Not my best

All posts tagged Not my best

Inclusion

Published November 24, 2017 by helentastic67

Inclusion

Inclusion

A few months ago, mum and I went for a drive to visit my sister and do lunch. My sister in recent years has started being a Carer in her part of Victoria. It’s a completely different clientele in her area. I imagine she was led to believe she would have plenty of work under the NDIS.

  1. The NDIS is for under 65-year-old age bracket.

Her clients are largely over that age bracket and self-funded retirees.

Anyway, in an effort to ask her about her new job and bond, mum asked her about any interesting stories.

Her story goes like this;

She received a call to see if she would take an elderly man grocery shopping. She wasn’t prepared to take him out in her own car as the previous time he had continence issues and the work vehicle. She asked if he still had this issue.

Incontinence

She didn’t hear back about this shift for the client. I can’t imagine it would have been easy to problem solve this issue. To broach the subject with the client or their family member in a way that returned to the gentleman a level of comfort and dignity for better health.

Dignity

I think, I embellish to make her story more interesting.

Now mum has never asked me for interesting stories, but I volunteered one all the same.

One of my Carers arrived one day and I think it’s rather telling of my rapport with my Carers that she announced her arrival with a question.

“Do I smell like……?”

Do I smell like

Clearly the word that is missing is the punchline to this story, so you will have to keep reading….

This Carer went to an elderly lady with some dementia, she works with many clients with dementia and she is very loving and caring and respectful in the way she does her work.

While with this particular lady she went about cleaning around her while she did the woman’s personal care (or her shower).

She noticed a small mat on the floor in front of her armchair, that she sits in. It was covered in crumbs, so she picked it up and took it outside to give it a shake.

It was one of those mats with a rubber backing. As she shook it, a wave of urine came back up at her and splashed all over her.

Smells like pee

We guessed the word there?

Do I smell like urine?

That’s correct.

The moral of the story is; A good carer will always carry a change of clothes in their car and no, she didn’t smell of pee…

Friday look

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Today’s Lunch – 22nd November 2017

Published November 22, 2017 by helentastic67

Todays lunch 2211

Today’s lunch

There is always something instantly therapeutic about my Wednesday routine.
No Hellonwheels today as my scooter shed is not up yet and she is currently without power.

She is not the Mothers Cat in this case it’s my mobility scooter.

Today’s offering,
Zaffarino Arancini with the side salad.
(Mint, peas with saffron rice)
With Sicilian chocolate cannoli
(Breakfast)
Medicine!

AranciniChocolate Canoli

 

 

 

 

 

 

 

 

 

Latte

And when I walked in I was greeted by this:
And it’s too soon!

Christmas decoChristmas deco 1

 

 

 

 

 

 

 

 

 

Christmas deco 2

Cheers,
H

Wednesday

Hot off the Press – 20th November 2017

Published November 20, 2017 by helentastic67

Hot off the Press 2011

Hot off the Press

OK, by the end of this post! Watch how I smash shout outs to my Little Red Truck guys, me Mum (Yes, on purpose) and my carers and a few special time-poor friends who never fail to deserve my thanks!

Monday! The start of the big moving week. I take possession of my new home. An apartment on the second floor of a six-story building. I’ve never done such high density living and I have paid my first month’s rent but was given grace to get bond assistance. Made a call and found out I didn’t get it. The whole process of being able to keep a roof over my head is the most soul-destroying balance of proving I can afford the rent on my income. Rent must be less than 55% of my income, but I had to prove I earn less than $48,000 yearly. (What I could do with that!) and apparently, I earn too much to qualify for bond assistance! It’s fucking ridiculous……….

Rental assistance

Now I have to find money for bond and to pay my removalist. I know I haven’t mentioned, but in my family, works on guilt. My mum travels often to do whatever needs doing no matter how financially strapped she is or how unwell or exhausted she might be. It’s a true testament to a mother’s love. My father doesn’t. He previously was able to contribute a little financially to my staying out of a group home that would have me go crazy! Or a nursing home, same result! My younger sister has actually assisted with some short-term loans, which feels so wrong. And my older sister who lives the closest to me will, help on the day.

Family help

By the end of Monday, my mum had managed to have my father help me with the bond and the removalist costs and I think he has disowned me because he feels I cost him too much money. If you can’t shake the funding out of a tree for people like me? Shouldn’t I be able to call on family?

Tuesday, moving day woke at 5.30am, at 7am, just gave up on sleep and got up. Didn’t stop all day. Everything I picked up was too heavy but I managed to stop myself from lifting my slow cookers or my LeCruset pot! (So heavy!) My moving guys came in the form of the Little Red Trucks! Two trucks by the names of RZA and GZA, (members of the rap group Wu Tang Clan), and Lenny and Carl (apparently the lovable duo who hangs out at Moe’s Tavern on the Simpson’s. My guys in red on the day were Dylan, Rory, Henry and Rohan.

Little Red truck

I first used Little Red Trucks was two moves ago when the guy I booked (the only person who is primarily booked by low-income people and funded by the NGO’s) stood me up by six hours. By the time I heard from this guy he told me he had been to the hospital he was so sick, by that stage I had not wanted to hear from him, I wanted to hear from his next of kin to tell me he had died! I felt it was the only reasonable excuse for not turning up!

When I first used the Little Red Trucks, they only had three trucks. Two of the trucks were called Hall and Oats, Salt n Pepper and I can’t recall the other. The drivers are all in bands, so it provides them with a regular income from a day Job. The first guy I dealt with years ago was also a carpenter. The trucks are traditionally named after musicians who have influenced them. I don’t get the Simpsons reference, but anyway. Having 4 guys made it very quick and efficient!

I hope you are aware, I’m a real ‘housey’ kinda girl so I have a lot of things. On the day, as I was going from a three-bedroom unit that felt like a house, to a two-bedroom two bathroom less than 5-year-old apartment. So, down-sizing!

I issued a warning early: Any mention of ‘she has too much stuff’, it’s too small, it’s not going to fit! you owe me a dollar. I needed to set the standards early. My older sister arrived on time an hour after the guys and She pulled the last of everything all together. While my sister was demanding where some last-minute things could or would go, I introduced her to one of the guys, it went something like this, I was going to mention someone looking a bit like me but grumpier would arrive soon. She let out a “Hey!”, I turned to Dylan with the prosecution rests. All in good fun!

https://littleredtrucks.com.au/

Wednesday, everything hurts. Just everything, worst case of OCD ever. (no disrespect for people who actually have OCD) You know, you’re looking at an area in your home and think I’ll just move these few things and you have to find ‘something’ and you get distracted by the other ‘something‘ and I managed to find my immediate bathroom items, very handy.

OCD

The day went like this – moved some things, unpacked some things, did some washing. Left the house in shorts! (So, I don’t expose my legs to the general public, nobody needs to see that!) I offered my chiropractor, that she could make one comment! Then, we would never speak of it again!

Wearing shorts

The new apartment is starting to come together. But I still haven’t found the TV remote and that’s proving to be a needle in a haystack! It’s now late and I might struggle to get to midnight. I’m so tired and everything still hurts.

Thursday, had a carer for 5 hours and Sana and my mum really pulled it all together starting to look like a home. Had my first PJ day, since I’ve had a crappy cold for weeks now and haven’t had time to even stop.

PJ Day

Friday, had my young carer Jennifer again. Oh, how I’ve missed her! (She was on holiday) Managed to vote! (So I don’t need to go out on Saturday!) Shopping, just the basics. Late Friday night my mum left but not until she managed to give my old landlord an appropriate serve! My mum is not even a bit Italian, but she managed to tell him to make ‘this go away! And told him how dare he ……….xyz! (Just trust me you don’t want to know!) She got the biggest hug for that.

Friday

The weekend! Didn’t get to go off grid, hardly stopped unpacking, barely did any TV Catch-up! And haven’t completely nailed this 1am curfew to get to bed. Last night, it was practically 2am! But I’ve decided the foodstuff that won’t fit into the pantry I’ll just have to eat and I’m working on my bookcases.

Weekend

So, shout outs to my Little Red struck guys again. Dylan, my mum, my older sister Jo-Bunch! Younger sister A-Super chook, Tamsin and I help for tech support and Silvia for giving me the term, Sentimental. As in I can keep this T-shirt I’ll never fit into again for sentimental reasons and her partner Sam for assisting with my scooter shed. Countless carers who have had a piece of the puzzle.

Thank you

While, I’ve still got the cold, Mum and Jo got it eventually. Caring is sharing! I haven’t had a migraine! Winning!
Stay tuned for photos…….
Cheers,
H

New week

Deaf Ears

Published November 17, 2017 by helentastic67

Deaf Ears

Deaf Ears

In Memory of Jamima.

Pointless things to say and your cat. I love (note when I hear the opposite) when parents of children argue that being a parent of a fur-child is not the same.

Gave Jamima her three-monthly worm tablet last night in a rather expensive tin of food. Twenty-four hours later, it’s mostly still there!

“Come on, Eat your food”

“It’s got your medicine in it”

“You will feel better – I promise”

“It cost mummy a lot”

“There are starving kids in Ethiopia”

OK, I didn’t really say that one…

Worm tablets

I guess this is why I buy three of the worming tablets at a time. The man in the shop, warning me not to poison my cat. Never fear, not much chance of that.

Usually the first tablet goes down a treat, three months later when else her next dose she eats some of it. A week later I’m trying again, placing another of her favourites. Again, barely touches it.

I’ve tried not feeding her more wet food to encourage her to eat it but all else has failed.

Open to suggestions…

Cat medicine

Crazy Lady Hormones and AVM

Published November 15, 2017 by helentastic67

Crazy lady hormones

Crazy Lady Hormones and AVM

This weeks “Today’s Lunch” has been postponed until next week.

This post is going to be exactly what you imagine it will be. So, if you are a guy (not sure I have many male followers to worry about) but if you’re still reading, strap yourself in!

My periods started at the usual time as most girls in my early teens. What we never realised is that those special blue pills that stop us killing men? (commonly known as Naprogesic) are blood thinners.

You add ½ a dozen of those, every month. Something probably happened more often than I realised, but didn’t realise exactly what, it meant was that in a perfect storm I was probably lucky I didn’t have a stroke.

Blood Thinners

One morning not long before my diagnosis I recall a bitterly cold morning, getting up to go to work. Conveniently a day Aunt Irma (IT Crowd reference) was coming to visit.

Aunt Irma

I conveniently had to wash my hair that morning and being so cold I made sure I had it hot.

Turns out water also makes your blood thin. When I had more blood in and around my brain, than normal I would get dizzy and I mean I was dizzy, I recall drying my hair a little with a towel and putting it up (in a bun that I still wear as my style) I recall drying and putting pyjamas back on, setting my alarm and going back to bed to sleep it off. I woke a few hours later to restart my day.

When I was finally diagnosed, I was told emphatically NO MORE BLOOD THINNERS!

After several years on and off the steroids (Dexamethazone) for brain swelling, sometimes my period just didn’t come for 6 months or more.

About 4 years ago, I actually went on the pill, because once a month I was an emotional mess. Rather than the previous five months, I just wanted to kill someone. I traded up to a whole day where EVERYTHING upset me EVERYTHING MADE ME CRY.

Crying

Get up, get undressed, cry! Get in the shower, cry! Get out of the shower, cry! Get the point?

Not let Helen take her second coffee in the cinema when she’d previously taken her first coffee in. Cry!

Have I mentioned, you don’t mess with me and coffee? No seriously!

Coffee 1

About a year ago, I came off the pill to find out if I was menopausal. Yeah, that word. I was only 43 years old and no I wasn’t and still am not, to my knowledge.

Menopausal

Turns out it was probably a good thing I didn’t meet my soul mate (yeah, I believe in that crap!) because I might have wanted children. I always imagined I would, but if it had I might not be here at all.

Soulmate

When you’re pregnant ladies. (presuming only the ladies kept reading) your bodies blood volume doubles. My AVM would not have coped. If my child had made it (there has been no child) I might not have made it.

So, babies, right? Not for everyone.

Privilege not a right.

Anyway, a lot of background to get to my point!

Had a bit of a tummy ache this week. Would have been mistaken to think it was Aunt Irma and except she visited last week for all of about 12 minutes. Felt that way anyway. Think I sneezed a few times and it was over.

Meanwhile the app on my phone last week had told me, it was due in six days, on the 2nd February, 2017 and its currently early October.

Don’t know when you’ll be reading this but my point ABI/AVM/Crazy Lady hormones.

Not happy Jan.

Oh, and with the no blood thinners, it’s hard, I just upgrade to Opiates – Oxy Norm!

The End…

 

Hot off the Press – 13th November 2017

Published November 13, 2017 by helentastic67

Hot off the Press 1311

Hot off the Press

So, Monday. I can now confirm I have a cold, it’s the second this year, not happy at all. I guess, a week ago I found about four boxes of tissues in the cupboard and thought rather than suffer a lecture from mum when they had to be packed, I’ll just get a cold use all the tissues and go buy more! Had to do the crazy admin and phone calls to arrange disconnections and reconnection. Locked in removalists and a cleaner and growled at a few people to encourage funding to pay for things. In full packing mode and feeling like the worst case of OCD ever!

Have a cold

Tissues

 

 

 

 

 

 

 

 

 

Tuesday, had three lovely volunteers to help pack, it’s all coming together. Visit at the end of the day from Michael, who has helped me with my never-ending battle to empty my freezer and I gave him a two-course meal for dinner, all while still dealing with this cold.

Volunteer

Wednesday, I hope you caught my Foodie post? https://hellonwheelslifeonehanded.wordpress.com/2017/11/08/todays-lunch-8th-november-2017/

Thursday, I’ll just point out the last three nights (just give it to me) I’ve gotten to bed by 1am! Winning! Early start at 8am, to get out on the povo-trail. (Poverty: shit you do when you’re poor) my Josh was to get my first month’s rent. Tick! My bond, (still to happen) and I have $300 towards my removalist costs. To be continued. ……………

Poverty Trail

Friday, can’t believe I got here. My first service provider (where I get my carers from) has managed to inhibit my ability to be independent. Ironic since it’s one of their core-messages of why you would want to choose them. (anyway, I have no words to describe how I feel about this) I’ve requested carers twice this week and not had them provided. (I wonder who polices the Service Providers) Packing is coming together, even got out on Hellonwheels today and came home with six more boxes. So many things this week I’ve put into place only to ask for help to pay for my cleaner, or whatever and rather than come to the party I was given more work! Gggggrrrrrrrr………. Even given new information, would have been useful to have before I had to organise these things myself. I have organised everything for the move, including volunteers to help move some of the more delicate breakable things so I can make it easier for my removalists.

Packing

The first agency quarantined some of my funding thinking they would be providing most of my supports. As they started to struggle to do this, I moved some of those required services to the second agency but the first agency never released that funding making the other one, then two agencies run at a loss to keep me receiving services. Have I mentioned how I hate having a disability makes me a commodity? I’m feeling like I’m being milked, but under serviced. That just got weird didn’t it?

Carers

So, my last weekend at address 1/111 and there are not enough boxes still. Only a few more days until I move and I’ve started getting plants to go to their new homes and my bonsai to Mr Miyagi, to be re-potted. They will return once I’ve moved.

bonsai

Bonsai 1

 

 

 

 

 

 

 

 

 

Late Sunday night mum arrives and is pleasantly surprised how much is done and I’ve still got the damn cold! I’m coughing up a lung now so I’m far from thrilled. Let’s see how well the next week goes.

Cheers, H

new beginnings

Today’s Lunch – 8th November 2017

Published November 8, 2017 by helentastic67

Funny-Lunch

Today’s Lunch

I confess to say food doesn’t motivate me today. But, you know its fuel for the body and all that.

I’ve got a crappy cold! (Again!) this one is likely stress-related. As I’m moving house next Tuesday……. Today’s offering is a mushroom and sundried tomato Arancini with a side salad and medicine.

Mushroom ArinciniLatte

 

 

 

 

 

 

 

 

Crappy cold

Apart from my cold, I have the added bonus of a rib out.  That’s going to-be fun when my chiro puts that back in and sore tummy muscles. (Side-note: there is no muscle memory in that region!) and an added disability today…….this is a great way for able-bodied people to feel an instant deficit if you are game?

I’m a big texter and I’m a thumb-texter. Today, I’ve a Band-Aid on my thumb! It’s a new form of torture………

Texting

Lastly, feeling very-frustrated my case-management agency is undoing all my organizing and not helping me.

Frustrated

I did however hear my new NDIS funding has been approved! What that actually means is a completely different story.

Cheers,
H

Wednesday

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