Sleep

All posts tagged Sleep

Hot Off the Press – 19th May 2020

Published May 19, 2020 by helentastic67

Hot off the Press!

Sometimes, blogging about the here and now and the most important reason to blog gets lost in all the detail. So, being careful to consider someone else’s privacy.

Imagine being 29 and all you want to do is survive, to thrive, with a pre-diagnosed medical condition, you have a stroke!

Again, not my story, but a friend.

After over a month in hospital, being tested for everything including CoVid19 and with no answers. Sometimes, this is the way. No answers.

Being kept company by parents, day and night so nurses give the best care. The same care they would give to anybody without disabilities or pre-diagnosed medical conditions. No matter what they are. A short stint in in-patient rehab, where physio appointments went cancelled because of the low expectation of recovery. Parents needing to still be there to advocate for their child to make sure they get what they need.

What to do now?
Well, the hospital and the patient, to be fair want the patient discharged ASAP. The patient obviously very keen to be home where his parents can arrange the best for their child. Well, adult child and the parents could get a reasonable night’s sleep, to continue to love and care for their child as only parents can.

So, in a perfect world, a caring parent/advocate/carer applies to the NDIA for a change in circumstances, so the patient can go home. Extra carer hours can be utilised to provide adequate care in the home. Plus, some much needed respite for the parents. And sufficient physio and Occupational Therapy to return to at least the bare minimum or return to the same level of independence my friend had in the comfort of their wheelchair, not so very long ago. Is it too much to ask? Is it even possible? I guess we don’t know until my friend is in the best environment for this to happen. Which is clearly at home.

They can’t go home until these things can happen.

I don’t know about anybody else, but I don’t have the funds to pay for these kinds of things, so the NDIA, a government organisation should prioritise these things, no? Let’s see how long it takes for my friend to be able to go home.

And lastly, I’ll leave you with this great quote that I only know about because a great Aussie disability advocate used it.

Disability is seen this way………
“The soft prejudice of low expectation!”

Please share through your networks to show your support. While these stories go untold people get away with providing sub-standard care. Let no single person with a disability be left behind!

Cheers,
H

Sleep

Published January 6, 2020 by helentastic67

Sleep

There is never enough when you have a brain injury. Never enough. Add, crazy bitch hormones as I call them, the Peri-menopausal hot flushes, sliding into the pause.

More sleep, much, much more sleep.

But, finally following up on my visit to the clinic. Yeah, I’ve been busy and am now circling back to the thing. I had to go to an older building that is on the same block as the St Vincent’s Hospital in Fitzroy. Seen this entrance for years wondering what was in there. Well, now I know.

I went in a little early, off Nicholson Street and was shown to my “room”. Mum had been to a sleep clinic in the country and told me it would be like a self-contained hotel room.

Mine, no it wasn’t. The room had a single bed – expected. An armchair, nice place to put suitcase and sit to take off shoes and AFO’s – check. A small hand basin, oh nice. Where was the bathroom? Apparently, there were only three of us in the inn that night, me and two men and I got the room closest to the ‘Men’s’ bathroom.

Super! Where’s the lady’s bathroom? Oh great, no shoes or AFO’s. I’ve gotta go for a nice long walk to the lady’s bathroom. Past the waiting room, finished with a big vinyl chair in Orange.

Now, I’m a kid of the 70’s, we had an orange car.

And an orange kitchen bench. (Yes, mum! I hear your voice, it was Mandarin) Sue me! I’ll let you be the judge.

The Doctor who was showing me around was the same age as me and we bonded over the orange of our childhoods.

You know those moments you meet people and if you meet them in completely different circumstances, you might become friends.

We bonded over the fact that neither of us live with other people. I bluntly stated “I fucking hate people!” She laughed and said I was her spirit animal.

 

 

Connections

Published November 3, 2019 by helentastic67

Connections

That moment when you realise you didn’t sleep with the right people when you worked in clubs, back in the day. To be fair, I didn’t sleep with anyone back in the day. Well, not no body, but boyfriends. Clearly, not the right people.

Today, I attempted to share my administrator’s son’s Crowdfunding page to people I used to work for, back in my club days. Said son has CP (if your recall?) mentioned on the 22nd May 2019.

https://hellonwheelslifeonehanded.wordpress.com/2019/05/22/todays-lunch-22nd-may-2019/

And you guessed it. Deleted!

FUCK I HATE PEOPLE!

I made people rich, drunk and got them laid. What did I get for all my clean living? Screwed!

I hate people.

 

Wake Up Dead

Published November 1, 2019 by helentastic67

Wake Up Dead

Is it just me or am I crazy? (don’t answer that!) I get that I have a lot of migraines. I get that I would rather sleep to fix my migraines than take pills. I’m not saying I’m completely against drugs. I’m just suggesting my first option is always sleep, chiropractor, sleep, then drugs.

However, when I go to bed at 7pm, it’s fucking serious. I don’t even think I want to go to bed that early as a baby. It’s even more serious if I send a message to family to ask them to check on me in the morning in case, I wake up dead.

This generally gets a thumbs up, just saying. Is it normal that family don’t think to follow up?

Anyone?

This happen to anyone else?

Please Comment

 

Sleep 24/7

Published September 20, 2019 by helentastic67

Sleep 24/7

Now, I know, I know, I’ve likely written other posts about this natural remedy to fix all “sleep”.

We are told there are many things in life that makes us require sleep at different times.

Babies need more sleep.

Grumpy kids need more sleep

I distinctly recall a day when my mum sent me off to bed for an afternoon kip.

 

Today’s Lunch – 18th September 2019

Published September 18, 2019 by helentastic67

Today’s Lunch

Good Mental Health Day

Really struggling to keep on top of things at the moment. Failing at so many things and feeling sad about it. Allow me to list but a few………

Failing at my emails…..
Failing at my followers emails……..sorry. Very, very sorry. Still!
Failing at getting to bed at a more reasonable time.
So, failing at sleep clinic!
Failing at being a good friend, so I’m told ……….
Failing at getting my shit done so I can maintain some semblance of a pain-free life.
Or at least making it look like I’m not failing at life.
Failing at keeping anxiety and depression at bay.
Failing at not swearing at my GP appointments.
Said Fuck 7 times yesterday! I asked.
I thought I had been holding back!

Felt like such a zombie yesterday I had a double-shot latte with lunch. I had a brain grain salad. It is very good.

 

 

 

 

 

 

 

 

 

Today’s lunch, a Moroccan chicken salad and instead of my standard medicine today…. I’m having a London Fog!

 

 

 

 

 

 

 

 

 

And now for the Little Red Truck, always brings a smile to my face…

On the upside, it’s only mid-September and I’ve achieved my New Year’s resolution. I finished that bottle of Baileys I had been storing in my fridge for the last two Christmas’s. Got a taste for Baileys now. Also had a delivery from my Egg-Dealer! It always makes me Egg-cited! Get it?

Cheers,
H

Today’s Lunch – 14th August 2019

Published August 14, 2019 by helentastic67

Today’s Lunch

Good Mental Health Day

Oh my God, is this week over yet!? I cancelled my osteo appointment Monday. It was cold and I needed a long weekend.

Yesterday, I had my follow-up with the sleep clinic. Not a sleep over just an update with the specialist. I checked in and went back out to get a coffee. Thought today I might give you a recap in photo form of my appointment yesterday? I don’t consider myself particular photogenic as I look in the mirror these days and think it is what it is. So, your welcome!

Me before coffee…

 

 

After medicine!

 

 

 

 

 

 

 

 

 

And before I get to today’s offering. You may recall, the lovely Caroline my masseuse has been in Italy. She’s been doing a little gardening while her husband has been doing some maintenance. I think it’s safe to say neither know how to do Holiday.

 

They are in Casole d’Elsa 11K from SAN Giminiano. South of Florence, north of Siena. And I’m quoting her directly, it is too crowded to go there this time of year. She took these photos just for me yesterday.

 

And finally, today’s offering is a homemade sausage roll with a burning chilli chutney with side salad and medicine.

 

 

 

 

 

 

 

 

 

I’m in Thornbury today at Cafe Crunch as I was running out of time. So, I’m close to acupuncture.

 

 

 

 

 

 

 

Cheers,
H

Today’s Lunch – 31st July 2019

Published July 31, 2019 by helentastic67

Today’s Lunch

Good Mental Health Day

Last Friday I was very egg-cited! I have created a network of my neighbours who I order a bulk supply of free-range eggs. 20 eggs per tray for $14 and they are big, sometimes, even twins!

 

 

 

 

 

 

 

 

 

I’m delivering the last tray today.

This is my standard week of if you ask me why I’m so tired I will give this standard reply, as I did to my neighbour William when he dropped down for the lasagne, I portioned for him. “Do you want to go home and curl up into the foetal position and cry yourself to sleep tonight?” Because some tender young ears don’t need me to explain I’m peri-menopausal and have the crazy lady hormones that wipe me out two weeks out of every four. I was home yesterday and today I’m out all afternoon.

So, lunch today is vital, pancetta quiche with side salad and medicine!

 

 

 

 

 

 

 

 

 

Here’s the lasagne I made.

Cheers,
H

Sleep Clinic

Published July 5, 2019 by helentastic67

 

Sleep Clinic

A few months before Christmas, I had an appointment for a specialist clinic. It was the sleep clinic.

Never have two words put a greater fear into me. Well not fear perhaps, that’s exaggerating slightly, but still I sleep, I just sleep at the wrong times and I’ve just made it work and I don’t want to change.

The doctor told me he’d book me into the sleep clinic for a sleep-over. I was concerned I had sleep apnoea. (it’s not only when you snore, but when you stop breathing) I woke with my throat, glands in my neck and nose feeling kinda weird, sore and dry, plus a dream or two where I’ve felt like someone was choking me. So, sleep clinic good.

The doctor told me he wouldn’t get me in before Christmas, but maybe before Easter, which gives you an idea how much of a waiting list there was and also how he didn’t think I was going to be at a rick of dying before he would book me in. So, all was good.

Until, I got a call early December, they had a cancellation before Christmas, did I want to come in Early?

FYI: ALWAYS SAY YES!

So, I was booked in about a week before Christmas. I parked my laptop, took my overnight bag with my PJ’s and my toothbrush, my dinner and off I went. I caught the tram from my door and the extra baggage was pretty hardcore pulling me off balance, but nearly took me.

 

Sleep

Published July 1, 2019 by helentastic67

Sleep

I feel I’ve had a lifetime of sleep deficit, because I’m always trying to catch up. Sleep! Sleep! Sleep! Never enough, but it’s also somewhere (bed, anyway) where you think it’s the most comfortable place to be. Except if your only disability is depression. (Not discrediting the darkness is depression, however) Get up, move around.

So, for me going to bed to sleep is pure heaven, until, but wait.

For those older (I didn’t say old) I said older and more traditional stroke, it might require two people (cheers) to roll them over partway through the night. I can’t comment too much about that, as thankfully it hasn’t been my experience.

Early day’s I gave up my flannelette sheets, I think the first winter. HARSH. But necessary as I refused to give up my flannel PJ’s because when I rollover it’s like Velcro. The top sheet would get stuck to my PJ’s and covers would just go with me and a cool breeze would go down my back.

There was a lesson I learned pretty early on and I have only had to be reminded another two times. Try this, lie on your back and roll over to one side, as you do it, try to single out and remember all the parts of your body you utilize to roll over.

Now, what happens with your arms?

Allow me to tell you what happens with my left arm when I roll over, say to my right side, my left arm will fall behind my back, which is more than a little unpleasant. Because I can’t reach behind me to grab my left arm to pull it to the front. I literally have to roll back over onto my back, onto my arm even and I almost have to keep rolling to sit up over the edge of the bed to get my arm back in front of me.

Are you feeling my pain yet? No? Ok, let me next level it for you. In the early days of my disability, I fell over at the front of my house. My left foot got caught behind a post (a supporting post) of my front fence at the terrace house I was renting. I went down like a sack of (shit) potatoes and I smashed my head against the side of the wall and my left shoulder.

Behind me the screen door was closed, the front door open and down the hallway in the lounge was my mum. She heard the meowing I let out and came down, by the time she got to me, I had levered myself up onto the fence and noticed across the street, the creepy-but nice dude in the public housing flats on his balcony. He had seen me fall and I could tell he was concerned and was contemplating coming to help me. I gave him a wave to tell him I was OK. Mum appeared at the door “what have you done?” she demanded.

Have I mentioned my mum is NOT my Italian parent, yet this is how she responded, I know she cares and the noise I let out was just awful, pain and surprise, all rolled into one.

Now, in short, my left shoulder (to this day) mum is angry that it’s dislocated and no one wants to put it back in. Officially it’s not dislocated, but it kinda is. If I’d hit my right shoulder, it would be dislocated, but my left one has the muscle tone of an old worn elastic band. So, when I hit the wall it all just move and stretched.

Again, it’s not in its kind ‘out’ but can’t be put back ‘in’ because there is no muscle tone to hold it back in place. I’ve seen a private shoulder specialist who said he could ‘fix it’ (I imagine Frankenstein and bolts) but, he said I would have ‘other’ issues across my back.

So, when I ‘forget’ my arm, when I roll over and end up lying on it even briefly, it twists just a little in my shoulder, making it a little extra ‘special’.

Every single time I go to roll over to my right side, I grab my left arm at the wrist and bring that arm with me taking it in comfortably in front on me for safe-keeping.

Generally, every morning I’ll get a little bit of sleep on my left side and it’s very comfortable, well from the belly button down, my left arm I have to straight-jacket down my other arm so it doesn’t creep up every time I yawn.

Oh yeah that, when I yawn, it’s an involuntary thing, all the muscles in my face (cheek) neck, shoulder all tighten up and my left arm comes up,  my hand flares open and it is kinda weird, but I digress, when I even briefly sleep on my left shoulder when I get up and sit on the edge of the bad, I have my left shoulder click back into place.

So sleep Blessed sleep Yeah.

And don’t forget the T.O.S. (Thorasic Outlet Syndrome)

I generally wake up several times each night with a numb right hand or pins and needles, which is part of Carpel Tunnel Syndrome and it takes a bit of upright and moving around to have these symptoms to disappear. But it’s just another thing to add to the list.

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