questions

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Somebody

Published May 3, 2021 by helentastic67

Somebody

There are times I sit on the writing a post until I can do it justice. This is about both my absolute horror at disability service and about why I appreciate and need to be treated like a normal person. Or at least like I might be a working, contributing human being in society.

For want of a better name, I’m calling this person “Somebody”. Somebody was a Case Manager I once had. Somebody wasn’t a great Case Manager, but she/he was a reasonable person and I think she/he knew they could share with me their shitty work day, because I would emphasis with both them and the client.

Somebody had an appointment with another client the prior day. I imagine it was a lot to deal with as they were still processing. She/he had gone to see their client who lived in a group home.

They walked in expecting just their client and instead was greeted by the CEO of the company, the site manager and about four other people that prompted me to say ‘Got it’. Top heavy management, sure. Oh dear, this did not sound great, then Somebody paused, seriously debated if she/he should tell me. She/he shouldn’t have, but she/he did and I gave them the grown-up empathy and opportunity she/he needed and wouldn’t dare name or shame them or who they work for. That said, some stories have to be shared.

Somebody walked into this meeting unaware of why they were there. The day before Somebody’s client took a bite (I repeat, a BITE) out of a carer’s thigh. Ouch, sweet Jesus Nelly. I expressed my terror. Then my barrage of questions/statements.

“What was the carer doing?
Presumable the client didn’t like it?
Was the carer not reading the client correctly?
Was the client not being listened to or heard?
The carer must need more training?
What was the carers thigh doing anywhere near the clients mouth?
The staff need more training or better staff?”

Somebody looked at me surprised. I’m sure Somebody wished I had been there to quick fire my questions. I hope your advice, the result would only have been to move that staff member to ‘easier’ clients and to dumb them down with stronger meds. I refer to that as ‘bombing’ them out. Which is also why I don’t reach for pills anytime something hurts or I’m given a script.

Lastly, this shit is why I blog! If you got this far, please hit Like and share.

Groundhog Day

Published December 30, 2019 by helentastic67

Groundhog Day

It fucking happened again. I know I started with my favourite word, but you shouldn’t assume there will be lots in this blog post. I’m just emphasising the fact that it’s like a new round of people are coming into my sphere, (didn’t know I had one like I’m a planet, right) but every now and again, I’m somewhere I wouldn’t normally be and new people will ask me ‘what have you done to your arm?’ Every fucking day, I leave the house and I generally mention it’s because of my brain injury, because it’s the perfect way for people to learn sometimes Brain Injury walks and moves amongst them like a normal person.

Sometimes, brain injury looks like this hot mess that I look like. So, I tell people, depending on their response I might, no will follow it up with my standard follow-on that my brain injury is NOT SELF INFLICTED.

Because, the second assumption is that all brain injuries are and I will describe a little more info. So, it’s understood how I have had my AVM (Arteriovenous Malformation) all my life and didn’t know it until I was thirty-four.

Then there’s the next round of questions. Well intended, sometimes the way I respond, I hope they read my mood correctly and stop asking questions.

Maybe? No! Don’t be ridiculous.

A few weeks ago, at my favourite café where I go because, well I love it. The staff have gotten to know and I don’t get treated like a weirdo/freak and I don’t get the questions about ‘what have you done to yourself?’

I was in the room, I’m a permanent fixture. Two men came into the room and asked me straight away. The question, don’t ask me to repeat it. And I did in layers of –

  1. Brain Injury
  2. Not self-inflicted
  3. Had it all my life, just didn’t know
  4. Bullied in a stressful work environment

After he had taken all of this in, I realised I’d disclosed way more to a complete stranger than I normally would have and it had all happened so naturally, I hadn’t stopped (he didn’t look horrified), but I felt a little raw and vulnerable.

I had a moment of weakness and almost cried. He obviously realised and he leaned forward and grazed the back of his knuckle against my cheek and told me “You’ll be OK”

And I was really surprised. Now, I don’t want to need to remind people however, if you made it this far? Please hit “LIKE”

Hate feeling needy, but we all have needs and, in this case, we all need validation.

Stupid

Published December 17, 2018 by helentastic67

Stupid

Stupid

Now, it might surprise you to know that I get asked a lot of stupid questions. I’m generally pretty good at dealing with the ‘stupid’. At times I disappoint myself, I’ve not been able to shut down the ‘stupid’ with my first answer, so when the ‘stupid’ continues if in public, others will usually witness my frustration before the ‘stupid’ person does.

Stupid questions

Fifteen years ago, when I was working and asked stupid questions when on the phone, I would bang my phone on the surface of my desk several time. Next time it happens to you, try it.

Smile to your face

It really can bring a smile to your face.

If the person on the other end of the phone asks what that was for, you can just respond with “That was a stupid question.”

Thats a stupid question

I digress, I wear a badge on my cuff and collar from Vision Australia that CLEARLY STATES.

Low Vision Badge

“I HAVE LOW VISION”

And this is the state of the ‘stupid’

A guy on the tram today, presumed it meant I worked there. Which I’ve found is common because people are idiots and don’t read.

Idiots

I always respond to this misassumption that they should read the badge. This doesn’t mean they bother to read it then, but still, this guys level of ‘stupid’ was next level. He wore glasses, but that’s not really relevant to his question. I imagine he is unaware of what Vision Australia actually does.

https://visionaustralia.org/

You don’t go there for eye tests or diagnosis. The health of my eyes is perfect. However, it’s what’s going on in my brain with my AVM that has permanently affected my vision loss and it’s not coming back.

Low Vision not good

Now you might think the ‘stupid’ is over, but no. He must work in the call centre (no offense to anyone that does) because he then asked;

“If Vision Australia could change just one thing, what would it be?”

Now, that is stupid isn’t it? I told him I wasn’t going to answer it.

Stupid is as stupid does

 

Professionalism

Published July 13, 2018 by helentastic67

Professionalism

Professionalism

I confess to say, I don’t always come across like a complete num-nut, which is the assumption that all people with brain injuries can’t think for themselves, can’t process or understand and definitely can’t communicate or participate in social or business or “whatever” family?

Num nut

A few weeks ago, I rang an organisation that deals only with people with brain injuries. I’ve had some dealings with them in the past, however as their primary business/funding, is people with drug or alcohol ABI’s, my dealings have been limited.

ABI

As they also do some ‘housing,’ I’ve recently put in an application. I then attempted to follow it up. I rang, left a message, more than a week ago and when I rang, I came across so professionally on the phone, they thought I was a Case Manager. Ironic, much!

Case Manager

I was a little surprised and startled, I took my time answering her first question, “was I the client?” To which I did answer ‘Yes’, but because she didn’t hear me. She hit me with a barrage of questions. So, I went silent and she thought I’d hung up on her. Now I know I have a brain injury, but she works at an ABI company and all the people she would deal with on the phone could be in some way affected by an ABI.

Too many questions

So, at times, please one question at a friggin time.

Questions

To be continued.

12.53am

Published May 3, 2017 by helentastic67

12.53am

12.53am

So, my day is still going! I’ve been writing for a few hours, inspired to write about the day and while on a tangent getting through the backlog that has been plaguing me.

creative-writing-final-meme

I write when inspired and I write when I’ve got stuff to say and it all seems to come together at the right time.

Feel free to ask questions and I can see if I can get to them.

Asking questions

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