I have really stepped back from all ABI groups and last week’s art project was a rarity on my behalf. So, after attempting to explain to another in this community I eventually repeated and delivered a sharp “Go forth and multiply!” Although not as eloquently as that…….next!

FYI; False alarm in the finale of GOT. I am a week early meaning I now must wait in anticipation like everyone else. I don’t know if you are aware, however I don’t have patience for all things.

GOT

Tuesday! myo/Remedial! So, needed that. The student worked on my back and both my arms, and when working on my left arm was surprised when my left hand flared open.

Wednesday! Remember my suggestion for needing a less dramatic week? Yeah, well……..
T, a good friend scooped me up in time to get to see what I hope will be my new home. T, helped do the application forms and after a short trip to the police station to sign a statutory declaration, a drive to the city to drop the forms straight to the real estate agent. I even did a flight of stairs! Up and down.

Appartment hunting

After my initial feedback that they had an accessibility issue, I left her by telling her if I got down the stairs my application should go to the top of the pile, if I fell? I should get the apartment! (She got my humour) As I got in the car I could feel muscles in both my legs I don’t recall ever having.
After being delivered to my fav lunch haunt and no time to smash out my foodie post, apologies. Hope you appreciated the extra well thought out /structured post? Inhaled lunch, something different ironically. Delicious pancetta quiche with side salad. And the standard medicine………..
And then off to Chiropractor!

GOT 1

Quick debrief with the younger Associate Chiro on GOT! I peaked too early and binged the first six episodes of the season a whole week before the season finale, meaning I have had to wait on tender-hooks like all the other plebs! My debrief with him was had with me, wide eyed, raised eyebrows and very short statements. He smiled and agreed and then my Chiro broke it up with “C’mon! Quick back to work!” We parted ways me responding “Yes, Mum!” Humorously.

Chiropractors

Already had a migraine from the chaotic day. Tram, acupuncture. (Took out my own needles for efficiency) and off to the beauticians for a quick underarm wax! Taxi home and chores, chores and more chores. Turned out to be a great day for ducks! (it is standard end of winter/start of spring rainy season)

Thursday, now this is the ticket! Very quiet day at home. So happy, with sore legs from doing those stairs Wednesday, but still happy days!

Thursday

Friday, before lunch, had sheets on the line already! In Winter (well, practically spring in Melbourne!) Then received the hideous news, I didn’t get the apartment I applied for. Apparently, the winning applicant could take possession on Monday. While I’m yet to give notice as I can’t afford to be homeless and cannot do transitional housing. I would have scrambled to get funding to pay rent on the new place while I gave notice here. This is the 3rd place in as many months I’ve applied for that I didn’t get. My new fur-child again not here. Feeling like a loser! Had my young carer who does my shopping, homecare and food prep and had plenty of laughs to cheer me.

Friday

Huge laundry weekend and at least one decent day to get through it all. Happy to be off grid as of right now, being midnight! And looking forward to getting shrunk Monday!

Off-grid Saturday as quiet as it should be, single girl date night again spent consuming the build-up of shows on my Toppy. Princess Diana has been very well covered in recent weeks. Some shed a few tears, obviously, other distractions. No complaints at all. Just going to be a challenge to snap back into full Adult mode for Monday! It looks like I’ll be doing it with a twinge of a migraine. Super!

off the grid
Only managed to read three comics last week, believe there is another Joss Whedon comic to add to my shopping list. That being Dollhouse. I’m sure it can wait until I’m a little more caught up. I imagine comics are a more affordable medium than producing TV series that may or may not be green-lit for future seasons.

The finale of season 7 of GOT (Game of Thrones) airs tonight. I will watch it later Monday! Woe is me! I know my followers likely don’t understand the appeal of GOT so I promise one day I will attempt to explain. But not now.

GOT game over

To another stress-free week.
Cheers,
H

Stress free week

Hot off the Press – 21st August 2017

Published August 21, 2017 by helentastic67

Hot off the Press 2108

Hot off the Press

This week comes with an explanation, I guess. I write this post throughout the week and save it in my drafts folder in my email so I cannot miss stuff. Each day seems to bring lots of little details that are important and shouldn’t be neglected! So, enjoy.

Monday, had intended to go to the city and see a friend’s art instillation of handstands in the Arts Centre. A woman with a brain injury who is an artist and she does screen printing and a series of stickers of her doing handstands. She does her handstands to relieve stress and pain from her injuries. Having her work on display in the Arts Centre in Melbourne is an achievement in itself.
I have been trying to go see it for a month or more now and I don’t want to miss it. I try to get to all her exhibitions………..but I prefer company.

Art Centre

I had put out for a carer to accompany me so I could also pick up some things in the city and have my carer carry them. My disc bulge I had surgery to in 2011 has been giving me some warning that I should avoid lifting heavy things, or light things for that matter.

One of my agencies was more concerned I would injure my carer by carrying something heavy. I don’t know what she thought I had been intending to buy. I wasn’t planning on buying bricks or anything……… They couldn’t find a carer, so I changed my mind and had a lazy day off. So much for the NDIS being Life Changing!

Tuesday! Went to the city and participated in an art project. Creating something for a projection to happen down in Warrnambool. I won’t be going but Hellonwheels will make an appearance. Yes, yes. I’ll share footage when that happens!

Warrnambool

If I were to go, watching bright flickering lights while at night would be the kind of migraine inducing thing that would not just stay at the normal level of pain I can just deal with. I don’t want to be that girl who comes home from an adventure via a hospital.

Did some walking and collected 2 of the 3 things I had needed the pack-mule for. I had to collect my 3-monthly supply of comics. Thankfully only 8 making me think I might catch up soon? What will I read then? The comics were the lightest item I was carrying.

Pack mule

Tram home and then a lengthy walk. I arrived to visit the builders down the street and called quits. Matt gave my bag a lift home and I continued much lighter still trying to get some steps on the pedometer on my phone, managed 3,500+. Not bad, right? Except, I’ve a nasty callus on the side of my left foot. I suspect caused by not having the right shoes for this AFO and being fitted by a specialist in medically approved shoes. Have I mentioned I mostly can’t feel my left foot until I hurts?
Yeah, and I wear thick socks around the house as I scuff slippers. And it hurt to walk on any surface except carpet!

Yeah, and I repeat. Not Life Changing NDIS!

Really hoping I can get a carer to get me to my Botox specialist appointment on Friday! The Botox, the hinged AFO and shoes is all related. I’m hoping my mum doesn’t need to drive a 7-hour round trip just to take me!

Botox

By the end of this post you will know the answer to that! Finally, Tuesday. Like that isn’t enough, tore a fingernail into flesh, on my left hand. You might not recall, I can’t feel my left fingers until they hurt also? I can’t cut my own nails and I’m not allowed to have my carers do it for me. I definitely can’t afford to pay someone. Yet, I can’t not! It’s never ending!

Another Wednesday arrives and while very windy I was able to scooter and leave hellonwheels on the High Street near my usual final appointment of the day. I definitely couldn’t have made much of a dent on the pedometer. Left foot is rather painful right now. Maybe I’ll finally seem like someone should fund my new shoes!

It’s ridiculous that because it seems I’m doing everything for myself and doing OK so it seems that it’s considered sustainable and therefore don’t need help. So many things hurt tonight.
Possibly not helped by the lack of Osteo, Mio/Remedial of acupuncture the last few weeks.
Have really made excuses to not go out as much because Young John is away and I rely on him so much to get me places. (he has sent me pictures of plates of figs and such, so he’s obviously suffered greatly)

And the heavy lifting I’ve found myself doing today. I rearranged some unread comics this evening and discovered I’ve been reading them out of order. Who knew there was an order? Going to have to purchase a second storage box next time I’m at the comic shop. Can’t believe I’ve become that nerdy girl who sorts her comics. Not a terrible awful thing just don’t know how this came about.

Organise

Midnight Wednesday night. OK, officially Thursday morning got the message loud and clear. No! More! Technology! It was all not working for me in one way or another.
I quit!

Thursday, blessed Thursday. No appointments today! Luckily, it allowed me another afternoon Kip! I seem to get my best sleep in the afternoon and then after I’m up, I feel I’m good to go for another good 20 minutes…..(just kidding) still not getting through the constant build-up on my couch that’s eternal.

Mum arrived nice and early around 9.30pm, for a fun-filled 24-36 hours.

Friday! Completely smashed it! Had my Botox follow-up with the specialist. Was last injected St Valentine’s Day, best St V’s gift ever, despite it being in my calf muscle. They think I’m ready for the catwalk. (Kidding)

Then, as we had time before my next appointment we had a hit and run visit to the Swedish warehouse. Ironic that that particular post went live on the same day!

Stocked up on some tea light candles. And rescued a few plants, as I do every time. Hot footed it to my orthotist about the nice callus that has been giving me grief. Steven informed me I have been his first client to get my AFO funded and paid for by the NDIS! (The portal that you must navigate is monumentally difficult to understand what it requires of you or if the funds have been allocated and approved: Sounds awfully like they didn’t do a very good job and don’t want to spend the money!)
Hint: Steven rang at 10pm and must have gotten a staff member who couldn’t wait to finish for the night, so told him exactly what he needed to do so he could get paid and the guy could go home. Apparently, the call centre is open until 10pm.

Steven stretched out the side of the AFO so no more callus.

Drove back home from Richmond (not me, mum) and arrived in time to inhale lunch as my carer arrived to do my homecare and take me shopping. Ben managed to get the missing filter for my coffee percolator. Mum and her coffee needs are now sorted to her standards for the future. She left within 24 hours of her arriving in her little racing car. My mum makes an amazingly simple meal when she is here and I got to enjoy it late. Chilli’s and chips with a fried piece of white fish and thyme with a fried egg.
Pedometer tells me the day totalled 4,800+. Imagine what I could do every day if I had NDIA funded medically approved extra depth shoes that cost more than a week’s rent?

Now for the never-ending battle of clearing my couch and being off-grid for Saturday at least! Starting now at 11.59pm!

Saturday dawned with the realisation that GOT season 7 was finishing on Sunday night and it meant I had to binge the whole of the first 6 episodes before Sunday night.

Game of Thrones

So single girl date night again meant TV and not a film and still unable to completely be off-grid.
Sunday, looking at my couch and it’s looking much better. No! You can’t see a picture.
Also, 5 comics were read this week. So happy days here!

Also considering to add another tally to mention each week. How many people ask me in the average week: What have you done to your arm? Seriously, if I had a dollar!

If I had a dollar

It’s, already Monday morning, try early and still not interested in going to bed.
Already considering the many things I have to do tomorrow. Might just smash out a few emails now to make a start…….
1.30am……..
Have a great week!
Cheers,
H

Have a great week

Hot off the Press – 24th July 2017

Published July 24, 2017 by helentastic67

Hot of the Press

Hot off the Press!

Very happy that I’ve followed through on my commitment to provide a current snapshot of Life with Hellonwheels. Going to guesstimate it’s now 2 months.

In recent weeks, I’ve attempted to make a serious commitment to get to bed early. You will already be aware I am NOT a morning person, unless it’s between 12am and 2am! So, attempting to set a realistic achievable goal of 1am, I failed every night the first week, although, if 1.04am, I consider that a win! The last four nights I’ve managed to get into bed before 1am and I can’t wait to get an eye roll from Ms Jillian tomorrow for my monthly head-check. I will get lots of steps on my pedometer to more than make up for it.

Early night

Have had a very busy week and while I usually see my lovely Young John at least three times a week, he’s off to Greece today for at least five weeks with his wife Young Betty.

Greece

As he never charges me, so I have to consider realistically which of my appointments I can live without. I now need to taxi ($$$) to appointments or rug up and walk to the tram and cater to the fact that I will get wet. I can’t use both my walking stick and an umbrella.

We are over the halfway point in winter in Melbourne but this is the wettest part of winter and the start of Spring.

Thinking to do like a bear and hibernate. Plenty of TV to watch, currently watching some Hawaii 5 Oh! To trick myself into thinking it’s not so cold. It’s not working.

Hibirnation

Oh, the start of the week saw my mum here for about 24 hours. This week both my parents celebrated their birthdays. 68 and 69, I think. Young compared to many of my friend’s parents.

Happy birthday

Visited the pet shop again to check on Ralph’s fate. He had been adopted the day before and another cat had also come and found a new home. Another to arrive that day and still no new fur-child for me. Sad face. But the trip to the pet shop revealed there will be a Cat Lounge opening in August in a neighbouring suburb. FYI: Lounge presumably is a fancy name for a cafe, in a suburb I wouldn’t consider fancy. But until I move and/or get my new fur-child I foresee myself being a regular visitor.

Fur baby

The drama of finding carers has continued. Last Monday I went to the top and sent a polite but brief text to the CEO (what? He told me I could call him!) and within an hour I received an email of my roster. So, definitely doing that again.

Still adding to the mental list of how many carers have seen me naked. The least favourite thing about having and needing carers to do the most simple and mundane of tasks. I’ve decided to cancel four of my FP (food preparation) shifts this week. I need a break from the rostering nightmare and staff changes. If I have to micromanage someone I might as well do it myself. If it’s something I can’t do one-handed it can wait.

Naked

Still no new shoes to speak of. Starting to get murderous thoughts at the powers that be ‘getting in my way’.

The NDIS is supposed to be life changing. Then why do I have blisters on my toes? Less travel assistance and I am forced to trim my own fingernails on my left hand until I butcher them as I don’t know how short I cut them until they hurt! My chiropractor put my rib back in and it was bruised for days yet, that was something my CM decided warranted an incident report to assist me getting my monthly chiropractor bill covered. Here’s hoping.

NDIS

Lastly, my anniversary White Tail Spider bite flare up has returned. So, it’s as itchy as hell and the skin peeling is about to start again.

White Tail spider

Oh, I got through three comics this week and also filed away the ones I’ve read this year. Going to need a new achieve box soon. I’ll try to read a few more comics before I make my next pilgrimage to the comic shop. I do this every three months.

Comics

To a less chaotic week ahead!
Cheers,
H

Have a great week

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