Normal

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Efficient

Published November 23, 2018 by helentastic67

Efficient

Efficient

In many ways’ life had prepared me to ready and deal with Life One-Handed. There were subtle signs when I was about sixteen and on nightly coffee/tea duty for the family. I couldn’t carry two mugs at once without spilling the left one. I didn’t have to carry it for 6-7 metres from the kitchen to the lounge, but spill it, I did.

Spilled coffee

Mum would watch me coming and say “Drop you left shoulder” had nothing to do with it really, but life went on. But there were those signs that screamed DO NOT WORK IN HOSPITALITY and occasionally, at work (I was a checkout chick at the Super Cheap Supermarket, so cheap they no longer exist) they put me on the left-handed checkout. No idea why, but there you go.

Left Handed

But until my diagnosis, when I was thirty-four, everything I did kinda moulded me to be very efficient with my time and energy.

These days, I leave the house just in time for lunch (by normal people standards) and I’ve made calls, done internet banking and gotten it “ALL” together.

Normal People lunch

Wednesday’s are a perfect example. I scooter to my last appointment, which is local to home (weather permitting), walk a small block to rendezvous with Young John. (I negotiate with him over breakfast exactly what time he can squeeze me in)

Young John taxi

On the way, I dropped a doona into the dry cleaners to be pressed ($6.00) Young John scoops me up and drops me down to Clifton Hill.

Today, I had to start at the Post Office to pay a few bills, I crossed to my favourite lunch location. Note; I do not mention it by name. Yeah, that’s on purpose. I have a few Melbourne followers these days and it’s sometimes hard enough to get a table and I do love the way they greet me by name when I arrive and when I depart. I mean, that’s what you get by being a regular. Right! Anyway, I take photos of lunch finalise my Wednesday lunch post and email to Noelle.

Favourite Cafe

Generally, I inhale lunch and my medicine (Latte) and maybe write a post.

Off I hobble to my chiropractor and if I’m early I will make a few calls, cull some emails, reach out to some friends as part of my “Good Mental Health Day” regime.

Good Mental Health Day

I see my chiro, then bolt for the tram, often texting whatever on the way. I arrive at acupuncturist get stabbed, eight times, have a little kip (that a bit British for a nap) then scooter home. Often stopping at a few local suppliers on the way.

Little Nap

Check the letter box, without getting off my scooter and picking up an empty box from the supermarket for recycling. (I’m a bit green, you see) The box also comes in handy to get things upstairs from the scooter shed to my apartment. I’ve even worked out a way to (once in the lift) put the box on top of the hand rail, put my leg against it so it won’t fall, using my ONE GOOD HAND, swipe my card and push the button.

Scooter

Once out of the lift and at my apartment door, I use the same technique to hold the box against the wall while I open the door. Putting whatever I’m carrying on the floor can be very stressful on my lower back and that’s the last thing I need.

So, efficiency is the key.

Efficiency is the Key

Red Tape

Published October 12, 2018 by helentastic67

Red Tape 2

Red Tape

People who don’t work or live in a world of disability don’t understand what life is like without.

Able bodied

Last week I spent some time with a brain injury group and the moment I sat down, I felt the clawing hands of desperation to get at my funding, to benefit the place I was at.

Desperate for funding

I mean, I walked in and all the members were excited because they were all waiting patiently for “stuff to happen.” Then the staff started treating me like I worked there. How many people are coming? Where is Neil?

Treat like staff

Admittedly, I live closer than Neil (who is from the Peninsula and runs a group called ‘United Brains’) There weren’t enough chairs and I was informed  there were “staff” in the meeting room next door and they were using all the chairs.

Staff

Call me crazy, but I don’t think much success can come of a business model that doesn’t prioritise chairs for welcoming visitors. That’s not even the thing that made me completely livid last week.

Welcoming visitors

But the ‘thing’ that annoyed me the most was when one woman stated the staff at the NDIA don’t come from a disability background, because they want to treat us like we are NORMAL.

NDIS

Grrrrrrr….. this is why I’ve had to explain what my AFO does, why I had medically approved shoes and why I deal with migraines all the damn time.

I’m pretty certain, I’ve NEVER BEEN NORMAL!

Never Normal

Normal does sound pretty boring.

Normal is boring

 

Today’s Lunch – 18th July 2018

Published July 18, 2018 by helentastic67

Todays lunch

Today’s Lunch

Good Mental Health Day

Let’s get back to the normal can we, a bit of calm. Is it too much to ask?

Being normal

Might be being a little dramatic, so luckily was here only yesterday since I was in the neighbourhood for my GP appointment. Did I have an Arancini? No comment!

Arancini

Today’s offering, not an Arancini, an Ortolani Quiche with side salad and my standard medicine.

Quiche

Latte

 

 

 

 

 

 

 

 

 

Cheers,
H

Happy hump day

Today’s Lunch – 11th July 2018

Published July 13, 2018 by helentastic67

Todays Lunch

Today’s Lunch

Good Mental Health Day

Well, that didn’t happen!

I always look forward to my Wednesday’s when I know what to expect and things come pretty close to how I imagine and I was particularly looking forward to seeing my chiropractor because of how I had been feeling on Tuesday. After my trip to the city on Tuesday, I was feeling seedy at the start of the day, no idea again how I can be hungover when I don’t even drink and wasn’t even near anybody else who was hungover. Yes, I know it’s not contagious and neither was I.

Tuesday

I had my monthly committee meeting of the self-advocacy group I’m part of. Guess what other monthly event it coincided with? Hence the feeling like ‘death warmed up?’ (Subtle enough?) When I go to the city I do a lot of walking and despite feeling like a zombie I still managed 3000 steps. Got home by 3 pm and did a Face-Plant! Rolled over around 4pm and felt motion-sickness settle in.

Death warmed up

Wednesday, everything was going to plan, was up and showered and dressed ready to enhance a small breakfast, harass Young John to ask him to scoop me up and deliver me to my favourite cafe in Cliffy Hill before getting to Chiro just after 2pm, when I wasn’t feeling super-hot!  Ow, for those not familiar with when it’s good to see a chiropractor? Anytime is good, if you are not 100% even more important. So, I arranged with Young John if he could transport me down a little later, in time for Chiro? In the end by 2pm, I was back in PJ’s and back in bed. Eventually I had a cuppa T and a banana muffin for ‘dinner’ around 10pm, and it was the only thing I had all day. Eventually, Wednesday ended and Thursday began and while still feeling particularly seedy I’m again in my PJ’s, lucky today is my cleaning/admin day at home anyway. Have a lovely carer here today and I shared with her another banana muffin and cuppa T, my breakfast, her morning tea.

Feeling seedy

At least while someone was here my bread and butter pudding that was soaking in the fridge since Monday afternoon could get baked. “Which half do you want?” (She looked at me to see if I was serious) Have I mentioned there are a few things that when I make them, I don’t make single serves? I package, freeze, post to my administrator and give away. I’m a classic Nona. “You’re too skinny!” So, here is today’s offering straight from my oven. No, you cannot have the recipe. And while, obviously not being a standard mid-week foodie post sometimes it’s important you are aware I’m not always in the best of health and lack of sleep really takes its toll.

Bread and Butter Pudding 1

By Friday I’ll be able to pull it together again for one day only and rather than neglecting my commitment of 3 posts a week, please take this (slightly delayed) post as a near enough is good enough.

Friday

So, there are times I’m not feeling very well at all and I’ll still pull it together and power on through however, because people only see me when I’m feeling ok it’s assumed I’m always ok and I’m not stay tuned as next week I will be back to normal postings.

Not always well

 

Cheers,
H

Selfish

Published June 1, 2018 by helentastic67

Selfish

Selfish

I have dilly dallied about writing this post for some time because of the obvious slanderous nature (note title) of the message I want to shine the light on.

Shine a light

There are people who have a disability and they travel, they work, they shop, they enjoy life as a consumer of all good things. Yet, they will bitch, whinge and moan (maybe that should be the title) about how hard they have worked to appear ‘Normal’.

Normal

I know in many ways I appear normal and when I am forced to explain I actually have a brain injury, they are surprised.

I am normal

Normal

Published May 14, 2018 by helentastic67

Normal

Normal

Lately, I’ve had a new batch of carers come to me for a variety of different services. They have come from different cultural, religious backgrounds and different ages and beliefs and education.

Different

And again, here I come explaining some common-sense stuff, some manners (you heard me) and that it’s not sad or against God if someone is Gay.

Common Sense

I’m not Gay, but seriously I didn’t survive this long without having Gay friends. But it’s weird that again a new batch of carers and I have to be the one to explain what I accept as normal is actually ‘NORMAL’.

Normal is normal

If I’ve got a guy in the peripheral of life who is my friend, values me for who I am, is the right amount of bitchy, right amount of foody talk and a decent degree of understanding and empathy. What do I care they are into penises? And not V-jay jay. It makes life easier that I know they’re not trying to get into my pants.

Gay friends

They obviously appreciate me for the other parts of me. I think I’m lucky for my Gay friends.

Oh, yeah the manners part.

Good Manners

Sometimes I have carers who just help themselves to things, like tissues or rechargeable phones (WTF). Some girls walk through the lounge, grab a napkin (and I’m watching this as I follow them) they scrunch it up and throw it in the kitchen bin.

Seriously, I’m more than a bit “Green” and I’m not made of money.

Not made of money

Today’s Lunch – 2nd May 2018

Published May 2, 2018 by helentastic67

Todays lunch

Today’s Lunch

Good Mental Health Day

Ok, let’s see what I can squeeze into what used to be my standard traditional Wednesday lunch post?

MRI results, 5000+ steps in a day! What? You heard! And Vox pop! Visit from me mum! (Yes, on purpose) I love my mum! Fish curry and maybe a trip to Bunnings for picture rails because living in an apartment that’s not as old as I am means I just put picture hooks up everywhere to hang my prints.

MRI

You know you have not officially moved in until you have hung your artwork! I am attempting to convince my landlord I put up picture rails and paint them to match the walls, so rather than make good when I move out, I make better and leave it as is.

Artwork

Have also heard of a potential 12-week-old female fur-baby looking for a new home. So, I guess I might be onto my property manager again. Anyone sense I’m not adverse to pester-power? I mean, if it works for kids, why not me?

New fur baby

So, today’s offering? Well, didn’t get to my fav cafe today, so lunch!

Empty plate
Oh, yeah. I guess I’ll circle back and give you the results of last week’s MRI’s? They are normal! Normal? Who/when/why/when have I ever been called Normal? Normal always seems over-rated!

Being Normal

Yeah, my brain, it’s still up there! (Ba da boom!) brain injury humour, my mum did not laugh and my spine (which I wanted to rule out a second disc-Bulge) was rather normal with the usual degeneration, that’s nice isn’t it? So, for the mystery pain and other issues the mystery continues.

Mystery pain

And I did 5,000+ steps yesterday! And yes, my legs hurt! Both of them. Looking forward to seeing my Chiro today where she’s to put that damn rib back in again and sort out this eternal migraine, when does it end?

Chiropractor

Cheers,
H

Happy Wednesday

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