All posts tagged NDIS

Hot Off the Press – 19th May 2020

Published May 19, 2020 by helentastic67

Hot off the Press!

Sometimes, blogging about the here and now and the most important reason to blog gets lost in all the detail. So, being careful to consider someone else’s privacy.

Imagine being 29 and all you want to do is survive, to thrive, with a pre-diagnosed medical condition, you have a stroke!

Again, not my story, but a friend.

After over a month in hospital, being tested for everything including CoVid19 and with no answers. Sometimes, this is the way. No answers.

Being kept company by parents, day and night so nurses give the best care. The same care they would give to anybody without disabilities or pre-diagnosed medical conditions. No matter what they are. A short stint in in-patient rehab, where physio appointments went cancelled because of the low expectation of recovery. Parents needing to still be there to advocate for their child to make sure they get what they need.

What to do now?
Well, the hospital and the patient, to be fair want the patient discharged ASAP. The patient obviously very keen to be home where his parents can arrange the best for their child. Well, adult child and the parents could get a reasonable night’s sleep, to continue to love and care for their child as only parents can.

So, in a perfect world, a caring parent/advocate/carer applies to the NDIA for a change in circumstances, so the patient can go home. Extra carer hours can be utilised to provide adequate care in the home. Plus, some much needed respite for the parents. And sufficient physio and Occupational Therapy to return to at least the bare minimum or return to the same level of independence my friend had in the comfort of their wheelchair, not so very long ago. Is it too much to ask? Is it even possible? I guess we don’t know until my friend is in the best environment for this to happen. Which is clearly at home.

They can’t go home until these things can happen.

I don’t know about anybody else, but I don’t have the funds to pay for these kinds of things, so the NDIA, a government organisation should prioritise these things, no? Let’s see how long it takes for my friend to be able to go home.

And lastly, I’ll leave you with this great quote that I only know about because a great Aussie disability advocate used it.

Disability is seen this way………
“The soft prejudice of low expectation!”

Please share through your networks to show your support. While these stories go untold people get away with providing sub-standard care. Let no single person with a disability be left behind!


Today’s Lunch – 25th December 2019

Published December 24, 2019 by helentastic67

Today’s Lunch

Good mental health day! Or as I like to say Merry fucking Christmas!

It’s actually Tuesday right now, Christmas Eve as I tap this out. It’s a good day, I’m well-adjusted as I’ve seen my chiropractor who I won’t see now until mid-January. My girl Friday and I had fish and chips for lunch in Fairfield.

I will have a medicine later at home. I received a gift from my mum yesterday in the post and presuming it was a tree, due to its shape, I’ve left it to open tomorrow. A message late last night came from my mum stating I should open it and that it wasn’t a tree? I don’t know, you tell me? Mine is on the right, she lied didn’t she! It’s a tree!

My Christmas Tree

Mums Christmas Tree











Also, a photo of it during daylight without the lights on. I hope JD is impressed? As promised, cat-friendly. It is sitting on top of things in my living room about a metre off the ground and Mika can’t get to it, or shows little interest.

Wishing everyone a very Merry Christmas. Be safe and try not to eat too much. I received my new NDIS Plan just in time for Christmas. I’m not looking at it until Thursday and over the New Year, I need to take some time off. My first medical appointment in the new year is the 9th and all the crazy starts again.

Also, while my girl-Friday was away I had some fresh new carers, one day I was in K-Mart on an important call from a lawyer. Trying to take it seriously when I looked up and this is how my girl-Friday 2, Oh had kept herself busy……..









I don’t know how I made it through that phone call.

Lastly, a big thanks for my wonderful blog administrator Noelle for whom hellonwheels would not happen. I am lucky her husband has a thing for trying to give himself diabetes. Last week, I managed to mule some gifts their way via a friend.

And today, the 24th, I managed to mule some goodies to the States to be sent to my friend in Texas! I have a post to write about to gift for appropriating people to mule things for me.

Also, Many thanks for my 200+ followers, for comments from close and far. Hope to see you in 2020!

Rest! Replenish and see you back for more in 2020!


Bucket of Funding – How to Stem the Flow

Published December 23, 2019 by helentastic67

Bucket of Funding – How to Stem the Flow

Today, I thought I’d give you all a lesson on how to over promise and under deliver and do it in a way that your clients, if you are lucky, will be slow enough not to realise for a little while.

Big business can’t work this way, they would be bankrupt. But this is how governments seem to work because ours at least, is not want the bucket of water to empty too quickly.

When I talk about funding for people with disabilities, there is always talk about State V Federal funding and it’s all about a different bucket of funding.

What they promise is a huge bucket of funding, when they start to deliver on what has been promised. Big bucket with a huge hole in the bottom.

Here’s a life lesson by example:

When the NDIS was piloted in a region in every state of Australia, it was out with everyone having an appointment (assessment) with the NDIA directly.

There was not much (if any) information about where the pilot regions would be, because they worried people would move there and flood those areas (causing a false economy etc) No one knew, what they could ask for from the NDIA, as they seemed to be making it up as they went.

Ironically, rumour was it was such a painful process, people were leaving the pilot region (in Victoria, it was down near Geelong) nobody knew how long the pilot program would run or when it would be rolled out in their district.

It way maybe three or four years before it went to phase two (1st roll out after the pilot) still impossible to get information of what we could get, what it would cover.

We all got the message in the early days not to get reports and supporting letters early, because the NDIA wouldn’t accept anything older than six months.

I digress,

So, when my region was rolled out, the Northern District of Melbourne, there were three large areas rolled out together. It was fucking chaos and this is the important part. This is how to stem the flow, rather than follow the pilot region (why else have a pilot region, I ask?) they outsourced to other agencies and businesses (Not for Profit, NGO’s) who had tendered for the contracts, but it felt like the information was not given in a clear and concise format.


No one was on the same page and it rather seemed untrained and inexperienced staff were only to gather information for someone else to decide.

I know my mum did some training with an agency that I was not allowed to attend (because I was the client) and it was more geared towards the others, carer or family members present whose participant was much higher needs and had the background of having funding. And I found my mum returning all very excited, I could get a FREE COMPUTER.

I sigh! Oh, dear God, what do I need to set her straight on now?

“You can get a free computer from Greenpeace”

What!? Did you hear that too? (I’m asking you, reading this post)

Um, mum that is an NGO to save the whales.

Daughter, ever so ungrateful, poo-pooing on mum’s new found wealth of knowledge.

“Fine, you call Greenpeace and ask for a FREE COMPUTER” on the other hand, “Green PC” was an NGO that would be donated computers, they would upgrade them and then donate them to people who reeked then, or had to buy them for not much at all.

They ceased trading back in (I forgot now, back in 2010?) because they felt every household in Australia had a computer.

I’m wrapping this post up now!

Oh wait, at first there was a rumble about how much the NDIS was costing tax-payers. More obviously, than they had imagined.

Then, they were suggesting they would dip into the NDIS bucket to give to the drought affected farmers, some much needed financial relief.

There was outrage!

Instead, pubs were offering $10.00 Parma and chips or Parma and salad deals and sending/donating the profit to the drought relief. Which is great, farmers are still dealing with drought.

But the lesson here is the government seemed to work out from the pilot region roll out, not what was needed and how to offer a service and deliver in a timely fashion, but how to slow down their money escaping the bucket too quickly.

If our NDIA ran like a business, no one would choose to do business with them or be their customer and here in lies my point. That is the point.

Footnote! The farmers while optimistic, were not at all on board with funds being taken from the disability sector. “For the drought-stricken farmers we pray for rain”.


Life Works

Published July 29, 2019 by helentastic67

Life Works

I have implemented many thing’s gradually over the years to make Life Work. Also, likely helps my brain be a bit happier, even though one of my processes requires at least an hour of my time on a Sunday every single week.

But I do it.

I have a spreadsheet a friend created for me, that I enter the details of carers I’ve had, from what time they started to what time their shift finished with me. The type shift it was (PC/HC/FP/Shopping/CA)

PC – Personal Care
HC – Homecare (also called General)
FP – Food Preparation
CA – Community Access

*Here’s the thing that should excuse my Service Providers, I even comment if they were late, didn’t turn up at all or the person I was expecting didn’t show and someone else did in their place and nobody bothered to call and tell me.

I guess, you might consider it part of my initial auditing system. It’s probably also, why a Service Provider I originally went with has never put my name forward to be called to be audited by the NDIS. Yeah.

One day, my Case Manager (Now called Service Co-ordinator) was on my computer while I was out of the room getting started on ‘something’ and I realized later I had been updating my spreadsheet before he arrived, despite it not being a Sunday.

After he left, I found sitting on my desktop a there was a screen-shot of my spreadsheet just sitting there. So innocently, um…

He had very obviously taken a screen shot to email it to himself and not thought to get rid of the evidence.

Did I mention it to anyone? Was it my fault? (not victim blaming) just being trusting. Obviously, I shouldn’t have had the file open or let him even on my computer. However, I don’t use them for any services anymore. I do not recommend them and if anybody asks, I don’t suggest them. Sounds bitchy, I am aware, however. Finally, the person who is always treated like a commodity, has the power. I can take my funding elsewhere.

This is why I’m often doing emails at 1am and going to bed so late. I wish my day ended at 5pm.



Published July 26, 2019 by helentastic67


I know, apart from the title of this blog being the acronym for my favourite swear words or word in this instance, it’s actually for ‘something else’.

I don’t understand this concept where I have to revisit ‘something’ issue/services, something over and over again and it’s still not getting done correctly. It is inefficiency at its absolute best.

You know, that old idea that if you work in an office and every time you deal with a certain issue or case (for example) you put a dot (.) in the top corner of the page. After a determined period of time (a month, a week?) if there are so many dots, you can’t see anything else on the page, then whatever method you are implementing is clearly not working and you should try something else.

Well, I have a new method or suggestion. How about PEOPLE DO THEIR FUCKING JOB! (C’mon, we all knew it would be in here somewhere, right)

For example

Arriving home today, just before 5pm, I respond to texts from my Plan Manager. (The intermediary that receives, approves and pays for all of my carers and services for my NDIS plan) They have received invoices from (for example) 2/1/19 – 2/1/19. Isn’t that the exact same date? Why yes, it is! For 100’s-1000’s of $$$$ and I need to tell them if they should approve payment. But how do I tell them if they should approve payment? How do I know if they are billing correctly if I don’t get and actual invoice?

SOLUTION: Call service provider for invoices. I get one of my ‘least favourite people’ (not my favourite) and because it’s so late in the day. The staff in billing have probably gone home. Prompting me to ask “Does no one work until 5pm anymore?”

Many places still have the 5pm ‘knock 0ff’ time or COB (Close Of Business) I imagine it’s a problem because I bet they still expect to be paid until 5pm.

I wish my day ended at 5pm. That’s generally when all my ‘housekeeping’ begins. Bring my washing in off the racks on the balcony. If not dry: rehang inside. (NO, I STILL DON’T HAVE A FUCKING DRYER), make dinner, filing, yes I do filing. East dinner, clean up, pack the dishwasher and some TV to keep up to date with who, what, where and when. Then emails, but I digress.

So, the woman on the phone gave me a number to call the following day. Was it so hard to get them to just post out my invoices? What? So, I have to ring again? And lastly, FU. In admin terms it’s Follow-up or to follow up.

I always seen to do a lot of this because people don’t know how to provide a service. Don’t get me started, I suspect to cover that another day.



Published July 12, 2019 by helentastic67


So, this will be a totally rare time I include the name of a business/company/service, I currently use. You will notice I don’t ever mention the name of my favourite café? Yeah, most of my followers are on foreign soil, so it’s irrelevant, but sometimes it’s hard enough to get a seat as is. That’s the only reason why though.

So, today I will mention one of the Care Providers I use, same reason as above, but it’s relevant to the story. This is also a likely example of how life has a tendency to go in full circles.

Ok, Circa 90’s when I worked in clubs with Malcolm (you can read about him here)


He had (just like any DJ of that era) Yes, Yes what was generally referred to as a toilet song. You hear a certain song come on. Don’t get in a DJ’s way. It’s usually a rather long song/track that is long enough to get to the toilet, the bar and back to the DJ’s booth.

It was usually this one

My Carers come from Mercy Health. They manage the homes where all the retired nuns live. There is a women’s hospital (Mercy Health).

I am by all means not suggesting they are the best, but I’m never going to bother mentioning the ONLY agency that didn’t ask for me to participate in the regular NDIA audit and provide feedback about their services. Am I correct?

So, anyway, my carer today was telling me where she had to go after me. Most of my carers visit the nuns. I hear about it all the time.

So, my carer today said she was going off to the Sisters of Mercy and everything after that went straight over my head.

Back in the 90’s when I worked in clubs, I was NOT GOTHIC. But sometimes, I wore more, shall I say, socially acceptable styles to not ‘offend’ the Goths. There was always a boy with this…..

It was the era after all and sometimes I would just outright wear my dungarees (because they were light and comfy) and other times I wore my bright coloured raver street wear.

I miss those days.

However, The Sisters of Mercy (the band not the nuns.) is touring later in the year. I’m debating about seeing them. The play at The Forum, two days after my birthday.

Today’s Lunch – 22nd May 2019

Published May 22, 2019 by helentastic67

Today’s Lunch

Good Mental Health Day

Currently feeling hungover and seedy from the migraine I had yesterday! Why people drink I do not know? To be continued.

Today a shout out to my friend in Texas which is being hit by a tornado. You are in my thoughts. Stay safe.

To my friend in Florida, you know who you are. In Australia, cantaloupe has another name and that is Rockmelon. Not a fan either. Maybe the hubby should eat it outside?

And to my friend in Norfolk, I’m wondering if you have received your parcel? I have not heard from you for a while.

Before I get to today’s lunch offering, I’m hoping you can help a friend to reach his goal? This is also an example of how the NDIS his failing its clients.

With permission, my administrator Noelle who does my blog without charge to me, has a son who at a very young age had a stroke. This led to a diagnosis of cerebral palsy (C.P.) He is now 28 years young; he has never driven a car but loves V8 Supercars. Under his previous funding he had this passion financially paid for. He had day trips and overnight hotel stays paid for so he could go to the races and mingle with the drivers and grid girls. It’s how he produces his blog and website www.williamsperfectride.com The NDIA would  clearly prefer him to stay at home and not follow his passion at tax-payers expense. While V8 Supercars and such is not my thing, helping someone get to do their thing they love, is my thing. Can you please help him? Every little bit helps.


Not doing any spoilers for the final season of GOT. Will binge the whole season on the weekend.

Now, after all of that done, today’s offering is another Ortolani quiche with side salad and my medicine!

Bloody NDIS

Published May 6, 2019 by helentastic67

Bloody NDIS

Part of the issue with disability and the world of funding, before the NDIS and since. Before the NDIS I had a Case Manager (further more referred to as a CM) and since the ‘new’ language, is my CM is called a Service Co-ordinator.

What’s that? You wonder who came up with that and how long it took them.

I recently changed SC (yes, Service Co-ordinator) and my first sit down meeting with her mum was here and mum and I kept using the ‘old’ language of CM. Every time my new SC corrected us. She apologized, but said she would get us in the habit of using the correct term.

I told her that was fine, because I would eventually stab her to death with a fork.

Yes, she laughed.

As has everyone else I’ve suggested it. They know I jest. But brief second their faces drain of blood is totally worth it.


Today’s Lunch – 16th January 2019

Published January 16, 2019 by helentastic67

todays lunch

Today’s Lunch

Well, I’ve survived another Christmas holiday period when my favourite cafe closes down and while I could go to dozens of cafes closer to home nobody looks after me like the place I’ve been going with regularity for 10 years and I think the regular staff might not have remembered me from before I developed my disabilities, but they certainly treat me like I’m a normal person and well, not asking questions of what I did to my arm, etc. It’s great to be back!

surviving christmas

I’ve already been a little busy organising things to run smoothly for the rest of the year. Chasing up Botox referrals and my new NDIS plan! YES! It’s been approved! I should have it by Christmas 2018, they said, my backside! It was approved January 10th and even that small delay pushes everything back including requests for carers and services. It all counts.  January seems to be a time not worth trying to achieve much as most of everywhere I need to deal with to get anything achieved is still in holiday-mode, or still on holidays. Might as well have a stay-a-way too.

everyones on holidays

By now, you likely all realise how bad my sleeping pattern is? If not, you are about to. Tuesday morning I’d just gotten to bed around 2.30am, took a while to get to sleep and around 3.30am heard increasingly off-putting sounds from Mika. When I went to bed Mika curled up against my leg on top of the blanket purring. So happy! 3.30am? Growling, hissing, smells (you know the ones) and at first all I could think was, “where would she find another cat to be growling at?” I got up to investigate.

sleeping pattern

It was hot! Did I mention we are in peak summer? Every day hot! Even over night! I called Mika’s name and closed the door to the study. She considers it her room. I move around inside without needing to turn on a light. There is enough coming in from the street. I don’t close my blinds. I see Mika standing at the glass balcony door. She is growling. What the? Looking out onto the balcony amongst the jungle of my plants, I spy a slim long-haired black cat. It sees me and scrambles up onto my large potted curry plant. It wriggles through the 2.5-inch gap and is gone. OMG!

balconey gardencalla lilly










I have mentioned I live on the second floor, haven’t I?

Not happy Jan.

Mika hasn’t been let out onto my balcony despite her curiosity at the water running across the tiles, from watering the plants. I would net the balcony if it weren’t for the expensive, and the promise to ‘make-good’ when I vacate and the drama of getting the body Corp to agree to let me net the balcony. Easier to not let Mika outside. She manages to have a view from the windows and there is fly-wire screens so can’t get out. She chases the little sun to get her vitamin D! Cats do have their priorities after all.

black cat

Now, time for eating and writing. I’m way behind on writing. Today’s offerings are, the chicken and turmeric salad & my standard medicine.
Nom! Nom! Nom! Nom!

chicken and tumericlatte













Published January 14, 2019 by helentastic67

ndis 1


One of these days Alice! One of these days! One of my work colleagues (still a friend) from fifteen years ago, used to say that to me all the time when I was giving him a bit of SASS.

one of these days alice

What can I say? I refer to him as my Gay Silver Fox.

grey silver fox

Anyway, I digress.

One of theses days I want to be able to tell someone how amazing it is to have the NDIS. If your new to my blog, National Disability Insurance Scheme.

how great is the ndis

I don’t want to utter the words. It’s an absolute shitstorm of red tape and the goal posts moving and it’s a friggin’ nightmare.

Why is it so hard?

Should point out the NDIS is the ONLY FUNDING I’ve had.

Wait, I had some one-off funding of $9,000 about five years ago, which is how I bought my laptop, iPad and iPhone and a number of other things.


When you first get given that kind of funding and a time limit of six months to spend it. (it must be spent on disability related such and such) You struggle to imagine how you will use it all.


But, nailed it, I did.

nailed it

But, seriously the NDIS!!!

seriously ndis

%d bloggers like this: