All posts tagged TBI

Why I Blog

Published January 26, 2018 by helentastic67

Why I Blog 1

Why I Blog?

If you have been wondering with a weird array of randomness, what Hellonwheels is all about? Wait no longer, this is why, here is the answer.

Logo Hell on wheels

Since my diagnosis in 2007? (I don’t know! It’s been a blur) I’ve met many people with ABI/TBI/general fuckwit-ism and it has led me to query, what means what?

Brain injury


When I first started going to ABI groups socially, because society loves to put you in contact with people with the “same” issues you have. (Please note eye-roll!) I walked in and young men and old flocked towards me, I felt like a Spice Girl in the mid-90’s. One guy, let’s call him ‘Fred’ (because it’s been a while) made it clear to take me under his wing. We got chatting, as you do and as you do you talk about your life before the ABI.

Spice girls

I mentioned my Club years and that’s always a big topic. But, push came to shove and after a little young woman joined us and I was introduced. Lovely younger lady, also with an ABI. Make mental note; got to be careful or might end up ‘paired-up’ with another numpty like me before long if I’m not careful. I didn’t say this reason/story would be simple so stay with me.


Totally worth it, Promise.

Over time, I participated in activities at this group and I supported people and they supported me, so all is well. Became friends with Fred and others outside this group. (it’s inevitable: stuff sticks sometimes) Fred had gotten his TBI from pure fuckwitedness (as I like to consider it) his girlfriend was lucky to be alive having been hit by a car crossing the street. But, unlike her boyfriend, she had not had a typical young adult life, like he had, had before his TBI, because she had, had hers at 17 years-old.


He also liked to bond with me because I had been ‘there’ (Clubs/parties) and I remember it. I wasn’t drunk and off my face like nearly everyone else.

Overtime, I became a bit more of a mentor to Fred. I was friendly to his girlfriend, also she was none the wiser. He was also finding excuses to visit socially. FYI: I don’t socialize at 11pm at night, that’s my time.


He even had a gay friend drop him over for a coffee one afternoon on a weekend and I was told to ‘look’ after him.

I hope you are getting that he seemed to have told people, I might have been a potential ‘whatever/girlfriend’ when in reality it was always a HELL NO.

Hell No

I decided to discuss this situation with a friend who worked in the industry who was familiar with all of us and our past history etc, her advice to me was.

‘Oh, you should go out with him, because before his ABI, he had four or five girlfriends at a time. Now he’s only got one or two.’


Um, I hope you realise, I would not have dated more than one guy at a time before my diagnosis, let alone date a guy who thought he could date more than one woman at a time, I certainly wouldn’t now.

I am also aware I am no longer some Jennifer Hawkins type, now or before my disability, however I’m still not prepared to lower my standards and just accept some broken bit of road kill.


Make mental note: Explain Helen’s definition of Road Kill later.

Road kill

So, back to my point. Yes, apparently it is said, people retain their personality after their ABI/TBI what did I call it? That they had before their (as above).


Now, this is why I blog.

If I’ve always had my ABI (AVM), have I developed this personality, because of my AVM or despite my AVM?

BAM! There I’ve done it.


Communication – Part 1

Published August 11, 2017 by helentastic67


Communications – Part 1

I’ve been told/accused really of being terrible at communicating. I think verbally and written I communicate my thoughts rather succinctly.

Some years ago, I was expressing this issue with a friend (let’s call him Fred). Now Fred to be clear has several TBI’s (Traumatic Brain Injury) from a car accident, but let’s not hold that against him.


He suggested I do a course he did in communications. Fred told me he had thought he was really good at communicating, but having participated in the course, he realised even he could improve.

I told him, I had no time to do a course, no cash and no ability to get to a College or University. He told me not to worry about it. It was FREE and she would come to me! What? Sounds too good to be true. Fred gave me her number and I rang her and it wasn’t an actual “Course” but I think it was more of a study. I had to explain, who I was how I had “gotten” my ABI (Acquired Brain Injury). Keeping in mind I was born with my AVM (Arterial Venus Malformation).

Listening skills

I thought I was having a decent conversation who actually seemed excited to be working with me. That sounded weird, but seriously.

Then she asked me when I’d had my CAR ACCIDENT?

Car accident


I was not eligible for this communication course.

What’s worse than that is, this list of things.

  1. I don’t have a communication problem
  2. People have a hearing/listening problem.
  3. All of these “research” trials are based on people with TBI’s because they can dip into the TAC bucket of money.
  4. No one is doing any kinds of study on the different kinds of ABI/TBi’s and how they are different.


I think my communication is different to other types of ABI, particularly TBI (no offense to people with TBI’s). So many more things wrong with this…



Where Was I?

Published February 24, 2017 by helentastic67


Where Was I?

I gather you have noticed my departure from my main message, which was to educate about ABI (Acquired Brain Injury) and disability. There has been a perfectly sound reason for that. And that is two things, if it were to be all about being popular, brain injury/disability is not popular!


Brain injury and disability and these 2 things for which I qualify will never make me a million dollars. I will try to prove that statement somewhat incorrect because as I see it, I need at least a million to afford a home in a suburb I would like to live in. I live to prove people wrong – You Know It!


And because ABI/Disability are not Sexy!

I’ve had several ‘lives’ in terms of my ‘Poor Art Student’ years, then the poor but busy and happy club years, then my “Oh My God” Real money admin years when I’d go home and be happy to not pick up a phone era. And mostly people think I’m only banging on about brain injury now because I have one!

To this I say, “FUCK YOU!” At least I have what I’m selling…


And number two! When I was about 8 or 9, I did the MS Readathon like many Aussie kids. I have never had MS, I’ve never been diagnosed with MS! MS is that “thing” I like to suggest is worse than ‘my’ ABI. Apart from all the other ABI’s that seem worse than mine. I know, don’t ask me to grade a crappier ‘ABI’ than what I have…

I would suggest having most my independence, lost my ability to manage my own money, pay my bills, speak for myself (ever) that would SUCK!


So, for a while, I’ll return to my original aim of educating people about ABI.

I’m not going to tell you an ABI can easily be avoided. Some can, come can’t.

If I told you to not drink or smoke, and you could avoid a stroke, that would be a lie.

Do I suggest never getting in a car or on a motorbike and therefore you can avoid a TBI? (Traumatic Brain Injury), apart from it’s too late, it’s very unrealistic.

You won’t get hit by a bus if your never leave the house, but you can die just as likely by not leaving the house.


You are damned if you do and damned if you don’t.

If you want further information about ABI/TBI, this is not the right blog for you. Luckily, there is someone who does that already, does the appropriate research and you can find his blog here www.brilliantminds.com

I, on the other hand do simple stuff about ABI for the common person.

  1. Brain Injury – bad!
  2. Not all brain injuries are avoidable.
  3. Every ABI/TBI is different. Not all ABI’s get funding.



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